scholarly journals Impacts of older people’s patient and public involvement in health and social care research: a systematic review

2018 ◽  
Vol 47 (6) ◽  
pp. 801-809 ◽  
Author(s):  
Jennifer N Baldwin ◽  
Sara Napier ◽  
Stephen Neville ◽  
Valerie A Wright-St Clair
Keyword(s):  
Systematic Review ◽  
Public Involvement ◽  
Social Care ◽  
Patient And Public Involvement ◽  
Care Research ◽  
Health And Social Care

scholarly journals Mapping the impact of patient and public involvement on health and social care research: a systematic review

2012 ◽  
Vol 17 (5) ◽  
pp. 637-650 ◽  
Author(s):  
Jo Brett ◽  
Sophie Staniszewska ◽  
Carole Mockford ◽  
Sandra Herron-Marx ◽  
John Hughes ◽  
...  
Keyword(s):  
Systematic Review ◽  
Public Involvement ◽  
Social Care ◽  
Patient And Public Involvement ◽  
Care Research ◽  
Health And Social Care ◽  
The Impact

scholarly journals Patient and public involvement (PPI) in prisons: the involvement of people living in prison in the research process – a systematic scoping review

2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Samantha Treacy ◽  
Steven Martin ◽  
Nelum Samarutilake ◽  
Tine Van Bortel
Keyword(s):  
Systematic Review ◽  
Scoping Review ◽  
Public Involvement ◽  
Social Care ◽  
Positive Impact ◽  
Research Process ◽  
Evidence Base ◽  
Patient And Public Involvement ◽  
Care Research ◽  
Health And Social Care

Abstract Background Patient and Public Involvement (PPI) in health and social care research is increasingly prevalent and is promoted in policy as a means of improving the validity of research. This also applies to people living in prison and using social care services. Whilst evidence for the effectiveness of PPI was limited and reviews of its application in prisons were not found, the infancy of the evidence base and moral and ethical reasons for involvement mean that PPI continues to be advocated in the community and in prisons. Objectives To conduct a review of the literature regarding the involvement of people or persons living in prison (PLiP) in health and social care research focused on: (i) aims; (ii) types of involvement; (iii) evaluations and findings; (iv) barriers and solutions; and (v) feasibility of undertaking a systematic review. Methods A systematic scoping review was undertaken following Arksey and O’Malley’s (International Journal of Social Research Methodology 8: 19-32, 2005) five-stage framework. A comprehensive search was conducted involving ten electronic databases up until December 2020 using patient involvement and context related search terms. A review-specific spreadsheet was created following the PICO formula, and a narrative synthesis approach was taken to answer the research questions. PRISMA guidelines were followed in reporting. Results 39 papers were selected for inclusion in the review. The majority of these took a ‘participatory’ approach to prisoner involvement, which occurred at most stages during the research process except for more ‘higher’ level research operations (funding applications and project management), and only one study was led by PLiPs. Few studies involved an evaluation of the involvement of PLiP, and this was mostly PLiP or researcher reflections without formal or independent analysis, and largely reported a positive impact. Barriers to the involvement of PLiP coalesced around power differences and prison bureaucracy. Conclusion Given the very high risk of bias arising from the available ‘evaluations’, it was not possible to derive firm conclusions about the effectiveness of PLiP involvement in the research process. In addition, given the state of the evidence base, it was felt that a systematic review would not be feasible until more evaluations were undertaken using a range of methodologies to develop the field further.

Developing the evidence base of patient and public involvement in health and social care research: the case for measuring impact

2011 ◽  
Vol 35 (6) ◽  
pp. 628-632 ◽  
Author(s):  
Sophie Staniszewska ◽  
Ade Adebajo ◽  
Rosemary Barber ◽  
Peter Beresford ◽  
Louca-Mai Brady ◽  
...  
Keyword(s):  
Public Involvement ◽  
Social Care ◽  
Evidence Base ◽  
Patient And Public Involvement ◽  
Care Research ◽  
Health And Social Care

Patient and Public Involvement in Health and Social Care Research

2020 ◽  
Author(s):  
Jurgen Grotz ◽  
Mary Ledgard ◽  
Fiona Poland
Keyword(s):  
Public Involvement ◽  
Social Care ◽  
Patient And Public Involvement ◽  
Care Research ◽  
Health And Social Care

scholarly journals Exploring disconnected discourses about Patient and Public Involvement and Volunteer Involvement in English health and social care

2020 ◽  
Author(s):  
Jurgen Grotz ◽  
Linda Birt ◽  
Heather Edwards ◽  
Michael Locke ◽  
Fiona Poland
Keyword(s):  
Public Involvement ◽  
Social Care ◽  
Patient And Public Involvement ◽  
Health And Social Care

scholarly journals Patient and Public Involvement of young people with a chronic condition in projects in health and social care: A scoping review

2020 ◽  
Vol 23 (4) ◽  
pp. 789-801 ◽  
Author(s):  
Femke Schelven ◽  
Hennie Boeije ◽  
Veerle Mariën ◽  
Jany Rademakers
Keyword(s):  
Young People ◽  
Scoping Review ◽  
Chronic Condition ◽  
Public Involvement ◽  
Social Care ◽  
Patient And Public Involvement ◽  
Health And Social Care

scholarly journals Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: a modified Delphi study

BMJ Open ◽  
2014 ◽  
Vol 4 (6) ◽  
pp. e004943-e004943 ◽  
Author(s):  
D. Snape ◽  
J. Kirkham ◽  
N. Britten ◽  
K. Froggatt ◽  
F. Gradinger ◽  
...  
Keyword(s):  
Delphi Study ◽  
Public Involvement ◽  
Social Care ◽  
Perceived Barriers ◽  
Care Research ◽  
Modified Delphi ◽  
Health And Social Care

Blowin’ in the wind: The involvement of people who use services, carers and the public in health and social care

2016 ◽  
Author(s):  
Karen Newbigging
Keyword(s):  
Public Involvement ◽  
Social Care ◽  
Patient And Public Involvement ◽  
Democratic Deficit ◽  
The Public ◽  
Health And Social Care ◽  
Rapid Diversification

Patient and public involvement (PPI) is often framed in terms of addressing the democratic deficit in the NHS but in England, since 2000, it has become increasingly aligned with the reform of the NHS to become patient centred by enabling people to exercise choice as a right and responsibility across all aspects of healthcare. Since then, there has been a rapid diversification of approaches to and methods for PPI, which experienced organisational turbulence under the Labour administration. This chapter discusses the evolution of PPI in England before 2010, and it examines the Coalition’s reforms of PPI, and the implications of these reforms.

Partners in projects: Preparing for public involvement in health and social care research

Health Policy ◽  
2014 ◽  
Vol 117 (3) ◽  
pp. 399-408 ◽  
Author(s):  
Jacqueline H. Parkes ◽  
Michelle Pyer ◽  
Paula Wray ◽  
Jane Taylor
Keyword(s):  
Public Involvement ◽  
Social Care ◽  
Care Research ◽  
Health And Social Care
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