Seventh-Day Adventists and Care for the Newborn

2019 ◽  
pp. 213-232
Author(s):  
Gerald R. Winslow
Keyword(s):  
Health Care ◽  
Intensive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Neonatal Intensive Care ◽  
Family Members ◽  
Newborn Infants ◽  
Life Care ◽  
Freedom Of Conscience ◽  
History Of

As a practical expression of their faith, Seventh-day Adventists have established healthcare institutions, including facilities for the intensive care of newborn infants. This chapter provides a brief history of Adventist engagement in health care and seeks to explain how core Adventist convictions provide the motivation for providing such care and shape the way it is given. The chapter also describes how Adventist beliefs may affect the ways in which Adventists or their family members receive health care. This includes beliefs in divine creation, human wholeness, freedom of conscience, spiritual commitment to health, and worldwide mission. Adventists believe that, by the Creator’s design, each person is a spiritual and physical unity. Using the example of a specific case of neonatal intensive care, the chapter explores how Adventist convictions are likely to support and inform caregiving and care receiving. Also described are Adventist principles for end-of-life care.

Nurses’ roles and challenges in providing end-of-life care in neonatal intensive care units in South Korea

2019 ◽  
Vol 50 ◽  
pp. 151204 ◽  
Author(s):  
Sujeong Kim ◽  
Teresa A. Savage ◽  
Mi-Kyung Song ◽  
Catherine Vincent ◽  
Chang G. Park ◽  
...  
Keyword(s):  
Intensive Care ◽  
South Korea ◽  
End Of Life ◽  
Intensive Care Units ◽  
End Of Life Care ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Life Care

A descriptive report of end-of-life care practices occurring in two neonatal intensive care units

2016 ◽  
Vol 30 (10) ◽  
pp. 971-978 ◽  
Author(s):  
Vanessa Lam ◽  
Nicole Kain ◽  
Chloe Joynt ◽  
Michael A van Manen
Keyword(s):  
Congenital Anomaly ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Life Care ◽  
Life Sustaining Treatment ◽  
Care Practices

Background: In Canada and other developed countries, the majority of neonatal deaths occur in tertiary neonatal intensive care units. Most deaths occur following the withdrawal of life-sustaining treatments. Aim: To explore neonatal death events and end-of-life care practices in two tertiary neonatal intensive care settings. Design: A structured, retrospective, cohort study. Setting/participants: All infants who died under tertiary neonatal intensive care from January 2009 to December 2013 in a regional Canadian neonatal program. Deaths occurring outside the neonatal intensive care unit in delivery rooms, hospital wards, or family homes were not included. Overall, 227 infant deaths were identified. Results: The most common reasons for admission included prematurity (53.7%), prematurity with congenital anomaly/syndrome (20.3%), term congenital anomaly (11.5%), and hypoxic ischemic encephalopathy (12.3%). The median age at death was 7 days. Death tended to follow a decision to withdraw life-sustaining treatment with anticipated poor developmental outcome or perceived quality of life, or in the context of a moribund dying infant. Time to death after withdrawal of life-sustaining treatment was uncommonly a protracted event but did vary widely. Most dying infants were held by family members in the neonatal intensive care unit or in a parent room off cardiorespiratory monitors. Analgesic and sedative medications were variably given and not associated with a hastening of death. Conclusion: Variability exists in end-of-life care practices such as provision of analgesic and sedative medications. Other practices such as discontinuation of cardiorespiratory monitors and use of parent rooms are more uniform. More research is needed to understand variation in neonatal end-of-life care.

105 ATTITUDES TOWARDS PALLIATIVE AND END-OF-LIFE CARE IN THE NEONATAL INTENSIVE CARE UNIT.

2004 ◽  
Vol 52 (Suppl 1) ◽  
pp. S97.1-S97
Author(s):  
K. Yaeger ◽  
A. Murphy ◽  
K. Braccia ◽  
M. Coyle ◽  
J. Anderson ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
End Of Life ◽  
End Of Life Care ◽  
Neonatal Intensive Care ◽  
Life Care

Communication, Negotiation, and Mediation: Dealing with Conflict in End-of-Life Decisions

2000 ◽  
Vol 16 (1_suppl) ◽  
pp. S17-S23 ◽  
Author(s):  
Kerry W. Bowman
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
End Of Life ◽  
Cultural Differences ◽  
End Of Life Care ◽  
Family Dynamics ◽  
Life Care ◽  
Health Care Teams ◽  
End Of Life Decisions

In recent years, it has become possible for the end of life to be a negotiated event, particularly in the intensive care unit. A multitude of often unidentified and poorly understood factors affect such negotiations. These include, family dynamics, ever-changing health care teams, inconsistent opinions about prognosis, and cultural differences between physicians, and patients and their families. When these factors converge, conflict may erupt. This article explores the nature, antecedents, and cost of such conflict. Arguments for the importance of balanced communication, negotiation, and mediation in end-of-life care are put forward.

End-of-Life Care in the Neonatal Intensive Care Unit: Experiences of Staff and Parents

2014 ◽  
Vol 32 (08) ◽  
pp. 713-724 ◽  
Author(s):  
Marilyn Sanders ◽  
Elizabeth Brownell ◽  
Kerry Moss ◽  
DonnaMaria Cortezzo
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
End Of Life ◽  
End Of Life Care ◽  
Neonatal Intensive Care ◽  
Life Care

Beyond the hour of death: Family experiences of grief and bereavement following an end-of-life hospitalization in the intensive care unit

2020 ◽  
pp. 136345932094647
Author(s):  
Julia I Bandini
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Life Care ◽  
Family Experiences ◽  
End Of Life Decision ◽  
Life Decision

End-of-life decision-making is an important area of research, and few sociological studies have considered family grief in light of end-of-life decision-making in the hospital. Drawing on in-depth interviews with family members in the intensive care unit (ICU) during an end-of-life hospitalization and into their bereavement period up to six months after the death of the patient, this article examines bereaved family members’ experiences of grief by examining three aspects from the end-of-life hospitalization and decision-making in the ICU that informed their subsequent bereavement experiences. First, this article explores how the process of advance care planning (ACP) shaped family experiences of grief, by demonstrating that even prior informal conversations around end-of-life care outside of having an advance directive in the hospital was beneficial for family members both during the hospitalization and afterwards in bereavement. Second, clinicians’ compassionate caring for both patients and families through the “little things” or small gestures were important to families during the end-of-life hospitalization and afterwards in bereavement. Third, the transition time in the hospital before the patient’s death facilitated family experiences of grief by providing a sense of support and meaning in bereavement. The findings have implications for clinicians who provide end-of-life care by highlighting salient aspects from the hospitalization that may shape family grief following the patient’s death. Most importantly, the notion that ACP as a social process may be a “gift” to families during end-of-life decision-making and carry through into bereavement can serve as a motivator to engage patients in ACP.

Nurses’ care practices at the end of life in intensive care units in Bahrain

2016 ◽  
Vol 24 (8) ◽  
pp. 950-961 ◽  
Author(s):  
Catherine S O’Neill ◽  
Maryam Yaqoob ◽  
Sumaya Faraj ◽  
Carla L O’Neill
Keyword(s):  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
End Of Life Care ◽  
Family Members ◽  
Professional Autonomy ◽  
Host Institution ◽  
Life Care ◽  
Religious Experiences ◽  
Care Practices

Background: The process of dying in intensive care units is complex as the technological environment shapes clinical decisions. Decisions at the end of life require the involvement of patient, families and healthcare professionals. The degree of involvement can vary depending on the professional and social culture of the unit. Nurses have an important role to play in caring for dying patients and their families; however, their knowledge is not always sought. Objectives: This study explored nurses’ care practices at the end of life, with the objective of describing and identifying end of life care practices that nurses contribute to, with an emphasis on culture, religious experiences and professional identity. Research Design and context: Grounded theory was used. In all, 10 nurses from intensive care unit in two large hospitals in Bahrain were participated. Ethical Considerations: Approval to carry out the research was given by the Research Ethics Committee of the host institution, and the two hospitals. Findings: A core category, Death Avoidance Talk, was emerged. This was supported by two major categories: (1) order-oriented care and (2) signalling death and care shifting. Discussion: Death talk was avoided by the nurses, doctors and family members. When a decision was made by the medical team that a patient was not to be resuscitated, the nurses took this as a sign that death was imminent. This led to a process of signalling death to family and of shifting care to family members. Conclusion: Despite the avoidance of death talk and nurses’ lack of professional autonomy, they created awareness that death was imminent to family members and ensured that end of life care was given in a culturally sensitive manner and aligned to Islamic values.

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