Coping Strategies used by Mothers and Fathers following Diagnosis of Congenital Heart Disease

2021 ◽  
Author(s):  
Abigail C. Demianczyk ◽  
Colleen F. Bechtel Driscoll ◽  
Allison Karpyn ◽  
Amanda Shillingford ◽  
Anne E. Kazak ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Coping Strategies ◽  
Congenital Heart ◽  
Mothers And Fathers

Birth of a child with congenital heart disease: emotional reactions of mothers and fathers according to time of diagnosis

2013 ◽  
Vol 26 (12) ◽  
pp. 1249-1253 ◽  
Author(s):  
Francesca Bevilacqua ◽  
Sara Palatta ◽  
Nadia Mirante ◽  
Marina Cuttini ◽  
Giulio Seganti ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Emotional Reactions ◽  
Mothers And Fathers

scholarly journals Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents

2019 ◽  
Vol 25 (3) ◽  
pp. 447-468 ◽  
Author(s):  
Åsa Burström ◽  
Mariela Acuña Mora ◽  
Maria Öjmyr-Joelsson ◽  
Carina Sparud-Lundin ◽  
Annika Rydberg ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Parental Involvement ◽  
Chronic Conditions ◽  
Congenital Heart ◽  
Adult Care ◽  
Mothers And Fathers ◽  
Negatively Associated ◽  
Transition Readiness ◽  
Multivariable Analyses

Transfer to adult care for adolescents with chronic conditions ought to be determined by transition readiness. The aims of this study were (a) to describe the level of readiness for transition in adolescents with congenital heart disease, (b) to compare adolescents’ assessment of transition readiness with their parents’ assessments, and (c) to study potential correlates of transition readiness. A total of 157 triads of adolescents aged 14 to 18 years and their parents completed the Readiness for Transition Questionnaire. Adolescents scored higher on overall readiness than their parents. Multivariable analyses revealed that higher levels of adolescents’ overall readiness were associated with a less threatening view of the illness, a higher level of empowerment, and with higher mothers’ and fathers’ overall readiness scores. Adolescents’ responsibility scores were positively associated with age and parental adolescent responsibility scores. Parental involvement scores were negatively associated with adolescents’ age and positively with the mothers’ parental involvement scores. By using a triadic evaluation, the results of the present study significantly extend what is currently known about this population.

Role alteration predicts anxiety and depressive symptoms in parents of infants with congenital heart disease: a pilot study

2021 ◽  
pp. 1-8
Author(s):  
Amy J. Lisanti ◽  
Aparna Kumar ◽  
Ryan Quinn ◽  
Jesse L. Chittams ◽  
Barbara Medoff-Cooper ◽  
...  
Keyword(s):  
Mental Health ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Depressive Symptoms ◽  
Congenital Heart ◽  
Parental Role ◽  
Mental Health Symptoms ◽  
Critical Congenital Heart Disease ◽  
Health Symptoms ◽  
Mothers And Fathers

Abstract Background: Parents of infants born with critical congenital heart disease are at risk for adverse mental health symptoms. The purpose of this study was to identify infant-, parent-, and environmental-based stressors for mothers and fathers after their infants’ cardiac surgery, and to explore relationships between stressors and mental health symptoms of anxiety and depression. Methods: This study enrolled 28 biological mother-father dyads from families admitted to the paediatric cardiac intensive care unit for cardiac surgery at one free-standing children’s hospital in the Northeast. Paired t-tests were used to examine group differences between mothers and fathers on perceived stressors and mental health symptoms, while linear mixed effects modelling was used to explore the predictive relationship between perceived stressors, personal factors, and mental health symptoms. Results: Mothers reported higher perceived stressor scores of parental role alteration (t = 4.03, p < 0.01) and infant appearance and behaviour (t = 2.61, p = 0.02), and total perceived stress (t = 2.29 p = 0.03), compared to fathers. Mothers also reported higher anxiety (t = 2.47, p = 0.02) and depressive symptoms (t = 3.25, p < 0.01) than fathers. In multivariable analysis, parental role alteration significantly predicted anxiety (t = 5.20, p < 0.01, d = 0.77) and depressive symptoms (t = 7.09, p < 0.01, d = 1.05) for mothers and fathers. The consensus subscale of the Dyadic Adjustment Scale also significantly predicted depressive symptoms (t = −2.42, p = 0.02, d = 0.04). Conclusion: Parents were distressed during their infant’s admission for surgical repair for critical congenital heart disease. Parental role alteration was significantly associated with parental anxiety and depressive symptoms, while poor relationship quality was associated with depressive symptoms, highlighting areas for potential nursing-led psychosocial led interventions.

scholarly journals Life Experiences and Coping Strategies in Adults with Congenital Heart Disease

2013 ◽  
Vol 35 (5) ◽  
Author(s):  
E. Callus ◽  
E. Quadri ◽  
A. Compare ◽  
A. Tovo ◽  
A. Giamberti ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Coping Strategies ◽  
Congenital Heart ◽  
Life Experiences ◽  
And Coping

scholarly journals Mothers and Fathers Experience Stress of Congenital Heart Disease Differently

2018 ◽  
Vol 19 (7) ◽  
pp. 626-634 ◽  
Author(s):  
Erica Sood ◽  
Allison Karpyn ◽  
Abigail C. Demianczyk ◽  
Jennie Ryan ◽  
Emily A. Delaplane ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Mothers And Fathers

Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease

2009 ◽  
Vol 27 (4) ◽  
pp. 390-400 ◽  
Author(s):  
Nicola Doherty ◽  
Christopher G. McCusker ◽  
Bernadette Molloy ◽  
Connor Mulholland ◽  
Nichola Rooney ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Psychological Functioning ◽  
Congenital Heart ◽  
Mothers And Fathers ◽  
Severe Congenital Heart Disease
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