Autism spectrum disorders: a qualitative study of attitudes toward prenatal genetic testing and termination decisions of affected pregnancies

2014 ◽  
Vol 88 (2) ◽  
pp. 122-128 ◽  
Author(s):  
L.S. Chen ◽  
L. Xu ◽  
S.U. Dhar ◽  
M. Li ◽  
D. Talwar ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Qualitative Study ◽  
Autism Spectrum ◽  
Prenatal Genetic Testing ◽  
Spectrum Disorders ◽  
Termination Decisions

A qualitative study exploring the attitudes toward prenatal genetic testing for autism spectrum disorders among parents of affected children in Taiwan

2018 ◽  
Vol 48 ◽  
pp. 36-43 ◽  
Author(s):  
Shixi Zhao ◽  
Chen-Hui Wang ◽  
Tse-Yang Huang ◽  
Yann-Jang Chen ◽  
Ching-Hua Hsiao ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Qualitative Study ◽  
Autism Spectrum ◽  
Prenatal Genetic Testing ◽  
Spectrum Disorders

scholarly journals Autism genetic testing: a qualitative study of awareness, attitudes, and experiences among parents of children with autism spectrum disorders

2013 ◽  
Vol 15 (4) ◽  
pp. 274-281 ◽  
Author(s):  
Lei-Shih Chen ◽  
Lei Xu ◽  
Tse-Yang Huang ◽  
Shweta U. Dhar
Keyword(s):  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Qualitative Study ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorders

scholarly journals Autism Spectrum Disorders: Prenatal Genetic Testing and Abortion Decision-Making among Taiwanese Mothers of Affected Children

2020 ◽  
Vol 17 (2) ◽  
pp. 476
Author(s):  
Wei-Ju Chen ◽  
Shixi Zhao ◽  
Tse-Yang Huang ◽  
Oi-Man Kwok ◽  
Lei-Shih Chen
Keyword(s):  
Decision Making ◽  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Structural Equation ◽  
Chinese Culture ◽  
Susceptibility Genes ◽  
Autism Spectrum ◽  
Equation Modeling ◽  
Prenatal Genetic Testing ◽  
Spectrum Disorders

With the rapid growing rate of autism spectrum disorders (ASDs), prenatal genetic testing (PGT) has been offered to detect various genomic disorders, including ASD, in Taiwan. However, disparities exist in this area, as there is limited research on factors associated with PGT utilization and relevant decision-making that may guide the regulations and ethical guidelines for culturally appropriate PGT services in Taiwan. This study proposed a comprehensively integrated theoretical framework for examining the intention to undergo PGT to detect ASD susceptibility genes and subsequent abortion decision-making among Taiwanese mothers of children affected by ASD. Survey data from 333 mothers of children with ASD in 236 elementary schools with special education services in Taiwan were collected and analyzed using structural equation modeling. Approximately two-thirds of the participants (66.6%) would undergo PGT to detect ASD susceptibility genes; more than half (53.1%) would terminate the hypothetically ASD-affected pregnancy. Abortion intention was associated with age, religion, attitudes toward PGT for detecting ASD susceptibility genes, and willingness to undergo such PGT. This study explores the potential impacts of PGT on Taiwanese society, and the findings are applicable to countries heavily influenced by Chinese culture, areas with Asian immigrants, and Western countries with such PGT services and/or research available.

Factors Influencing Decisions About Prenatal Genetic Testing for Autism Among Mothers of Children with Autism Spectrum Disorders

2020 ◽  
Vol 4 (2) ◽  
pp. 190-198
Author(s):  
Lei Xu ◽  
Alice R. Richman ◽  
Linda C. Mitchell ◽  
Huabin Luo ◽  
Yong-hui Jiang
Keyword(s):  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Prenatal Genetic Testing ◽  
Factors Influencing ◽  
Spectrum Disorders

scholarly journals 0748 Parent Satisfaction with Sleep Education Delivered by Community Therapists for Children with Autism Spectrum Disorders: A Qualitative Study

SLEEP ◽  
2019 ◽  
Vol 42 (Supplement_1) ◽  
pp. A300-A300
Author(s):  
Laura E Gray ◽  
Lydia L MacDonald ◽  
David G Schlundt ◽  
Kemberlee R Bonnett ◽  
Beth A Malow
Keyword(s):  
Autism Spectrum Disorders ◽  
Qualitative Study ◽  
Children With Autism ◽  
Parent Satisfaction ◽  
Autism Spectrum ◽  
Sleep Education ◽  
Spectrum Disorders

Strategies to Improve Diet Quality Among Children With Autism Spectrum Disorders (ASDs): A Qualitative Study

2015 ◽  
Vol 47 (4) ◽  
pp. S91-S92
Author(s):  
Rachel Paul ◽  
J. Michalski ◽  
R. Hand ◽  
H.L. Gray
Keyword(s):  
Autism Spectrum Disorders ◽  
Qualitative Study ◽  
Diet Quality ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorders

ATTITUDES, PERSPECTIVES, AND PREVALENCE OF MOLECULAR GENETIC TESTING IN AUTISM SPECTRUM DISORDERS: BIG LESSONS FROM THE SMALLEST STATE

2019 ◽  
Vol 29 ◽  
pp. S22
Author(s):  
Daniel Moreno De Luca ◽  
Molly Goldman ◽  
Elaine Clarke ◽  
Silvana Guerrero ◽  
Stephen Sheinkopf ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Molecular Genetic ◽  
Autism Spectrum ◽  
Molecular Genetic Testing ◽  
Spectrum Disorders

Bullying Among Youth With Autism Spectrum Disorders: A Qualitative Study

2014 ◽  
Author(s):  
Kirsten A. Scheil ◽  
Robin M. Kowalski
Keyword(s):  
Autism Spectrum Disorders ◽  
Qualitative Study ◽  
Autism Spectrum ◽  
Spectrum Disorders

scholarly journals Clinical Genetic Testing for Patients With Autism Spectrum Disorders

PEDIATRICS ◽  
2010 ◽  
Vol 125 (4) ◽  
pp. e727-e735 ◽  
Author(s):  
Y. Shen ◽  
K. A. Dies ◽  
I. A. Holm ◽  
C. Bridgemohan ◽  
M. M. Sobeih ◽  
...  
Keyword(s):  
Autism Spectrum Disorders ◽  
Genetic Testing ◽  
Autism Spectrum ◽  
Clinical Genetic ◽  
Clinical Genetic Testing ◽  
Spectrum Disorders
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