1111 Challenges to the transition of young people with complex health conditions to adult services

Mapping Intimacies ◽

10.1136/archdischild-2021-rcpch.406 ◽

2021 ◽

Author(s):

Jennifer Browne

Keyword(s):

Young People ◽

Health Conditions ◽

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Harmful drinking is associated with mental health conditions and other risk behaviours in Australian young people

Australian and New Zealand Journal of Public Health ◽

10.1111/1753-6405.12978 ◽

2020 ◽

Vol 44 (3) ◽

pp. 201-207

Author(s):

Fernando Lima ◽

Scott Sims ◽

Melissa O'Donnell

Keyword(s):

Mental Health ◽

Young People ◽

Health Conditions ◽

Risk Behaviours ◽

Harmful Drinking ◽

Mental Health Conditions

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Review: Transition from children's to adult services: a review of guidelines and protocols for young people with attention deficit hyperactivity disorder in England

Child and Adolescent Mental Health ◽

10.1111/camh.12301 ◽

2018 ◽

Vol 24 (2) ◽

pp. 123-132 ◽

Author(s):

Helen Eke ◽

Astrid Janssens ◽

Tamsin Ford

Keyword(s):

Attention Deficit Hyperactivity Disorder ◽

Young People ◽

Attention Deficit ◽

Hyperactivity Disorder ◽

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G544(P) What do young people think can be improved with the transition to adult services?

10.1136/archdischild-2020-rcpch.462 ◽

2020 ◽

Author(s):

E Farr ◽

SMA Alam ◽

S Thomas ◽

JH Van der Voort

Keyword(s):

Young People ◽

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Transitioning Young People with Spasticity from Paediatric to Adult Services

Spasticity Management ◽

10.1201/b21452-8 ◽

2016 ◽

pp. 161-170

Author(s):

Sarah Perides ◽

Margaret Kaminska

Keyword(s):

Young People ◽

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406 Evaluating the transition from paediatric to adult services for young people with cystic fibrosis

Journal of Cystic Fibrosis ◽

10.1016/s1569-1993(05)80357-1 ◽

2005 ◽

Vol 4 ◽

pp. S109

Keyword(s):

Cystic Fibrosis ◽

Young People ◽

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Health-care transition from adolescent to adult services for young people with HIV

The Lancet Child & Adolescent Health ◽

10.1016/s2352-4642(18)30005-1 ◽

2018 ◽

Vol 2 (3) ◽

pp. 214-222 ◽

Author(s):

Diane M Straub ◽

Amanda E Tanner

Keyword(s):

Health Care ◽

Young People ◽

Care Transition ◽

Health Care Transition ◽

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Transition from school to adult services for young people with severe or profound intellectual disability: A systematic review utilizing framework synthesis

Journal of Applied Research in Intellectual Disabilities ◽

10.1111/jar.12466 ◽

2018 ◽

Vol 31 (6) ◽

pp. 962-982 ◽

Author(s):

Paula Jacobs ◽

Kenneth MacMahon ◽

Ethel Quayle

Keyword(s):

Systematic Review ◽

Intellectual Disability ◽

Young People ◽

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Transition from child to adult services for young people with cancer

Nursing Children and Young People ◽

10.7748/ncyp2013.02.25.1.14.s9534 ◽

2013 ◽

Vol 25 (1) ◽

pp. 14-18 ◽

Author(s):

Wendy McInally ◽

Susanne Cruickshank

Keyword(s):

Young People ◽

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Current methods of transfer of young people with Type 1 diabetes to adult services

Diabetic Medicine ◽

10.1111/j.1464-5491.2003.00919.x ◽

2003 ◽

Vol 20 (12) ◽

pp. 1034-1034 ◽

Author(s):

S. Channon ◽

V. Smith ◽

J. Alcolado ◽

J. W. Gregory

Keyword(s):

Type 1 Diabetes ◽

Young People ◽

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Measuring psychological outcomes in paediatric settings: Making outcomes meaningful using client-defined perspectives

Clinical Child Psychology and Psychiatry ◽

10.1177/1359104520904120 ◽

2020 ◽

Vol 25 (3) ◽

pp. 594-603

Author(s):

Halina Flannery ◽

Jenna Jacob

Keyword(s):

Young People ◽

Outcome Measures ◽

Outcome Measurement ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Chronic Health Conditions ◽

Health Conditions ◽

Psychological Outcome ◽

Chronic Health ◽

Patient Reported

There is a growing drive to develop and implement patient-reported outcome measures within paediatric health services, particularly for young people living with chronic health conditions; however, there is little consensus on how best to do this in meaningful ways within psychological services working alongside medical teams. This reflective commentary considers some of the challenges of collecting psychological outcome measures in paediatric services and considers alternative approaches to making outcome measurement meaningful. All measures have their limitations; however, they become meaningless if they are not used in meaningful and considered ways with young people. Client-defined outcome measurement, such as goal-based outcome measures, alongside other types of measurement, can capture outcomes of meaning to young people living with chronic health conditions, and can enable them to feed into a shared decision-making process.

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