scholarly journals Healing the Past by Nurturing the Future—co-designing perinatal strategies for Aboriginal and Torres Strait Islander parents experiencing complex trauma: framework and protocol for a community-based participatory action research study

BMJ Open ◽  
2019 ◽  
Vol 9 (6) ◽  
pp. e028397 ◽  
Author(s):  
Catherine Chamberlain ◽  
Graham Gee ◽  
Stephanie Janne Brown ◽  
Judith Atkinson ◽  
Helen Herrman ◽  
...  

IntroductionChild maltreatment and other traumatic events can have serious long-term physical, social and emotional effects, including a cluster of distress symptoms recognised as ‘complex trauma’. Aboriginal and Torres Strait Islander (Aboriginal) people are also affected by legacies of historical trauma and loss. Trauma responses may be triggered during the transition to parenting in the perinatal period. Conversely, becoming a parent offers a unique life-course opportunity for healing and prevention of intergenerational transmission of trauma. This paper outlines a conceptual framework and protocol for an Aboriginal-led, community-based participatory action research (action research) project which aims to co-design safe, acceptable and feasible perinatalawareness, recognition, assessmentandsupportstrategies for Aboriginal parents experiencing complex trauma.Methods and analysisThis formative research project is being conducted in three Australian jurisdictions (Northern Territory, South Australia and Victoria) with key stakeholders from all national jurisdictions. Four action research cycles incorporate mixed methods research activities including evidence reviews, parent and service provider discussion groups, development and psychometric evaluation of a recognition and assessment process and drafting proposals for pilot, implementation and evaluation. Reflection and planning stages of four action research cycles will be undertaken in four key stakeholder workshops aligned with the first four Intervention Mapping steps to prepare programme plans.Ethics and disseminationEthics and dissemination protocols are consistent with the National Health and Medical Research Council Indigenous Research Excellence criteria of engagement, benefit, transferability and capacity-building. A conceptual framework has been developed to promote the application of core values of safety, trustworthiness, empowerment, collaboration, culture, holism, compassion and reciprocity. These include related principles and accompanying reflective questions to guide research decisions.

2014 ◽  
Vol 34 (4) ◽  
Author(s):  
Andrea Gossett Zakrajsek ◽  
Mansha Mirza ◽  
Nathan Kai-Cheong Chan ◽  
Tom Wilson ◽  
Mark Karner ◽  
...  

<p><span>Despite preference for community-based living, large numbers of people with psychiatric disabilities live in nursing homes throughout the US. Community-based services for this population are limited by public policy and service system barriers. This paper summarizes these barriers and presents the second phase of a participatory action research project jointly developed by university-based researchers and two Centers for Independent Living. A qualitative case study methodology was used to understand the experiences of three individuals with psychiatric disabilities reintegrating into the community from nursing homes. Findings revealed themes of social isolation, participation in virtual communities, variability of impairment experiences and unmet needs for community supports. In addition to thematic findings, action products were generated for the benefit of community partners. These products included national best practice resources and a needs assessment survey tool. Study findings and products point to specific systems change and policy recommendations to better support community reintegration for this population. These recommendations are discussed in light of U.S. healthcare reform and broader disability advocacy efforts.</span></p>


2021 ◽  
pp. 1-16
Author(s):  
Thierry R. F. Middleton ◽  
Robert J. Schinke ◽  
Deborah Lefebvre ◽  
Bahaa Habra ◽  
Diana Coholic ◽  
...  

2012 ◽  
Vol 12 (1) ◽  
Author(s):  
Saeid Sadeghieh Ahari ◽  
Shahram Habibzadeh ◽  
Moharram Yousefi ◽  
Firouz Amani ◽  
Reza Abdi

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