scholarly journals The role of specialist palliative care services in stroke – views from an acute stroke unit

2012 ◽  
Vol 2 (Suppl 1) ◽  
pp. A14.1-A14 ◽  
Author(s):  
Clare Jeffries ◽  
Shipman Cathy ◽  
Bee Wee
Keyword(s):  
Palliative Care ◽  
Acute Stroke ◽  
Stroke Unit ◽  
Specialist Palliative Care ◽  
Care Services ◽  
Palliative Care Services ◽  
Acute Stroke Unit

scholarly journals Phase I cancer trials: a qualitative study of specialist palliative care

2019 ◽  
Vol 10 (2) ◽  
pp. 234-241
Author(s):  
Sarah Bellhouse ◽  
Lucy Galvin ◽  
Lorraine Turner ◽  
Sally Taylor ◽  
Michelle Davies ◽  
...  
Keyword(s):  
Palliative Care ◽  
Phase I ◽  
Advanced Cancer ◽  
Phase I Trial ◽  
Specialist Palliative Care ◽  
Care Model ◽  
Advanced Cancer Patients ◽  
Care Services ◽  
Palliative Care Services

ObjectiveIn recent years, a simultaneous care model for advanced cancer patients has been recommended meaning that palliative care services are offered throughout their cancer journey. To inform the successful adoption of this model in a phase I trial context, the study aimed to explore patients’ care needs and their perceptions of specialist palliative care.MethodsSemi-structured interviews were conducted with 10 advanced cancer patients referred to the Experimental Cancer Medicine team. Interviews were transcribed verbatim and thematically analysed with a framework approach to data organisation.ResultsDespite reporting considerable physical and psychological impacts from cancer and cancer treatment, participants did not recognise a need for specialist palliative care support. Understanding of the role of specialist palliative care was largely limited to end of life care. There was perceived conflict between considering a phase I trial and receiving specialist palliative care. Participants felt specialist palliative care should be introduced earlier and educational resources developed to increase patient acceptability of palliative care services.Significance of resultsPatients with advanced cancer referred for phase I trials are likely to benefit from specialist palliative care. However, this study suggests patients may not recognise a need for support nor accept this support due to misperceptions about the role of palliative care. Developing a specific educational resource about specialist palliative care for this population would help overcome barriers to engaging with a simultaneous care model.

Hospital-Based Palliative Care

2019 ◽  
pp. 13-31
Author(s):  
Patricia Maani-Fogelman
Keyword(s):  
Palliative Care ◽  
Interpersonal Communication ◽  
Communication Skills ◽  
Complex Needs ◽  
Care Services ◽  
Medical Clinics ◽  
Palliative Care Services ◽  
Role Of Nursing ◽  
Consultation Time

Hospital-based palliative care (HBPC) is often the primary contact between patients and the field of palliative care. As such, HBPC programs must be built to withstand the challenges and demands of the changing healthcare landscape and the shifting, often complex needs of the inpatient consultation. Time, energy, strong interpersonal communication skills, and dedication are key elements to building a successful HBPC program. Attention to detail and attentiveness to patient wishes round out the foundation of the continuum. HBPC is a forum for expansion of palliative care services into the medical clinics, outreach facilities, community-based practices, and home care venues. The role of nursing across this spectrum of care amid advancing chronic illness is a vital aspect of programmatic success. Ongoing education and research must be offered and resourced for HBPC and palliative care in general to remain steadfast and successful against the background of national healthcare reform.

scholarly journals Specialist palliative care services for older people in primary care: A systematic review using narrative synthesis

2019 ◽  
Vol 34 (1) ◽  
pp. 32-48 ◽  
Author(s):  
Kim de Nooijer ◽  
Yolanda WH Penders ◽  
Lara Pivodic ◽  
Nele J Van Den Noortgate ◽  
Peter Pype ◽  
...  
Keyword(s):  
Systematic Review ◽  
Primary Care ◽  
Palliative Care ◽  
Older People ◽  
Narrative Synthesis ◽  
Specialist Palliative Care ◽  
Family Carers ◽  
Care Services ◽  
Specialist Services ◽  
Palliative Care Services

Background: There is recognition that older people with incurable conditions should have access to specialist palliative care services. However, it remains unclear which activities and outcomes these services entail for older people in primary care and to which patients they are provided. Aim: The aim of this review was to identify the criteria for referral to specialist services; who provides specialist palliative care; through which activities and with which frequency; which outcomes are reported; and which suggestions are made to improve services. Design: Systematic review of the literature and narrative synthesis. Quality appraisal and selection of studies were performed independently by two researchers. Participant characteristics, intervention features, outcome data and suggestions for improvement were retrieved. Data sources: Embase, Medline, Web of Science, Cochrane, Google Scholar, PsycINFO and CINAHL EBSCO databases (until June 2019). Results: Ten eligible articles, three qualitative, three quantitative, three mixed-method and one narrative review, were identified. Referral criteria were mainly based on patient characteristics such as diagnosis. The specialist services involved a variety of activities and outcomes and descriptions were often lacking. Services could be improved regarding the information flow between healthcare professionals, greater in-depth palliative care knowledge for case managers and social workers, identification of a key worker and support for family carers. Conclusion: The limited evidence available shows areas for improvement of the quality of and access to specialist services for older people, such as support for family carers. In addition, this review underscores the need for comprehensive reporting of interventions and the use of consensus-based outcome measures.

Mind the gap: do tertiary cancer centres need 24 hour access to specialist palliative care services?

2012 ◽  
Vol 2 (Suppl 1) ◽  
pp. A78.1-A78
Author(s):  
Owen Pooley ◽  
Alison Coackley ◽  
Agnes Noble ◽  
Ann Griffiths ◽  
Donna Arundell
Keyword(s):  
Palliative Care ◽  
Specialist Palliative Care ◽  
Care Services ◽  
Palliative Care Services
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