scholarly journals Palliative care training in undergraduate medical, nursing and allied health: a survey

2019 ◽  
pp. bmjspcare-2019-002025 ◽  
Author(s):  
Nicola White ◽  
Linda JM Oostendorp ◽  
Ollie Minton ◽  
Sarah Yardley ◽  
Patrick Stone
Keyword(s):  
Palliative Care ◽  
End Of Life Care ◽  
Allied Health ◽  
Healthcare Professionals ◽  
Care Provision ◽  
Life Care ◽  
Undergraduate Level ◽  
Impending Death ◽  
Care Training ◽  
Allied Health Professional

ObjectivesImpending death is poorly recognised. Many undergraduate healthcare professionals will not have experience of meeting or caring for someone who is dying. As death can occur in any setting, at any time, it is vital that all healthcare students, regardless of the setting they go on to work in, have end-of-life care (EOLC) training. The aim was to determine current palliative care training at the undergraduate level, in multiple professions, in recognising and communicating dying.MethodsCurrent UK undergraduate courses in medicine, adult nursing, occupational therapy, social work and physiotherapy were included. All courses received an email asking what training is currently offered in the recognition and communication of dying, and what time was dedicated to this.ResultsA total of 73/198 (37%) courses responded to the request for information. 18/20 medical courses provided training in recognising when patients were dying (median 2 hours), and 17/20 provided training in the communication of dying (median 3 hours). 80% (43/54) of nursing and allied health professional courses provided some training in EOLC. Many of the course organisers expressed frustration at the lack of resources, funding and time to include more training. Those courses with more palliative care provision often had a ‘champion’ to advocate for it.ConclusionsTraining in EOLC was inconsistent across courses and professions. Further research is needed to understand how to remove the barriers identified and to improve the consistency of current training.

scholarly journals ‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting

2020 ◽  
pp. 026921632095110
Author(s):  
Yakubu Salifu ◽  
Kathryn Almack ◽  
Glenys Caswell
Keyword(s):  
Prostate Cancer ◽  
Palliative Care ◽  
Family Caregivers ◽  
End Of Life Care ◽  
Advanced Prostate Cancer ◽  
Healthcare Professionals ◽  
Life Care ◽  
Home Based ◽  
Resource Poor ◽  
At Home

Background: Family caregiving is common globally, but when a family member needs palliative and end-of-life care, this requires knowledge and expertise in dealing with symptoms, medication, and treatment side effects. Caring for a family member with advanced prostate cancer in the home presents practical and emotional challenges, especially in resource-poor contexts, where there are increasing palliative cases without adequate palliative care institutions. Aim: The study explored palliative and end-of-life care experiences of family caregivers and patients living at home in a resource-poor context in Ghana. Design: This is a qualitative study using thematic analysis of face-to-face interviews at two-time points. Participants: Men living with advanced prostate cancer ( n = 23), family caregivers ( n = 23), healthcare professionals ( n = 12). Findings: Men with advanced prostate cancer face complex issues, including lack of access to professional care and a lack of resources for homecare. Family caregivers do not have easy access to professional support; they often have limited knowledge of disease progression. Patients have inadequate access to medication and other practical resources for homecare. Caregivers may be overburdened and perform the role of the patient’s ‘doctor’ at home-assessing patient’s symptoms, administering drugs, and providing hands-on care. Conclusion: Home-based care is promoted as an ideal and cost-effective model of care, particularly in Westernised palliative care models. However, in resource-poor contexts, there are significant challenges associated with the implementation of this model. This study revealed the scale of challenges family caregivers, who lack basic training on aspects of caring, face in providing home care unsupported by healthcare professionals.

scholarly journals Assessment of unmet needs and barriers to end-of-life care provision in Kazakhstan

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
L Toleubekova ◽  
B Crape ◽  
K Dauyey ◽  
D Argandykov ◽  
A Bekenova ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Public Awareness ◽  
Computer Assisted ◽  
Care Provision ◽  
Life Care ◽  
Research Project ◽  
Software Analysis

Abstract Introduction Palliative care, a holistic multidisciplinary approach for those persons with terminal diseases, providing relief for physical, emotional, psychosocial and spiritual suffering of both the patients and their families and to support the dignity of all involved in the process of dying. The purpose of this qualitative research project is to identify the barriers for end-of-life care provision in Kazakhstan and to provide recommendations on how to integrate and assure high quality palliative care for patients within the cultural context of Kazakhstan. Methods Our proposed research project employed qualitative research methods, including semi-structured in-depth interviews using grounded theory. We conducted purposive recruiting with content analysis and semi-structured interviews until saturation was achieved. The interviews have been conducted at the University Medical Center (UMC) teaching hospitals, including National Research Center for Maternal and Child Health and the National Children’s Rehabilitation Center. The total number of participants were 65 individuals, of whom 26 were medical doctors, 20 nurses, 7 speech therapists, 6 psychologists, 4 educators and 2 social workers. All participants had experience working with terminally ill patients, family members, and caregivers. The data was then translated into English. Analysis of the interview data have been performed by using the computer assisted software analysis package - NVivo. Institutional review board (IRB) approval of the Nazarbayev University has been received, assuring informed consent and confidentiality safeguards in the research. Results The study findings indicate the evidence of growing demand in training of healthcare professionals, inadequate provision of pain relief and lack of public awareness about palliation as primary obstacles for palliative care development in Kazakhstan. Key messages The findings of the study are very important to help stakeholders to focus on the development of training opportunities for palliative care specialists. The results of the study help to develop milestones and concrete strategy for integration of palliative care services into the national healthcare system of Kazakhstan.

Pain therapy, pediatric palliative care and end-of-life care: training, experience, and reactions of pediatric residents in Italy

2014 ◽  
Vol 173 (9) ◽  
pp. 1201-1207 ◽  
Author(s):  
Francesca Rusalen ◽  
Anna Ferrante ◽  
Chiara Pò ◽  
Michele Salata ◽  
Caterina Agosto ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Pain Therapy ◽  
Pediatric Palliative Care ◽  
Life Care ◽  
Training Experience ◽  
Pediatric Residents ◽  
Care Training

scholarly journals Palliative Care With Dementia and Family Caregiver Involvement (A Collaborative Symposium between the Hospice, Palliative, and End-of-Life Care and Nursing Care of Older Adults Interest Groups)

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 786-786
Author(s):  
Jenny van der Steen ◽  
Christopher Johnson ◽  
Sheryl Zimmerman
Keyword(s):  
Palliative Care ◽  
Interest Groups ◽  
End Of Life ◽  
Family Caregivers ◽  
Advance Care Planning ◽  
End Of Life Care ◽  
Healthcare Professionals ◽  
Care Planning ◽  
Life Care ◽  
Advance Care

Abstract This collaborative symposium offered by the Hospice, Palliative, and End-of-Life Care and Nursing Care of Older Adults Interest Groups addresses palliative care including advance care planning considerations for family caregivers and persons with dementia. Family caregivers may need information about palliative and end-of-life care that is specific to the person, the situation or the stage of dementia. This symposium shows information needs also differ by country and setting. Conversations about symptoms, and about current and end-of-life treatment preferences need support from healthcare professionals. The symposium shows results of a study on video recordings with end-of-life preferences and how, as a stand-alone, they may not inform palliative care practice, and integration of information sources for advance care planning is needed. We will also show that a question prompt list with examples of questions to encourage family caregivers to ask healthcare professionals can and should have different contents for different countries as the content reflects socio-cultural differences. In more studies, participants clearly neede information on the disease trajectory and available services. Such needs go beyond need for information on pain and other symptoms, as family caregivers often appreciate opportunities for social activities for persons with dementia. A decision aid study shows that persons with dementia and family caregivers can participate in advance care planning conversations when supported by the right tools. We argue that local client participation is important when developing tools. Overall, the symposium highlights the need for tailored tools to support face-to-face conversations with all stakeholders to encourage person-centred caregiving.

scholarly journals Patients with non-oncological chronic conditions: Improving end-of-life care through integrated care and early palliative care provision

2019 ◽  
Vol 19 (4) ◽  
pp. 512
Author(s):  
Ascensión Doñate-Martínez ◽  
Jorge Garcés ◽  
Soledad Giménez ◽  
Bernardo Valdivieso ◽  
Elisa Soriano ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Integrated Care ◽  
End Of Life Care ◽  
Chronic Conditions ◽  
Care Provision ◽  
Life Care ◽  
Early Palliative Care

scholarly journals Opinion and Special Article: Next Steps in Palliative Care Education for Neurology Residents

Neurology ◽  
2021 ◽  
pp. 10.1212/WNL.0000000000012911
Author(s):  
Tara Cook ◽  
Robert Arnold ◽  
Kwonho Jeong ◽  
Julie Childers
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
End Of Life Decisions ◽  
Neurologic Diseases ◽  
Residency Programs ◽  
Palliative Care Education ◽  
Care Training

Many neurologic diseases are life limiting and markedly impair patients' quality of life. Growing recommendations in the field recommend that neurologists have primary skills in palliative medicine that will allow them to manage symptoms and discuss end of life decisions with patients and families. Previous work has shown that formal palliative care training in neurology residencies is very limited. In this paper we briefly describe a national survey of neurology residents where we assess both the quantity and quality of the teaching they receive in end-of-life care as compared to a common and an uncommon neurologic condition. Based on the gaps we identified, as well as previous studies and recommendations in neuropalliative care, we provide nine recommendations to help neurology residency programs improve their teaching of primary neuropalliative care skills.

Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers

2020 ◽  
pp. 026921632095434
Author(s):  
Maarten Vermorgen ◽  
Isabel Vandenbogaerde ◽  
Chantal Van Audenhove ◽  
Peter Hudson ◽  
Luc Deliens ◽  
...  
Keyword(s):  
Palliative Care ◽  
Chronic Illness ◽  
End Of Life ◽  
End Of Life Care ◽  
Interpretative Phenomenological Analysis ◽  
Healthcare Professionals ◽  
Phenomenological Analysis ◽  
Life Care ◽  
Family Carers ◽  
Missed Opportunities

Background: The attention of healthcare professionals is directed mainly towards the recipients of care and often insufficiently towards family carers. However, an effective collaboration between professionals and family carers is vital to provide quality palliative and end-of-life care. Such collaboration is under-studied in a palliative care context. Aim: This study aimed to investigate how family carers of people who live at home with a life-limiting chronic illness experience and perceive collaboration with different healthcare professionals in the last phase of life. Design: Face-to-face semi-structured interviews were conducted with the primary family carers of people with a life-limiting chronic illness. Interpretative phenomenological analysis was used to analyse the data. Setting/participants: A heterogeneous sample of 30 family carers of people with cancer, heart failure or dementia was recruited through a variety of care providers and services, in order to reflect the heterogeneity of caregiving in serious illness. Results: Five main themes emerged from interpretative phenomenological analysis that describe the quality of the collaboration between family carers and professionals: respecting family carers both as someone with care needs and as a member of the care team; the continuous availability and accessibility of healthcare professionals; the provision of information and communication including family carer issues; the coordination of care between all parties and contextual factors. The dominant experience by family carers was one of missed opportunities across these themes. Conclusions: This qualitative study about the experiences and perceptions of family carers of people with a chronic life-limiting illness living at home regarding the collaboration with different healthcare providers in the last phase life, showed that family carers experience a lot of possibilities, but perceive missed opportunities as well, for healthcare professionals to effectively collaborate with them for palliative care.

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