scholarly journals 82 Anticipatory prescribing in community end of life care in the UK: a mixed-methods study of healthcare professionals’ views concerning best practice and areas in need of improvement

Author(s):  
Richella Ryan ◽  
Anna Spathis ◽  
Ben Bowers ◽  
Mila Petrova ◽  
Sarah Hopkins ◽  
...  
2018 ◽  
Vol 188 (2) ◽  
pp. 633-639 ◽  
Author(s):  
Hannah Linane ◽  
Fergal Connolly ◽  
Lyle McVicker ◽  
Sharon Beatty ◽  
Orla Mongan ◽  
...  

2017 ◽  
Vol 9 (1) ◽  
pp. e9-e9
Author(s):  
Andy Hiscock ◽  
Stephen Barclay

ObjectiveLife-limiting neuromuscular disease, such as some of the muscular dystrophies, are often diagnosed in early childhood: when death comes, commonly in the second or third decade of life, patients rarely have advance care plans in place or documented end-of-life care preferences. There is very limited literature concerning the discussions about end-of-life plans healthcare professionals have with young people affected by life-limiting neuromuscular diseases. The aim of this study was to investigate the views and experiences of healthcare professionals concerning having discussions about advance care plans and end-of-life care with teenagers and young adult patients affected by life-limiting neuromuscular diseases.MethodsSemistructured interviews with a maximum variety sample of nine professionals involved in the care of young people with life-limiting neuromuscular diseases in one region of the UK.ResultsWhile recognising the inevitable progression of the conditions, there was no consensus among interviewees concerning best approaches to discuss end-of-life care plans. Several environmental and personal barriers were identified that lead to avoidance of the emotionally challenging and difficult conversations.ConclusionsCommunity-based professionals with well-established relationships with patients and families may be best placed to take the lead and coordinate discussions, but individual case-by-case preferences need to be carefully considered.


2014 ◽  
Vol 29 (3) ◽  
pp. 249-259 ◽  
Author(s):  
Eileen Cowey ◽  
Lorraine N Smith ◽  
David J Stott ◽  
Christine H McAlpine ◽  
Gillian E Mead ◽  
...  

Author(s):  
Munikumar Ramasamy Venkatasalu ◽  
Sarah Chapman ◽  
Hannah Dunn ◽  
Rachel Broad ◽  
Aruna Subramanim

Corpora ◽  
2017 ◽  
Vol 12 (1) ◽  
pp. 55-84 ◽  
Author(s):  
Amanda Potts ◽  
Elena Semino

The use of violence metaphors in healthcare has long been criticised as detrimental to patients. Recent work ( Demmen et al., 2015 ; and Semino et al., 2015 ) has combined qualitative analysis with corpus-based quantitative methods to analyse the frequency and variety of violence metaphors in the language of UK-based patients, family carers and healthcare professionals talking about cancer and/or end-of-life care. A new 250,324-word corpus of US health professionals' online discourse has been collected to add a contrastive, cross-cultural element to the study of metaphors in end-of-life care. In this work, we move towards a replicable method for comparing frequency and type of violence metaphors in UK and US contexts by making use of both search-and-recall and key semantic tag analysis using the corpus query tool Wmatrix. First, we discuss the most over-used and under-used semantic domains in the US corpus as compared with the pre-existing UK corpus of online healthcare professional discourse. Second, we show that there are no notable frequency differences in the occurrence of violence metaphors in the two corpora, but we point out some differences in the topics that these metaphors are used to discuss. Third, we introduce a novel framework for analysing agency in violence metaphors and apply it to the US corpus. This reveals the variety of relationships, concerns and challenges that these metaphors can express. Throughout, we relate our findings to the different US and UK cultural and institutional contexts, and we reflect on the methodological implications of our approach for corpus-based metaphor analysis.


2018 ◽  
Vol 21 (6) ◽  
pp. 780-788 ◽  
Author(s):  
Pasithorn A. Suwanabol ◽  
Ari C. Reichstein ◽  
Z. Tuba Suzer-Gurtekin ◽  
Jane Forman ◽  
Maria J. Silveira ◽  
...  

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Simon Schwill ◽  
Dorothee Reith ◽  
Tobias Walter ◽  
Peter Engeser ◽  
Michel Wensing ◽  
...  

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