A Socially Just Leadership Approach to Community-Partnered Research for Reducing Health Disparities

2017 ◽  
Vol 45 (6) ◽  
pp. 781-809 ◽  
Author(s):  
Carolyn M. Tucker ◽  
Jaime L. Williams ◽  
Julia Roncoroni ◽  
Martin Heesacker
Keyword(s):  
Health Disparities ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Research Approach ◽  
Community Based ◽  
Guiding Principles ◽  
University Partnership ◽  
Partnership Approach ◽  
Leadership Approaches ◽  
Counseling Psychologists

Significant health disparities continue to plague many groups of people who have been systematically oppressed and largely unrepresented in health research. Community-based participatory research (CBPR) is a collaborative research approach that has been shown to be effective in addressing health disparities; a community–university partnership approach can be used to conduct this research. Counseling psychologists are well suited to establish and lead CBPR partnerships, yet there is a paucity of research to guide them in utilizing effective leadership approaches when conducting CBPR for reducing health disparities. Therefore, the aims of the present study were to (a) review existing leadership models applicable to conducting CBPR; (b) identify guiding principles of socially just leadership that emerged from the aforementioned review; (c) offer an example of how the guiding principles were used in a community–university partnership, highlighting challenges, solutions, and lessons learned; and (d) discuss the benefits of socially just leadership for counseling psychologists.

scholarly journals Investigating Health Disparities through Community-Based Participatory Research: Lessons Learned from a Process Evaluation

2014 ◽  
Vol 29 (4) ◽  
pp. 318-334 ◽  
Author(s):  
Valerie Bryan ◽  
Willette Brye ◽  
Kenneth Hudson ◽  
Leevones Dubose ◽  
Shantisha Hansberry ◽  
...  
Keyword(s):  
Health Disparities ◽  
Process Evaluation ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Community Based

Innovating for Transformation in First Nations Health Using Community-Based Participatory Research

2018 ◽  
Vol 28 (7) ◽  
pp. 1036-1049 ◽  
Author(s):  
Grace Kyoon-Achan ◽  
Josée Lavoie ◽  
Kathi Avery Kinew ◽  
Wanda Phillips-Beck ◽  
Naser Ibrahim ◽  
...  
Keyword(s):  
First Nations ◽  
Participatory Research ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Study Data ◽  
Lessons Learned ◽  
Research Approach ◽  
Sustainable Change ◽  
Community Based ◽  
Participatory Research Approach

Community-based participatory research (CBPR) provides the opportunity to engage communities for sustainable change. We share a journey to transformation in our work with eight Manitoba First Nations seeking to improve the health of their communities and discuss lessons learned. The study used community-based participatory research approach for the conceptualization of the study, data collection, analysis, and knowledge translation. It was accomplished through a variety of methods, including qualitative interviews, administrative health data analyses, surveys, and case studies. Research relationships built on strong ethics and protocols to enhance mutual commitment to support community-driven transformation. Collaborative and respectful relationships are platforms for defining and strengthening community health care priorities. We further discuss how partnerships were forged to own and sustain innovations. This article contributes a blueprint for respectful CBPR. The outcome is a community-owned, widely recognized process that is sustainable while fulfilling researcher and funding obligations.

scholarly journals Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine

2020 ◽  
Author(s):  
Dana M Carroll ◽  
Carol Hernandez ◽  
Greg Braaten ◽  
Ellen Meier ◽  
Pamala Jacobson ◽  
...  
Keyword(s):  
Health Disparities ◽  
Personalized Medicine ◽  
American Indian ◽  
Alaska Native ◽  
Genetic Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Community Based ◽  
Academic Researchers ◽  
And Personalized Medicine

Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is critical to ensuring that personalized medicine discoveries do not widen AI/AN health disparities by only benefiting well-represented populations. One reason for the under-representation of AIs/ANs in research is warranted research distrust due to abuse of some AI/AN communities in research. An approach to easing the tension between protecting AI/AN communities and increasing the representation of AI/AN persons in genetic research is community-based participatory research. This approach was used in a collaboration between a tribe and academic researchers in efforts to increase AI/AN participation in genetic research. From the lessons learned, the authors propose recommendations to researchers that may aid in conducting collaborative and respectful research with AI/AN tribes/communities and ultimately assist in increasing representation of AIs/ANs in personalized medicine discoveries.

The Cultural and Methodological Factors Challenging the Success of the Community-Based Participatory Research Approach When Designing a Study on Adolescents Sexuality in Traditional Society

2021 ◽  
pp. 104973232098553
Author(s):  
Raifa Jabareen ◽  
Cheryl Zlotnick
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Adolescent Sexuality ◽  
Community Advisory Board ◽  
Research Approach ◽  
Traditional Society ◽  
Linguistic Minority ◽  
Community Based ◽  
Community Activists

Youth growing up in traditional cultures are split between the messages that they receive on sexuality from their families and those they receive via the internet depicting values of Western culture. The Palestinian-Israeli community, a national, ethnic, and linguistic minority, is an example of this situation. The purpose of this community-based participatory research study is to describe the challenges and lessons learned about launching a community advisory board (CAB) in studies on the taboo topic of adolescent sexuality. Using content analysis, we identified two necessary conditions to convene a CAB on adolescent sexuality in a traditional community: (a) an insider academic researcher, fluent in the native language, able to discuss the linguistic difficulties of sexual terminology and (c) the recruitment of motivated, community activists who were knowledgeable on the topic. The mostly traditional society of Palestinian-Israelis shuns discussions on sexuality; but with these two conditions, the study was a success.

scholarly journals Research From a Diné-Centered Perspective and the Development of a Community-Based Participatory Research Partnership

2021 ◽  
Vol 48 (3) ◽  
pp. 361-370
Author(s):  
Vincent Werito ◽  
Lorenda Belone
Keyword(s):  
Health Disparities ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Well Being ◽  
Research Approach ◽  
Research Partnership ◽  
Community Based ◽  
Community Engaged Research ◽  
Intervention Approach ◽  
Participatory Research Approach

Purpose. Indigenous ( Diné) communities have long endured high rates of behavioral and mental health diseases like depression, drug and alcohol dependency, and suicide due to historical trauma and posttraumatic stress disorders. Western research methods used to address these issues have often failed to provide sufficient understanding of the culturally nuanced dynamics underpinning these health disparities in Indigenous contexts. As a result, Indigenous health disparities have actually increased and complex culture-based relationships that influence health outcomes are underconceptualized. Aim. For the first time a community-based participatory research approach from a Diné perspective is introduced to three Navajo communities in New Mexico to collaboratively explore their perspectives about community-engaged research and community well-being from a Diné lens. The overarching research question was: Can a community-based participatory research approach embedded within a Diné research paradigm be utilized to develop a culturally centered intervention approach? Methods. The study utilized a mixed method approach that included surveys and focus groups. Results. Six overarching themes emerged that underscored the important role of utilizing a community-based participatory Diné-centered approach to define community well-being and increase community agency to address their own health disparities. Conclusion. Indigenous-centered community-engaged research can potentially become an intervention approach for informing Indigenous communities’ understandings of well-being by drawing upon local cultural Indigenous knowledge. This study demonstrated that developing an effective community-engaged research partnership to address health disparities in a Diné context must be informed by a Diné paradigm grounded in local community cultural knowledge.

scholarly journals Case Study in Chamorro Community and Academic Engagement for a Community-Partnered Research Approach

2010 ◽  
Vol 8 (SI) ◽  
pp. 39-51 ◽  
Author(s):  
Diana M. Tisnado ◽  
Lola Sablan-Santos ◽  
Linda Guevara ◽  
Lourdes Quitugua ◽  
Keith Castro ◽  
...  
Keyword(s):  
Research University ◽  
Local Community ◽  
Academic Research ◽  
Community Based Participatory Research ◽  
Research Process ◽  
Lessons Learned ◽  
Relationship Building ◽  
Research Approach ◽  
Community Based ◽  
High Quality Research

Objective: We describe the development of a community and academic research partnership, share reflections on processes for collaborations, and identify key factors for establishing strong and effective relationships to foster high-quality research. Background: A community-based participatory research (CBPR) effort evaluating a community-based patient navigation program assisting Chamorro women to access breast cancer services in Southern California served as the foundation for the development of the community-academic partnership. Methods: Using a CBPR approach focusing on active involvement of community members, organizational representatives, and academic researchers in all aspects of research process, faculty from a research university and a local community-based organization were brought together to build a partnership. Community and academic partners engaged in a series of meetings where dialogue focused on developing and nurturing trust and shared values, respect for community knowledge, and establishing community-defined and prioritized needs and goals. Partners have also focused on defining and developing explicit structures and policies to implement an equal partnership. Results: Experiences and lessons learned are shared, reflecting the processes of relationship building, and planning and implementing preliminary research steps. Lessons Learned: Adequate time for relationship-building, open and honest communication, flexibility, and ongoing examination of assumptions are keys to developing successful CBPR partnerships.

Enhancing racial equity in LIS research by increasing representation of BIPOC

2021 ◽  
Vol 37 (2) ◽  
pp. 247-256
Author(s):  
Charles R. Senteio ◽  
Kaitlin E. Montague ◽  
Bettina Campbell ◽  
Terrance R. Campbell ◽  
Samantha Seigerman
Keyword(s):  
Social Justice ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Health Inequity ◽  
Lessons Learned ◽  
Social Injustice ◽  
Racial Equity ◽  
Community Based ◽  
Community Partners ◽  
Racial Injustice

The escalation of discourse on racial injustice prompts novel ideas to address the persistent lack of racial equity in LIS research. The underrepresentation of BIPOC perspectives contributes to the inequity. Applying the Community Based Participatory Research (CBPR) approach meaningfully engages BIPOC to help guide LIS investigations that identify evolving needs and concerns, such as how systematic racism may contribute to social justice issues like environmental and health inequity. Engaging with BIPOC, using the CBPR approach, can help address racial equity in LIS because it will result in increased racial representation which enables incorporation of the perspectives and priorities of BIPOC. This shift to greater engagement is imperative to respond to escalating attention to social injustice and ensure that these central issues are adequately reflected in LIS research. The discipline is positioned to help detail the drivers and implications of inequity and develop ways to address them. We underscore the importance of working across research disciplines by describing our CBPR experience engaging with BIPOC in LIS research. We highlight the perspectives of community partners who have over two decades of experience with community-based LIS research. We offer lessons learned to LIS researchers by describing the factors that make these initiatives successful and those which contribute to setbacks.

A Community-Engaged Project Discovering the Sexuality Questions of Adults With Intellectual and Developmental Disabilities

Inclusion ◽  
2021 ◽  
Vol 9 (1) ◽  
pp. 2-16
Author(s):  
Rebecca R. Kammes ◽  
Rhonda S. Black ◽  
Trisha Easley
Keyword(s):  
Developmental Disabilities ◽  
Sexuality Education ◽  
Developmentally Appropriate ◽  
Community Based Participatory Research ◽  
Research Approach ◽  
Intellectual And Developmental Disabilities ◽  
Community Based ◽  
Sexual Health Information ◽  
Education Group ◽  
Participatory Research Approach

Abstract This study used a community-based participatory research approach to examine what adults with intellectual and developmental disabilities (IDD) view as important topics in sexuality education. A thematic analysis was conducted on questions written by adults with IDD regarding sexuality after attending a sexuality education group. Results were checked for accuracy using a community focus group. Findings provide direct implications for community-based sexuality education programs for adults with IDD, demonstrating the need for mentoring regarding authentic relationship experiences as well as developmentally appropriate sexual health information. Programs need to focus on helping adults with IDD navigate these interpersonal experiences. This study also demonstrates the importance of including the voices of adults with IDD in research in order to ensure its applicability and acceptability.

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