Estimation of a Preference-Based Summary Score for the Patient-Reported Outcomes Measurement Information System: The PROMIS®-Preference (PROPr) Scoring System

Background. Health-related quality of life (HRQL) preference-based scores are used to assess the health of populations and patients and for cost-effectiveness analyses. The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS®) consists of patient-reported outcome measures developed using item response theory. PROMIS is in need of a direct preference-based scoring system for assigning values to health states. Objective. To produce societal preference-based scores for 7 PROMIS domains: Cognitive Function–Abilities, Depression, Fatigue, Pain Interference, Physical Function, Sleep Disturbance, and Ability to Participate in Social Roles and Activities. Setting. Online survey of a US nationally representative sample ( n = 983). Methods. Preferences for PROMIS health states were elicited with the standard gamble to obtain both single-attribute scoring functions for each of the 7 PROMIS domains and a multiplicative multiattribute utility (scoring) function. Results. The 7 single-attribute scoring functions were fit using isotonic regression with linear interpolation. The multiplicative multiattribute summary function estimates utilities for PROMIS multiattribute health states on a scale where 0 is the utility of being dead and 1 the utility of “full health.” The lowest possible score is –0.022 (for a state viewed as worse than dead), and the highest possible score is 1. Limitations. The online survey systematically excludes some subgroups, such as the visually impaired and illiterate. Conclusions. A generic societal preference-based scoring system is now available for all studies using these 7 PROMIS health domains.

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Development of the Patient-Reported Outcomes Measurement Information System (PROMIS) psychosocial illness impact item banks

PsycEXTRA Dataset ◽

10.1037/e548132012-064 ◽

2010 ◽

Author(s):

Sofia Garcia ◽

Jin-Shei Lai ◽

John Salsman ◽

David Cella

Keyword(s):

Information System ◽

Patient Reported Outcomes ◽

Measurement Information ◽

Outcomes Measurement ◽

Item Banks ◽

Patient Reported ◽

Measurement Information System

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Patient-Reported Outcomes Measurement Information System Anxiety and Depression Item Banks--Emotional Distress Domain; Brazilian Portuguese Version

PsycTESTS Dataset ◽

10.1037/t76975-000 ◽

2020 ◽

Author(s):

Natália Fontes Caputo de Castro ◽

Rogério de Melo Costa Pinto ◽

Tânia Maria da Silva Mendonça ◽

Carlos Henrique Martins da Silva

Keyword(s):

Information System ◽

Emotional Distress ◽

Patient Reported Outcomes ◽

Brazilian Portuguese ◽

Anxiety And Depression ◽

Measurement Information ◽

Outcomes Measurement ◽

Item Banks ◽

Patient Reported ◽

Measurement Information System

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The Patient-Reported Outcomes Measurement Information System in spine surgery: a systematic review

Journal of Neurosurgery Spine ◽

10.3171/2018.8.spine18608 ◽

2019 ◽

Vol 30 (3) ◽

pp. 405-413 ◽

Cited By ~ 11

Author(s):

Brittany E. Haws ◽

Benjamin Khechen ◽

Mundeep S. Bawa ◽

Dil V. Patel ◽

Harmeet S. Bawa ◽

...

Keyword(s):

Systematic Review ◽

Information System ◽

Patient Reported Outcomes ◽

Neck Disability Index ◽

Measurement Information ◽

Strong Correlations ◽

Comprehensive Overview ◽

Outcomes Measurement ◽

Patient Reported ◽

Measurement Information System

OBJECTIVEThe Patient-Reported Outcomes Measurement Information System (PROMIS) was developed to provide a standardized measure of clinical outcomes that is valid and reliable across a variety of patient populations. PROMIS has exhibited strong correlations with many legacy patient-reported outcome (PRO) measures. However, it is unclear to what extent PROMIS has been used within the spine literature. In this context, the purpose of this systematic review was to provide a comprehensive overview of the PROMIS literature for spine-specific populations that can be used to inform clinicians and guide future work. Specifically, the authors aimed to 1) evaluate publication trends of PROMIS in the spine literature, 2) assess how studies have used PROMIS, and 3) determine the correlations of PROMIS domains with legacy PROs as reported for spine populations.METHODSStudies reporting PROMIS scores among spine populations were identified from PubMed/MEDLINE and a review of reference lists from obtained studies. Articles were excluded if they did not report original results, or if the study population was not evaluated or treated for spine-related complaints. Characteristics of each study and journal in which it was published were recorded. Correlation of PROMIS to legacy PROs was reported with 0.1 ≤ |r| < 0.3, 0.3 ≤ |r| < 0.5, and |r| ≥ 0.5 indicating weak, moderate, and strong correlations, respectively.RESULTSTwenty-one articles were included in this analysis. Twelve studies assessed the validity of PROMIS whereas 9 used PROMIS as an outcome measure. The first study discussing PROMIS in patients with spine disorders was published in 2012, whereas the majority were published in 2017. The most common PROMIS domain used was Pain Interference. Assessments of PROMIS validity were most frequently performed with the Neck Disability Index. PROMIS domains demonstrated moderate to strong correlations with the legacy PROs that were evaluated. Studies assessing the validity of PROMIS exhibited substantial variability in PROMIS domains and legacy PROs used for comparisons.CONCLUSIONSThere has been a recent increase in the use of PROMIS within the spine literature. However, only a minority of studies have incorporated PROMIS for its intended use as an outcomes measure. Overall, PROMIS has exhibited moderate to strong correlations with a majority of legacy PROs used in the spine literature. These results suggest that PROMIS can be effective in the assessment and tracking of PROs among spine populations.

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