Decision-Making for Gastrostomy and Ventilatory Support for People with Motor Neurone Disease: Variations across Uk Hospices

2011 ◽  
Vol 27 (3) ◽  
pp. 198-201 ◽  
Author(s):  
David Oliver ◽  
Colin Campbell ◽  
Nigel Sykes ◽  
Carole Tallon ◽  
Annette Edwards
Keyword(s):  
Decision Making ◽  
Ventilatory Support ◽  
Motor Neurone ◽  
Motor Neurone Disease

Factors influencing decision-making in relation to timing of gastrostomy insertion in patients with motor neurone disease

2013 ◽  
Vol 4 (1) ◽  
pp. 57-63 ◽  
Author(s):  
Theocharis Stavroulakis ◽  
Wendy O Baird ◽  
Susan K Baxter ◽  
Theresa Walsh ◽  
Pamela J Shaw ◽  
...  
Keyword(s):  
Decision Making ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Factors Influencing

A review of dysphagia in four cases of motor neurone disease

1993 ◽  
Vol 7 (4_suppl) ◽  
pp. 41-47 ◽  
Author(s):  
Amanda Scott ◽  
Anita Heughan
Keyword(s):  
Decision Making ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Decision Making Process ◽  
Case Histories

Dysphagia is a common and distressing problem in motor neurone disease. This paper examines some of the strategies available for managing patients with dysphagia, and illustrates these with four contrasting case histories. The factors which influence the decision making process in patients with dysphagia are also discussed.

scholarly journals Choosing the place of death: Empowering motor neurone disease/amyotrophic lateral sclerosis patients in end-of-life care decision making

2015 ◽  
Vol 29 (7) ◽  
pp. 667-668 ◽  
Author(s):  
Suresh Kumar Chhetri ◽  
Belinda Fay Bradley ◽  
Pauline Callagher ◽  
Robert Addison-Jones ◽  
Wendy Bennett ◽  
...  
Keyword(s):  
Decision Making ◽  
Amyotrophic Lateral Sclerosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Place Of Death ◽  
Life Care ◽  
Care Decision ◽  
Lateral Sclerosis

Tracheostomy in motor neurone disease

2019 ◽  
Vol 19 (6) ◽  
pp. 467-475 ◽  
Author(s):  
Martin R Turner ◽  
Christina Faull ◽  
Christopher J McDermott ◽  
Annabel H Nickol ◽  
Jonathan Palmer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Amyotrophic Lateral Sclerosis ◽  
Ventilatory Support ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Complex Issue ◽  
Current Prevalence ◽  
Withdrawal Of Therapy ◽  
Lateral Sclerosis

Tracheostomy-associated ventilation for the respiratory insufficiency caused by amyotrophic lateral sclerosis (motor neurone disease (MND)) is a complex issue with practical, ethical and economic dimensions. This article considers the current prevalence of tracheostomy in MND, the evidence for its benefit both for survival and quality of life, and the practicalities of its implementation. The decision to request invasive ventilatory support is among the most challenging for those living with MND. Neurologists should be prepared to discuss this option openly and objectively: we suggest a framework for discussion, including withdrawal of therapy.

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