scholarly journals Exploring prevention and management of secondary health conditions in people with spinal cord injury in South Africa

Author(s):  
Sonti Pilusa ◽  
Hellen Myezwa ◽  
Joanne Potterton

Background/Aims Preventative care for people with spinal cord injury is neglected, even though secondary health conditions are prevalent among this group. There is limited information on preventative care for secondary health conditions among people with spinal cord injury. This study aimed to explore how people with spinal cord injury prevent and manage secondary health conditions. Methods A total of 17 individuals with spinal cord injury attending an outpatients clinic at a public rehabilitation hospital were interviewed face to face. All the interviews were transcribed verbatim and analysed using thematic content analysis. Results The participants used different strategies to prevent and manage secondary health conditions, such as medication, assistive devices, self-management, resilience coping strategies and therapeutic approaches. The participants found prevention of secondary health conditions ‘challenging’ and some of the strategies were ineffective. Conclusions Although many strategies are used by people with spinal cord injury to prevent and manage secondary health conditions, the experience is difficult. To minimise the occurrence and the consequence of secondary health conditions among people with spinal cord injury, health professionals must promote and support preventative care for secondary health conditions.

2016 ◽  
Vol 48 (2) ◽  
pp. 197-209 ◽  
Author(s):  
M Brinkhof ◽  
A Al-Khodairy ◽  
I Eriks-Hoogland ◽  
C Fekete ◽  
T Hinrichs ◽  
...  

Spinal Cord ◽  
2009 ◽  
Vol 48 (4) ◽  
pp. 330-335 ◽  
Author(s):  
S L Hitzig ◽  
K A Campbell ◽  
C F McGillivray ◽  
K A Boschen ◽  
B C Craven

2019 ◽  
Vol 26 (6) ◽  
pp. 365-375 ◽  
Author(s):  
Jeanette Tamplin ◽  
Ben Loveridge ◽  
Ken Clarke ◽  
Yunhan Li ◽  
David J Berlowitz

People with quadriplegia have a high risk for respiratory illness, social isolation and depression. Previous research has demonstrated that therapeutic singing interventions can not only improve breathing function and speech loudness, but also improve mood and social connectedness for people with quadriplegia. Face-to-face group attendance is difficult for this population due to difficulties with distance and travel. Online environments offer an accessible and cost-effective solution for people to connect with others without leaving their home. In a two-phase iterative design, we explored and tested different approaches for delivering online music therapy sessions with 12 patients from an inpatient spinal cord injury rehabilitation service. Six participants in Phase 1 trialled different virtual reality headsets and completed a short interview about their experience of the equipment and online singing trials. Outcomes from Phase 1 testing led to the development of a custom-built virtual reality application for online group music therapy sessions with low-latency audio. We tested the acceptability and feasibility of this platform in comparison to face-to-face and teleconference options for music therapy with six different patients. These participants completed three validated questionnaires: System Usability Scale, Quebec User Evaluation of Satisfaction with assistive Technology, and Psychosocial Impact of Assistive Devices Scale, and an interview about their experience. Questionnaire scores were good with mean ratings of 4.4 for Quebec User Evaluation of Satisfaction with assistive Technology, 53 for System Usability Scale and positive mean Psychosocial Impact of Assistive Devices Scale scores of 1.5 for competence, 2 for adaptability and 1.5 for self-esteem. Thematic analysis of post-session qualitative interviews revealed five themes: virtual reality was a positive experience, virtual reality was immersive and transportative, virtual reality reduced inhibitions about singing in front of others, virtual reality may reduce social cues, and the virtual reality equipment was comfortable, accessible and easy to use. Telehealth options, including a custom-designed virtual reality program, with low-latency audio are an acceptable and feasible mode of delivery for therapeutic singing interventions for people with spinal cord injury. Future non-inferiority research is needed to test online delivery modes for music therapy in comparison to face-to-face treatment.


2012 ◽  
Vol 35 (11) ◽  
pp. 894-906 ◽  
Author(s):  
Sara J. T. Guilcher ◽  
B. Cathy Craven ◽  
Louise Lemieux-Charles ◽  
Tiziana Casciaro ◽  
Mary Ann McColl ◽  
...  

2015 ◽  
Vol 30 (3) ◽  
pp. 645-658 ◽  
Author(s):  
Dominic Schomberg ◽  
Gurwattan Miranpuri ◽  
Tyler Duellman ◽  
Andrew Crowell ◽  
Raghu Vemuganti ◽  
...  

Clinics ◽  
2012 ◽  
Vol 67 (10) ◽  
pp. 1219-1224 ◽  
Author(s):  
AF Cristante ◽  
TE Barros ◽  
RM Marcon ◽  
OB Letaif ◽  
ID Rocha

2012 ◽  
Vol 35 (5) ◽  
pp. 330-342 ◽  
Author(s):  
Sara J. T. Guilcher ◽  
Tiziana Casciaro ◽  
Louise Lemieux-Charles ◽  
Catharine Craven ◽  
Mary Ann McColl ◽  
...  

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