scholarly journals Health-related Quality of Life Profile of Indonesian Children and Its Determinants: a Community-based Study

2021 ◽  
Author(s):  
Mei Neni Sitaresmi ◽  
Braghmandita Widya Indraswari ◽  
Nisrina Maulida Rozanti ◽  
Zena Sabilatuttaqiyya ◽  
Abdul Wahab
Keyword(s):  
Quality Of Life ◽  
Self Report ◽  
Health Related Quality ◽  
Community Based ◽  
Proxy Report ◽  
Proxy Reports ◽  
Self Reports ◽  
Related Quality ◽  
Health Related

Abstract Background: Assessing health-related quality of life (HRQOL) and its determinants in children may provide a comprehensive view of child health. The study aimed to assess the HRQOL in Indonesian children and its determinants.Methods: We conducted a community-based cross-sectional study in the Sleman District of Yogyakarta Special Province, Indonesia, from August to November 2019. We recruited children aged 2 to 18 years old using the Sleman Health and Demography Surveillance System sample frame. We used the validated Indonesian version of Pediatric Quality of life InventoryTM (Peds QLTM) 4.0 Generic core scale, proxy-reports, and self-reports, to assess the HRQOL. Results: We recruited 633 proxies and 531 children aged 2-18 years. The mean total score of self-report and proxy-report were 89.9+ 8.5 and 93.3+6.4. There was a fair to moderate correlation between self-reports and proxy reports, with interclass correlation ranging from 0.34 to 0.47, all p<0.001. Half of the children (49.4% from proxy-report and 50.1% from self-report) reported having acute illness during the last month. Based on proxy-reports, multivariate regression analysis demonstrated lower HRQOL for children with acute health problems, younger age, history of low birth weight, abnormal delivery, lower fathers' educational level, and government-paid insurance for low-income families.Conclusion: In addition to sociodemographic determinants of a child's HRQOL, children’s health condition influences HRQOL in the general pediatric population. In low- and middle-income countries where acute infections and low birth weight are still prevalent, its prevention and appropriate interventions should improve child health.

Comparison of Patient and Proxy Reporting of Health-Related Quality of Life in Adolescent Athletes Who Suffer a Sports-Related Injury and Require Orthopedic Consultation

2013 ◽  
Vol 22 (4) ◽  
pp. 248-253 ◽  
Author(s):  
Alison R. Snyder Valier ◽  
Elizabeth M. Swank ◽  
Kenneth C. Lam ◽  
Matthew L. Hansen ◽  
Tamara C. Valovich McLeod
Keyword(s):  
Quality Of Life ◽  
Self Report ◽  
Health Related Quality ◽  
Adolescent Athletes ◽  
Proxy Report ◽  
Outcome Measurements ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Context:Accurate assessment of health-related quality of life (HRQoL) is important for quality patient care. Evaluation of HRQoL typically occurs with patient self-report, but some instruments, such as the Pediatric Quality of Life Inventory (PedsQL), allow for proxy reporting. Limited information exists comparing patient and proxy reports of HRQoL after sport-related injury in adolescent athletes.Objective:To compare patient ratings and parent-proxy ratings of HRQoL in adolescent athletes who suffer musculoskeletal injuries requiring orthopedic consultation. The authors hypothesized poor agreement between patient and parent-proxy ratings of HRQoL.Design:Cross-sectional study.Setting:Orthopedic practice.Patients:Thirteen adolescent patients with a sport-related musculoskeletal injury requiring orthopedic consultation and 1 of their parents participated.Interventions:During the initial visit to the physician’s office, each patient was asked to complete the PedsQL, and the patient’s parent was asked to complete the parent-proxy version of the PedsQL.Main Outcome Measurements:The PedsQL is a pediatric generic outcome measure that consists of a total score and 4 subscale scores: physical, emotional, social, and school functioning. Means and standard deviations were calculated for all scores, and comparisons between patient-self report and parent-proxy ratings of HRQoL were made for the PedsQL total score and subscale scores using Pearson product–moment correlations (r).Results:Pearson product–moment correlations showed little to fair insignificant relationships between patient self-report and parent-proxy report of the PedsQL for the total score (r = −.1) and all subscales (range r = .1 to .4).Conclusions:Our results suggest a lack of agreement between patient and parent-proxy ratings of HRQoL, with patients rating their HRQoL lower than their parent. Patient perception of HRQoL may be more accurate than proxy report, which supports the use of patient-rated HRQoL in patient evaluation. Assessments of HRQoL made by proxies, even those close to the patient, may not represent patient health status.

scholarly journals Psychometric validation of the French self and proxy versions of the PedsQL™ 4.0 generic health-related quality of life questionnaire for 8–12 year-old children

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Pascal Amedro ◽  
Helena Huguet ◽  
Valerie Macioce ◽  
Raphael Dorka ◽  
Annie Auer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Construct Validity ◽  
Psychometric Validation ◽  
Health Related Quality ◽  
Proxy Reports ◽  
Self Reports ◽  
Related Quality ◽  
Health Related

Abstract Background The Pediatric Quality of Life Inventory Version 4.0 (PedsQLTM4.0) is a generic health-related quality of life (HRQoL) questionnaire, widely used in pediatric clinical trials but not yet validated in France. We performed the psychometric validation of the self and proxy PedsQLTM4.0 generic questionnaires for French children aged 8–12 years old. Methods This bicentric cross-sectional study included 123 children and their parents with congenital heart disease (CHD) and 97 controls. The psychometric validation method was based on the consensus-based standards for the selection of health measurement instruments (COSMIN). The reliability was tested using the intraclass correlation coefficient (ICC). To evaluate the validity of this scale, content, face, criterion, and construct validity psychometric proprieties were tested. Acceptability was studied regarding questionnaires’ completion and the existence of a floor or a ceiling effect. Results Test–retest reliability intra-class correlation coefficients were mainly in good range (0.49–0.66). Face validity was very good among parents (0.85) and children (0.75). Content validity was good (0.70), despite misinterpretation of some items. In construct validity, each subscale had acceptable internal consistency reliability (Cronbach's α > 0.72 in self-reports, > 0.69 in proxy-reports). In the confirmatory factor analysis, the goodness-of-fit statistics rejected the original structure with 4 factors. The exploratory factor analysis revealed an alternative two-factor structure corresponding to physical and psychological dimensions. Convergent validity was supported by moderate (> 0.41) to high correlations (0.57) between PedsQL and Kidscreeen questionnaires for physical, emotion and school dimensions. The ability of the PedsQL to discriminate CHD severity was better with physical, social and total scores for both self-reports and proxy-reports. Conclusions The PedsQLTM4.0 generic self and proxy HRQoL questionnaires found good psychometric properties, with regard to acceptability, responsiveness, validity, and reliability. This instrument appeared to be easy to use and comprehend within the target population of children aged 8 to 12 years old and their parents. Trial registration: This study was approved by the South-Mediterranean-IV Ethics Committee and registered on ClinicalTrials.gov (NCT01202916), https://clinicaltrials.gov/ct2/show/NCT01202916.

scholarly journals Comparison of child and family reports of health-related quality of life in pediatric acute lymphoblastic leukemia patients after induction therapy

2020 ◽  
Author(s):  
Shohei Nakajima ◽  
Iori Sato ◽  
Takafumi Soejima ◽  
Katsuyoshi Koh ◽  
Motohiro Kato ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Acute Lymphoblastic Leukemia ◽  
Young Child ◽  
Lymphoblastic Leukemia ◽  
Health Related Quality ◽  
Proxy Reports ◽  
Self Reports ◽  
Related Quality ◽  
Health Related

Abstract Purposes: To determine the health-related quality of life (HRQOL) of children with acute lymphoblastic leukemia (ALL) during induction therapy, clarify the agreement between child self-reported and family proxy-reported HRQOL, and examine the related factors of HRQOL, especially child age, family attendance, and children’s social relationships outside of the family. Methods: We analyzed questionnaire data (2012–2017) from the Japanese Pediatric Leukemia/Lymphoma Study Group’s ALL-B12. Participants were children with B-cell Precursor ALL aged 5–18 and their families. Participants answered the Pediatric Quality of Life Inventory TM (PedsQL TM ) Generic Core Scales (PedsQL-G) and Cancer Module (PedsQL-C) to measure pediatric HRQOL. We calculated the differences between child self-reported and family proxy-reported subscale scores along with intraclass correlation coefficients (ICC). We conducted multiple regression analyses according to all participant pairs and age groups (young child, school age and adolescent), with ICCs for all PedsQL-G subscales (ICC-G) and all PedsQL-C subscales (ICC-C) as the outcome variables. Results: Five hundred twenty-two pairs of children and their families were analyzed. We observed a moderate level of agreement on most PedsQL subscales between the child self-reports and family proxy-reports; however, worry had the weakest agreement for all PedsQL subscales (ICC = .32). The agreement of ICC-C was positively related to family attendance for the young child group ( B = .185, p = .003). Conclusion: We observed some differences between child self-reports and family proxy-reports of HRQOL of children with ALL, suggesting that both parties should be administered HRQOL measurements during treatment.

scholarly journals Psychometric Validation Of The French Self And Proxy Versions Of The PedsqlTM 4.0 Generic Health-Related Quality Of Life Questionnaire For 8 To 12 Year-Old Children.

2020 ◽  
Author(s):  
Pascal Amedro ◽  
Helena Huguet ◽  
Valerie Macioce ◽  
Raphael Dorka ◽  
Annie Auer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Psychometric Validation ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Proxy Reports ◽  
Self Reports ◽  
Related Quality ◽  
Health Related

Abstract Background: The Pediatric Quality of Life Inventory Version 4.0 (PedsQLTM4.0) is a generic health-related quality of life (HR-QoL) questionnaire, widely used in pediatric clinical trials but not yet validated in France. We performed the psychometric validation of the self and proxy PedsQLTM4.0 generic questionnaires for French children aged 8 to 12 years old. Methods: The multicenter prospective study included 123 children and their parents with congenital heart disease (CHD) and 97 controls. Results: Test–retest reliability intra-class correlation coefficients were mainly in good range (0.49-0.66) for both self and proxy reports. Face validity was very good among parents (0.85) and children (0.75). Content validity was good (0.70), despite misinterpretation of some items. In construct validity, each subscale had good internal consistency reliability (Cronbach's α >0.72 in self-reports, >0.69 in proxy-reports). In the confirmatory factor analysis, the goodness-of-fit statistics rejected the original structure with 4 factors. The exploratory factor analysis revealed an alternative two-factor structure corresponding to physical and psychological dimensions. Convergent validity was supported by moderate (>0.41) to high correlations (0.57) between PedsQL and Kidscreeen questionnaires for physical, emotion and school dimensions. The ability of the PedsQL to discriminate CHD severity was better with physical, social and total scores for both self-reports and proxy-reports.Conclusions: The PedsQLTM4.0 generic self and proxy HR-QoL questionnaires found good psychometric properties, with regard to acceptability, responsiveness, validity, and reliability. This instrument appeared to be easy to use and comprehend within the target population of children aged 8 to 12 years old and their parents. Trial registration: This study was approved by the South-Mediterranean-IV Ethics Committee and registered on ClinicalTrials.gov (NCT01202916) on 16 Sepetmber 2020, https://clinicaltrials.gov/ct2/show/NCT01202916.

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