Effectiveness of parent training in improving stress-coping capability, anxiety, and depression in mothers raising children with autism spectrum disorder

Although children across the world experience autism spectrum disorder (ASD), most research on ASD has been conducted using Western cultural perspectives and has focused primarily on mothers, leaving significant gaps in the literature. This study aimed to address these gaps by exploring the experiences of fathers raising children with ASD in a Bedouin community. To this end, a sample of 19 fathers of children (aged 6–15 years) with ASD living in recognized and unrecognized Bedouin settlements in the Negev participated in ethnographic, semi-structured interviews designed to investigate their experiences with raising a child with ASD in their community. Two major themes emerged: the challenges that Bedouin fathers of children with ASD face, and the influence of socio-demographic and cultural characteristics on their experience. Findings reflect the complex experiences of fathers raising children with ASD in the Bedouin community, stemming from their socio-cultural context and the limited knowledge and support services that are available in the community for these children. This article concludes with recommendations on how to enhance professional sensitivity and provide more culturally tailored services for parents of children with ASD.

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Effect of Parent Training vs Parent Education on Behavioral Problems in Children With Autism Spectrum Disorder

JAMA ◽

10.1001/jama.2015.3150 ◽

2015 ◽

Vol 313 (15) ◽

pp. 1524 ◽

Cited By ~ 125

Author(s):

Karen Bearss ◽

Cynthia Johnson ◽

Tristram Smith ◽

Luc Lecavalier ◽

Naomi Swiezy ◽

...

Keyword(s):

Autism Spectrum Disorder ◽

Parent Training ◽

Parent Education ◽

Behavioral Problems ◽

Children With Autism ◽

Autism Spectrum ◽

Spectrum Disorder

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Online Communication Training for Parents of Children With Autism Spectrum Disorder

Communication Disorders Quarterly ◽

10.1177/1525740117727491 ◽

2017 ◽

Vol 39 (3) ◽

pp. 415-425 ◽

Cited By ~ 6

Author(s):

Sarah N. Douglas ◽

Rebecca Kammes ◽

Erica Nordquist

Keyword(s):

Autism Spectrum Disorder ◽

Parent Training ◽

Children With Autism ◽

Online Training ◽

Autism Spectrum ◽

Communication Strategy ◽

Spectrum Disorder ◽

Probe Design ◽

Single Subject ◽

The Impact

Parent training is an essential part of quality programming for children with autism spectrum disorder (ASD). However, limited research exists exploring online training approaches to support parents of children with both ASD and complex communication needs (CCN; e.g., limited verbal ability), despite the many benefits that online training might have for these parents and the overall sustainability and scalability of such approaches. This study utilized a single-subject multiple probe design with three parents and their children to explore the impact of online parent training for parents and their children with ASD and CCN. Training included online interactive components to teach parents a communication strategy, as well as live practice sessions during which parents implemented the strategy, had an opportunity to ask questions, and engaged in self-reflection. Results indicated that training increased communication opportunities and responses provided by parents, and communication by the child. Limitations and future research directions are discussed.

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Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder

Journal of Autism and Developmental Disorders ◽

10.1007/s10803-017-3102-8 ◽

2017 ◽

Vol 47 (7) ◽

pp. 1966-1977 ◽

Cited By ~ 15

Author(s):

Liezl Schlebusch ◽

Shakila Dada ◽

Alecia E. Samuels

Keyword(s):

Quality Of Life ◽

Autism Spectrum Disorder ◽

South African ◽

Children With Autism ◽

Autism Spectrum ◽

Spectrum Disorder ◽

Family Quality Of Life ◽

Raising Children ◽

African Families

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Effects of a brief mindfulness-infused behavioral parent training for mothers of children with autism spectrum disorder

Journal of Contextual Behavioral Science ◽

10.1016/j.jcbs.2019.05.001 ◽

2019 ◽

Vol 13 ◽

pp. 42-51

Author(s):

Tracy J. Raulston ◽

Patricia K. Zemantic ◽

Wendy Machalicek ◽

Meme Hieneman ◽

Eva Kurtz-Nelson ◽

...

Keyword(s):

Autism Spectrum Disorder ◽

Parent Training ◽

Children With Autism ◽

Autism Spectrum ◽

Behavioral Parent Training ◽

Spectrum Disorder

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Perceptions of Family Problems and Pessimism Among Latina and Non-Latina White Mothers Raising Children with Autism Spectrum Disorder

Journal of Autism and Developmental Disorders ◽

10.1007/s10803-018-3640-8 ◽

2018 ◽

Vol 50 (7) ◽

pp. 2360-2374 ◽

Cited By ~ 3

Author(s):

Kristina Lopez ◽

Sandy Magaña

Keyword(s):

Autism Spectrum Disorder ◽

Children With Autism ◽

Autism Spectrum ◽

Spectrum Disorder ◽

Family Problems ◽

Raising Children ◽

White Mothers

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Parent Training for Disruptive Behavior

10.1093/med-psych/9780190627812.001.0001 ◽

2018 ◽

Cited By ~ 1

Author(s):

Karen Bearss ◽

Cynthia R. Johnson ◽

Benjamin L. Handen ◽

Eric Butter ◽

Luc Lecavalier ◽

...

Keyword(s):

Autism Spectrum Disorder ◽

Parent Training ◽

Challenging Behaviors ◽

Children With Autism ◽

Autism Spectrum ◽

Spectrum Disorder ◽

Treatment Manual ◽

Training Manual ◽

Booster Sessions

The RUBI Autism Network has developed and tested a structured parent training manual for children with autism spectrum disorder and disruptive behaviors. The manual is based on principles of applied behavior analysis and is designed for therapists to use with parents of children with autism spectrum disorder and co-occurring challenging behaviors, such as tantrums, noncompliance, difficulties with transitions, and aggression. A trained therapist utilizes the manual to guide the parent in applying techniques and tools to help manage the child’s challenging behaviors. The treatment includes 11 Core sessions, 7 Supplemental sessions, a home visit, and follow-up telephone booster sessions. Each of the sessions contains a therapist script, activity sheets, a parent handout, and treatment fidelity checklists. Additionally, accompanying each core session are video vignettes that the therapist uses to demonstrate concepts taught in the session. The videos include 30- to 60-second vignettes demonstrating common parenting mistakes as well as implementation (to varying degrees of success) of the strategies being taught. The treatment manual is designed to be delivered individually to parents in weekly outpatient visits. Parents are given homework assignments between sessions that focus on applying techniques to specific behaviors.

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Parents’ perceptions of raising children with autism spectrum disorders in the United States and Arab countries: A comparative review

Autism ◽

10.1177/1362361319833929 ◽

2019 ◽

Vol 23 (7) ◽

pp. 1645-1654 ◽

Cited By ~ 1

Author(s):

Jamal M Al Khateeb ◽

Louise Kaczmarek ◽

Muna S Al Hadidi

Keyword(s):

Quality Of Life ◽

United States ◽

Autism Spectrum Disorder ◽

Children With Autism ◽

Autism Spectrum ◽

Arab Countries ◽

Spectrum Disorder ◽

Raising Children ◽

Us Studies

Four databases were searched to identify studies published by Arab researchers on parents’ perceptions of autism spectrum disorder and studies conducted by US researchers and published in systematic reviews of this topic. The electronic search resulted in 14 studies published by Arab researchers and 55 studies published by US researchers. The results showed that autism spectrum disorder has many of the same effects on Arab and American families. Six major areas were identified in the results. Financial difficulties associated with raising children with autism spectrum disorder were mentioned more in Arab studies than in US studies. Arab studies had more emphasis on gender than US studies. The results related to quality of life of parents of children with autism spectrum disorder in Arab studies were equivocal. US studies included comparisons with families without a child with autism spectrum disorder, and addressed factors that were associated with quality of life indicators. More health, educational, and social services were available in United States than in Arab countries, but some frustration was reported by US parents in obtaining appropriate services in some studies. A higher percentage of Arab studies mentioned the role of religious faith than US studies. Finally, social stigma was evidenced in both cultures, but not much research was available.

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