Assessing Health-related Quality of Life in Hand Eczema Patients: How to Overcome Psychometric Faults when Using the Dermatology Life Quality Index

BACKGROUND Rosacea is a chronic inflammatory dermatosis with facial skin involved, leading to physical and emotional problems, which greatly affected quality of life (QoL) of patients. Dermatology Life Quality Index (DLQI) and willingness to pay (WTP) are well-established instruments assessing the health-related quality of life (HRQoL), while very few studies have been focused on this topic about rosacea in China. OBJECTIVE To investigate HRQoL in Chinese rosacea patients assessed by DLQI and WTP and investigate potential predictors for patients with HRQoL severely affected. METHODS This cross-sectional study was conducted on 973 patients with rosacea. Sociodemographic data, clinical features and DLQI were collected, and WTP was assessed by three standardized items. Multivariable logistic analysis was performed to investigate independent factors influencing QoL. RESULTS 921 questionnaires were accomplished by participants. The mean DLQI score was 11.6 (median 11). Patients were willing to pay an average of $1050.2 or € 896.2 (median $431.4 or € 368.1) for complete cure. 33.3% would like to pay more than 20% of their monthly income to achieve sustainable control. There were positive correlations between WTP with DLQI (P < .05). DLQI could be independently impacted by age (21-30 and 31-40, OR = 3.242 and 3.617, respectively), the occupational requirement of appearance (high, OR = 4.410), disease duration (< 2 years, OR = 1.582), oedema (OR = 1.844) and severity of flushing, burning, stinging and pruritus (severe, OR = 2.003, 1.981, 2.491, 2.249, respectively). There were no significant associations between WTP and most of the clinical factors. CONCLUSIONS The QoL was negatively affected and should not be ignored among rosacea patients in China. Patients aged 21-40y, having occupational requirement of appearance, with the disease duration less than 2 years, and suffering severe flushing and related symptoms were more likely to have severe or very severe limitation of QoL.

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Translating the Science of Quality of Life into Practice: What Do Dermatology Life Quality Index Scores Mean?

Journal of Investigative Dermatology ◽

10.1111/j.0022-202x.2005.23621.x ◽

2005 ◽

Vol 125 (4) ◽

pp. 659-664 ◽

Cited By ~ 346

Author(s):

Yan Hongbo ◽

Charles L. Thomas ◽

Michael A. Harrison ◽

M. Sam Salek ◽

Andrew Y. Finlay

Keyword(s):

Quality Of Life ◽

Dermatology Life Quality Index ◽

Quality Index ◽

Life Quality ◽

Life Quality Index

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Quality of life and psychological status of patients with pemphigus vulgaris using Dermatology Life Quality Index and General Health Questionnaires

The Journal of Dermatology ◽

10.1111/j.1346-8138.2011.01382.x ◽

2011 ◽

Vol 39 (2) ◽

pp. 141-144 ◽

Cited By ~ 37

Author(s):

S. Zahra GHODSI ◽

Cheyda CHAMS-DAVATCHI ◽

Maryam DANESHPAZHOOH ◽

Mahin VALIKHANI ◽

Nafiseh ESMAILI

Keyword(s):

Quality Of Life ◽

General Health ◽

Dermatology Life Quality Index ◽

Quality Index ◽

Life Quality ◽

Pemphigus Vulgaris ◽

Psychological Status ◽

Life Quality Index ◽

Health Questionnaires

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Assessment of the quality of life of pediatric patients at a center of excellence in dermatology in southern Brazil

Anais Brasileiros de Dermatologia ◽

10.1590/s0365-05962012000500004 ◽

2012 ◽

Vol 87 (5) ◽

pp. 697-702 ◽

Cited By ~ 18

Author(s):

Magda Blessmann Weber ◽

Daniel Lorenzini ◽

Clarissa Prieto Herman Reinehr ◽

Bárbara Lovato

Keyword(s):

Quality Of Life ◽

Skin Disease ◽

Dermatology Life Quality Index ◽

Quality Index ◽

Pediatric Patients ◽

Skin Diseases ◽

Life Quality ◽

Chronically Ill ◽

Life Quality Index

BACKGROUND: Skin diseases cause negative impact on the emotional state, social relationships and daily activities, due to the stigma caused by the appearance of the lesions. OBJECTIVE: This study aimed to assess the quality of life of pediatric patients with skin diseases attending a dermatology service, compare the scores obtained among the dermatoses found in the sample and associate them to the variables, in addition to observing how the skin disease specifically affects quality of life. METHODS: Cross-sectional study, with patients between 5 and 16 years attending the Dermatology Service of the University of Health Sciences of Porto Alegre, Brazil, between July 2010 and February 2011. The data collection instruments were the Children's Dermatology Life Quality Index questionnaire and the AUEQI questionnaire. RESULTS: A total of 161 patients were interviewed, with mean age of 9,66 years. The main dermatoses were atopic dermatitis (29.8%), warts (13%) and molluscum contagiosum (7.5%). Chronic diseases (73.9%) were the most prevalent. The overall mean Children's Dermatology Life Quality Index score was 5.01 for chronic dermatoses and 2.07 for acute illnesses, indicating a compromised quality of life among chronically ill patients. The comparison between the scores obtained with the AUEQI scale and the Children's Dermatology Life Quality Index scores indicates that the overall quality of life is less affected than the specific quality of life related to the dermatosis. CONCLUSIONS: The data presented reinforce how important it is that the patients, their families and caregivers understand the symptoms, triggers and treatment of the skin disease in question. This information facilitates adherence to the treatment and justifies the conduct adopted by the dermatologist.

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