scholarly journals Mental health service users’ perceptions on the use of administrative data for research

2018 ◽  
Vol 3 (2) ◽  
Author(s):  
Emily Satinsky ◽  
Corine Driessens ◽  
David Crepaz-Keay ◽  
Antonis Kousoulis
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Focus Group ◽  
Health Service ◽  
Administrative Data ◽  
Data Protection ◽  
Health Data ◽  
Service Users ◽  
Opt Out ◽  
Mental Health Foundation

BackgroundRecently, opportunities have been created to link health records with data routinely collected by social and economic departments. The ADRC-E (Southampton), in collaboration with the Mental Health Foundation has taken advantage of these opportunities to request information on a retrospective cohort to examine the effects of community mental health services on users in England before and after the financial crisis of 2008. ObjectiveTo increase transparency the Mental Health Foundation assessed mental health service users’ perceptions regarding current practice with the secondary use of their administrative data. MethodsThis three-hour focus group study identified mental health service users’ thoughts around the word ‘data’, data sharing and data protection governance. Findings Focus group participants were generally happy to share their health data. Trust was an important factor mentioned in relation to data sharing. Participants expressed a desire for improved transparency around the use of administrative data for research purposes. When discussing safeguards the participants all agreed that they would feel more comfortable sharing their health data if there were better patient education and feedback systems in place. ConclusionMental health service providers should strive to inform individuals using their services that their data might be used for research purposes and communicate the rights to opt out of participation. It is important for researchers and data administrators to draw the service users’ attention to relevant studies and opt-out mechanisms as well as enforce data protection and linking policies.

scholarly journals Mental health service users’ perceptions of data sharing and data protection: a short qualitative report

2018 ◽  
Vol 25 (4) ◽  
pp. 239-242 ◽  
Author(s):  
Emily Satinsky ◽  
Corine Driessens ◽  
David Crepaz-Keay ◽  
Antonis A. Kousoulis
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Lived Experience ◽  
Data Sharing ◽  
Data Protection ◽  
Health Data ◽  
Service Users ◽  
Improve Health

BackgroundTo improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.ObjectiveTo assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.MethodWe conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.ResultsParticipants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.ConclusionThis case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.

A participatory mobile application (app) development project with mental health service users and clinicians

2018 ◽  
Vol 77 (7) ◽  
pp. 815-827 ◽  
Author(s):  
Gabrielle T McClelland ◽  
Martin Fitzgerald
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Focus Group ◽  
Health Service ◽  
Focus Groups ◽  
Mobile App ◽  
Evidence Based ◽  
Service Users ◽  
Personal Support ◽  
App Development

Objective: The aim of this study was to establish the utility of a bespoke mobile app for mental health service users and clinicians. Design: Qualitative design using four focus groups. Methods: Work was conducted in three stages. The first stage involved a focus group with mental health service users and eight clinicians from a mental health early intervention service to discuss the utility of a bespoke mobile app. Visual, verbal and written prompts were used to demonstrate a mobile app and to prompt discussion. The results of the focus groups were used to create a ‘visual walk through, non-interactive mock up’ mobile app which was used to aid discussion with the same service users and clinicians in stage 2 focus groups. Stage 3 involved development of a mobile app prototype based on focus group feedback. Results: Key ideas emerging from the focus groups were adopted in the design of the app prototype. These were as follows: the use of colour to convey mood; simple mood tracking using familiar trigger icons; a calendar integrated with the service user’s care plan; a help button linked to personal support; an avatar to personalise the app; and the inclusion of evidence-based information. Conclusion: Digital health technology is an extremely important asset with scope to improve people’s lives when combined with behaviour change techniques. Co-design with service users, clinicians and digital technologists is critical to product design and adoption. The use of quality standard criteria and evidence-based content in app development and evaluation is essential.

The Protection of Mental Health Service Users' Human Rights in Andalusia (Spain) as part of 1 in 4 Anti-stigma Strategy

2012 ◽  
Author(s):  
Pablo Garcia-Cubillana de la Cruz ◽  
Aguila bono del Trigo ◽  
Vicente Ibanez Rojo ◽  
Evelyn Huizing
Keyword(s):  
Mental Health ◽  
Human Rights ◽  
Mental Health Service ◽  
Health Service ◽  
Service Users

scholarly journals Co-creating visual representations of safe spaces with mental health service users using photovoice and zoom

2021 ◽  
pp. 100059
Author(s):  
Julie Dare ◽  
Helen Seiver ◽  
Lesley Andrew ◽  
David Coall ◽  
Shantha Karthigesu ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Visual Representations ◽  
Service Users ◽  
Safe Spaces

Engagement of mental health service users and carers in care planning – Is it meaningful and adding value?

2021 ◽  
pp. 103985622110286
Author(s):  
Russ Scott ◽  
Andrew Aboud
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Service Users ◽  
Care Planning ◽  
Positive Outcomes ◽  
Engagement In Care ◽  
Health Care Planning ◽  
Meaningful Engagement ◽  
Meta Analyses

Objective: Consider whether mental health service users and carers meaningfully engage in care planning and whether care planning adds value to patient care. Conclusion: A review of the meta-analyses and systematic reviews of service users and carers identified many barriers to their meaningful engagement in care planning. No research has demonstrated any measurable benefits or positive outcomes linked to mental health care planning.

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