Development and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care for People with Intellectual Disabilities

2019 ◽  
Author(s):  
Annemieke Wagemans
Keyword(s):  
Palliative Care ◽  
Intellectual Disabilities ◽  
Advance Care Planning ◽  
Care Planning ◽  
Planning Program ◽  
Advance Care ◽  
People With Intellectual Disabilities

scholarly journals Advance Care Planning in Palliative Care for People With Intellectual Disabilities: A Systematic Review

2017 ◽  
Vol 54 (6) ◽  
pp. 938-960.e1 ◽  
Author(s):  
Hille Voss ◽  
Anique Vogel ◽  
Annemieke M.A. Wagemans ◽  
Anneke L. Francke ◽  
Job F.M. Metsemakers ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Intellectual Disabilities ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care ◽  
People With Intellectual Disabilities

Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability

2021 ◽  
Vol 59 (1) ◽  
pp. 39-54
Author(s):  
Hille Voss ◽  
Anique G.F.M Vogel ◽  
Annemieke M.A Wagemans ◽  
Anneke L. Francke ◽  
Job F.M. Metsemakers ◽  
...  
Keyword(s):  
Palliative Care ◽  
Intellectual Disability ◽  
The Netherlands ◽  
Design Process ◽  
Advance Care Planning ◽  
Care Practice ◽  
Care Planning ◽  
Planning Program ◽  
Information Pack ◽  
Advance Care

Abstract In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.

Advance Care Planning Program and the Knowledge and Attitude Concerning Palliative Care

2017 ◽  
Vol 42 (3) ◽  
pp. 238-246 ◽  
Author(s):  
Huei-Chuan Sung ◽  
Shu-Chen Wang ◽  
Sheng-Yu Fan ◽  
Chia-Ying Lin
Keyword(s):  
Palliative Care ◽  
Advance Care Planning ◽  
Care Planning ◽  
Planning Program ◽  
Advance Care ◽  
Knowledge And Attitude

Demenz aus palliativmedizinischer Perspektive: warum ein krankheitsspezifisches Advance Care Planning wichtig ist

2018 ◽  
Vol 75 (2) ◽  
pp. 105-111 ◽  
Author(s):  
Ralf J. Jox ◽  
Francesca Bosisio ◽  
Eve Rubli Truchard
Keyword(s):  
Palliative Care ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care ◽  
Menschen Mit Demenz

Zusammenfassung. Die Palliative Care muss sich im Zuge des demographischen Wandels vieler Gesellschaften rund um den Globus tiefgreifend wandeln. Sie muss mehr und mehr mit der Geriatrie zusammenarbeiten und geriatrische Expertise integrieren. Eine der zentralen Herausforderungen Geriatrischer Palliative Care ist die ethisch angemessene Therapieentscheidung für Menschen, die nicht mehr urteilsfähig sind. Nachdem der bisherige Ansatz herkömmlicher Patientenverfügungen erwiesenermassen enttäuscht hat, wird aktuell, gerade auch in deutschsprachigen Ländern, das systemische Konzept des Advance Care Planning (ACP) verfolgt. In diesem Artikel wird zunächst ACP mit seinen Zielen, Elementen und Effekten vorgestellt. Sodann wird gezeigt, weshalb es für Menschen mit Demenz eines adaptierten ACP-Programms bedarf und was ein solches demenzspezifisches ACP beinhalten muss.

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