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2021 ◽  
Vol 59 (1) ◽  
pp. 39-54
Author(s):  
Hille Voss ◽  
Anique G.F.M Vogel ◽  
Annemieke M.A Wagemans ◽  
Anneke L. Francke ◽  
Job F.M. Metsemakers ◽  
...  

Abstract In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and professionals. The program was implemented in six ID care organizations in the Netherlands and consisted of an information pack, a training course, and an implementation interview about implementing ACP. Professionals indicated that their competencies had improved, particularly regarding communication and the application of ACP as a standard element in palliative care practice. This program therefore seems helpful in training ID care professionals in the competencies needed for ACP.



2020 ◽  
Vol 19 (3) ◽  
pp. 361-378
Author(s):  
Andrew J. E. Harding ◽  
Sarah Hean ◽  
Jonathan Parker ◽  
Ann Hemingway

Despite calls for better support to empower people when reassessing their housing in later life, two recent literature reviews highlight a paucity of research on the efficacy of such services. This article reports a qualitative realist evaluation on the efficacy of a UK telephone service providing information on specialist housing to older people. The findings of thirty-one realist interviews with sixteen older people are presented. Information-seekers’ existing tenure (social tenant or private owner-occupier/renter) shaped their experience and utilisation of support. Broadly, however, information was considered too ‘light touch’ to empower older people. However, the widely recognised lack of accessible housing options and reports of non-transparent and unresponsive market practices were also key factors. This study underlines the widely acknowledged need to increase the supply of specialist housing, and recommends that housing options support be reflective of market conditions and be more substantive – including discussion, deliberation, education and advocacy.



2018 ◽  
Vol 13 (2) ◽  
Author(s):  
Ashifur Rahman ◽  
Sk Nazmul Huda ◽  
Nitta Biswas

Aims: To share our experience of capacity building in the electronic and print media sector of Bangladesh for fistula related awareness. Methods: We identified key media institutions and professional press forums in Bangladesh. We provided fourhours orientation training to 96 professionals from electronic and print media and other media related institutions in six workshops. We also provided an information pack for fistula communication. From the workshops we identified focal persons within the organizations for fistula and maternal health communication. Results: Over 120 reports, editorials, features, news were published in papers and 67 television and radio program were broadcasted after the workshops. A range of topics were covered in the press including early marriage prevention, fistula related event coverage and promoting care-seeking behaviors for fistula suffers. Conclusion: The Media Leaders workshop was very well accepted by the professional press and other media personnel. The training led to an increased capacity in mass communication on fistula. It is anticipated that the increased awareness of media personnel will result in continued contributions in the future.



Circulation ◽  
2018 ◽  
Vol 138 (Suppl_2) ◽  
Author(s):  
Susie Cartledge ◽  
Janet E Bray ◽  
Dion Stub ◽  
Judith Finn ◽  
Lis Neubeck

Introduction: Outpatient cardiac rehabilitation programs provide an ideal environment to deliver targeted cardiopulmonary resuscitation (CPR) training to cardiac patients and their family members. However, the prevalence of CPR training in Australian programs is low (24%). This study sought to identify the best strategy to implement CPR training into cardiac rehabilitation programs. Hypothesis: We hypothesise that coordinators who receive a higher level of education (information pack including two self-instructional CPR video training kits and a face-to-face education session) compared to those who only receive an information pack, will be more likely to incorporate CPR training into their cardiac rehabilitation programs. Methods: A two-arm randomised controlled implementation study is currently being conducted across Australia. One cardiac rehabilitation coordinator per cardiac rehabilitation program, where the program is not currently providing regular CPR training to patients and families, is eligible to participate. Coordinators will be randomised 1:1 to either receive an information pack or information pack plus face-to-face education session. Results: To date 23 coordinators (59% metropolitan programs, 41% rural programs) have been randomised. Few programs (19%) have previously offered CPR training and only 25% currently include information about CPR. Common barriers to incorporating CPR training into programs are time (71%), resources (67%) and a lack of awareness to include CPR training (24%). Motivations for including CPR training are driven by coordinators assessment that patients and families are interested in CPR training (81%). Implementation data will be presented including information on the level of implementation in addition to a sample of brief qualitative telephone interviews to further discuss enablers and barriers. Conclusions: Cardiac rehabilitation represents a logical location to provide targeted CPR training to high-risk cardiac groups at scale across Australia. This study will aid in better understanding how cardiac rehabilitation coordinators can be supported to enable more programs to incorporate CPR training.



2018 ◽  
Vol 89 (10) ◽  
pp. A8.3-A8
Author(s):  
Edmond Evan ◽  
Mehta Arpan ◽  
Taylor Alison ◽  
Jacob John

A mainstay of epilepsy management is patient education and engagement. Previous educational interventions have varied greatly in number of sessions, teaching methodology and cost. This study assessed the impact of a low-cost intervention consisting of a personal information pack.MethodsForty-six consecutive patients with an existing epilepsy diagnosis attending clinic at MKUH NHS Trust were enrolled and pack provided. A baseline questionnaire assessed patient understanding and service utilisation (GP, A and E, specialist nurse). The questionnaire was repeated 3 months later. Patient engagement with the pack was assessed (completeness of information in pack, patient rating of usefulness).ResultsFourteen patients were lost to follow-up - thirty-two completed the second interview. There was a trend towards reduced service utilisation. Specialist nurse visits were significantly reduced (2.75 visits/year pre-intervention vs 1.11 post-intervention, p=0.01). Patient understanding was not significantly changed. Patient rating of usefulness was positive (2.4/3 on Likert scale). Two thirds of patients had not filled out the pack or added basic details only.DiscussionThis simple, low cost intervention may reduce some types of service utilisation and be found helpful by patients. A planned redesign involves the provision of a low-effort pre-filled information card together with the larger pack.



2018 ◽  
Vol 42 ◽  
pp. I-VIII
Keyword(s):  


2016 ◽  
Vol 4 (1) ◽  
pp. 12
Author(s):  
Try Aditia ◽  
Hamidi Said ◽  
Supriati Supriati

Abstract : The purpose of the research are to know how the public relations officer of Bengkalis regency government managing public opinion, the cons- traints face, and to determine solutions to faced constraints. This type research is descriptive. The results of the research is the public relations officer Bengkalis regency government in managing public opinion that is media monitoring acti- vities, news analysis, discussion results of analysis, and set of information pack- aging strategy. Constraints faced  is society of Bengkalis less familiar media mo- dern, public relations officer does not meet qualifications, and facilities ina- dequate.  The solution is to the public relations activities of conducted intensive- ly, revitalizing public relation officer, and the addition infrastructure required. So that the function and purpose of public relations goes well then the human re- sources that are used by Public Relations of Bengkalis Regency Government fac- tor should prioritize quality over quantity, at least a Public Relations must have the appropriate background to the field. Keywords : Public Relations, Public Opinion 



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