Learning Field Palliative Care in the Region of the Palliative Care Network Zuid Gelderland in the Netherlands

2019 ◽  
Author(s):  
Elisabeth Maria Lutgardis Verschuur
Keyword(s):  
Palliative Care ◽  
The Netherlands ◽  
Care Network

scholarly journals The perceived impact of public involvement in palliative care in a provincial palliative care network in the Netherlands: a qualitative study

2014 ◽  
Vol 18 (6) ◽  
pp. 3186-3200 ◽  
Author(s):  
Frederike Haarsma ◽  
Albine Moser ◽  
Manon Beckers ◽  
Henk van Rijswijk ◽  
Esther Stoffers ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
The Netherlands ◽  
Public Involvement ◽  
Care Network ◽  
Perceived Impact

scholarly journals Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries

Geriatrics ◽  
2021 ◽  
Vol 6 (2) ◽  
pp. 44
Author(s):  
Shelley A. Sternberg ◽  
Shiri Shinan-Altman ◽  
Ladislav Volicer ◽  
David J. Casarett ◽  
Jenny T. van der Steen
Keyword(s):  
Palliative Care ◽  
The Netherlands ◽  
Hospice Care ◽  
The United States ◽  
Artificial Nutrition ◽  
Advanced Dementia ◽  
Case Scenario ◽  
Artificial Nutrition And Hydration ◽  
Positive Elements ◽  
The Us

Palliative care including hospice care is appropriate for advanced dementia, but policy initiatives and implementation have lagged, while treatment may vary. We compare care for people with advanced dementia in the United States (US), the Netherlands, and Israel. We conducted a narrative literature review and expert physician consultation around a case scenario focusing on three domains in the care of people with advanced dementia: (1) place of residence, (2) access to palliative care, and (3) treatment. We found that most people with advanced dementia live in nursing homes in the US and the Netherlands, and in the community in Israel. Access to specialist palliative and hospice care is improving in the US but is limited in the Netherlands and Israel. The two data sources consistently showed that treatment varies considerably between countries with, for example, artificial nutrition and hydration differing by state in the US, strongly discouraged in the Netherlands, and widely used in Israel. We conclude that care in each country has positive elements: hospice availability in the US, the general palliative approach in the Netherlands, and home care in Israel. National Dementia Plans should include policy regarding palliative care, and public and professional awareness must be increased.

Telephone consultation in palliative care for cancer patients: 5 years of experience in The Netherlands

2006 ◽  
Vol 15 (6) ◽  
pp. 577-582 ◽  
Author(s):  
S. C. C. M. Teunissen ◽  
E. H. Verhagen ◽  
M. Brink ◽  
B. A. van der Linden ◽  
E. E. Voest ◽  
...  
Keyword(s):  
Palliative Care ◽  
The Netherlands ◽  
Cancer Patients ◽  
Years Of Experience ◽  
Telephone Consultation

scholarly journals Euthanasia and Palliative Care: Reflections from the Netherlands and the UK

1999 ◽  
Vol 92 (7) ◽  
pp. 370-373 ◽  
Author(s):  
Zbigniew Zylicz ◽  
Ilora G Finlay
Keyword(s):  
Palliative Care ◽  
The Netherlands ◽  
The Uk

The International Children’s Palliative Care Network (ICPCN): a global overview

2017 ◽  
pp. 27-41 ◽  
Author(s):  
Lizzie Chambers ◽  
Sue Boucher ◽  
Julia Downing ◽  
Faith Mwangi-Powell ◽  
Sabine Kraft
Keyword(s):  
Palliative Care ◽  
Care Network

scholarly journals A Groupware Tool to Facilitate Caregiving for Home-Dwelling Frail Older Persons in the Netherlands: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Hanneke Breebaart ◽  
Marjolein Broese van Groenou
Keyword(s):  
The Netherlands ◽  
Home Care ◽  
Digital Communication ◽  
Care Organization ◽  
Care Network ◽  
Formal Caregivers ◽  
Care Recipients ◽  
Frail Older Persons ◽  
Informal Carers

BACKGROUND Collaboration among informal and formal caregivers in a mixed care network of home-dwelling elderly may benefit from using a groupware app for digital networked communication (DNC). OBJECTIVE This study aimed to describe and explain differences in the use and evaluation of a DNC app by members of the care network and to come up with a list of conditions that facilitate (or restrict) the implementation of a DNC app by a home care organization. METHODS A pilot study collected information on digital communication in 7 care networks of clients of a home care organization in the Netherlands. Semistructured interviews with 4 care recipients, 7 informal carers (of which 3 spoke on behalf of the care receiver as well on account of receivers’ suffering from dementia), 3 district nurses, 5 auxiliary nurses, and 3 managers were conducted 3 times in a period of 6 months. In addition, we observed relevant workshops initiated by the home care organization and studied log-in data created by the users of the DNC app. RESULTS The qualitative data and the monthly retrieved quantitative log-in data revealed 3 types of digital care networks: arranging the care network, discuss the care network, and staying connected network. Differences between network types were attributed to health impairment and digital illiteracy of the care recipients, motivation of informal caregivers, and commitment of formal caregivers. The easy availability of up-to-date information, the ability to promote a sense of safety for the carers, and short communication lines in case of complex care situations were positively evaluated. CONCLUSIONS It is concluded that digital communication is beneficial for organizing and discussing the care within a care network. More research is needed to study its impact on care burden of informal carers, on quality of care, and on quality of life of home-dwelling frail older adults.

scholarly journals Compreensão Emocional da Morte Pelas Crianças em Idade Pré-escolar: Uma Dimensão Esquecida

2020 ◽  
Vol 33 (10) ◽  
pp. 649
Author(s):  
Filipa Martins Silva ◽  
Ana Filipa Lopes ◽  
Vânia Carneiro ◽  
Álvaro Campelo
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Scientific Evidence ◽  
Emotional Understanding ◽  
Priority Area ◽  
Care Network ◽  
Emotional Dimension ◽  
Hypothetical Scenario ◽  
A Priority ◽  
Depth View

Introduction: Scientific evidence regarding children’s understanding of the concept of death is scarce. This has recently been pointed out by the International Children’s Palliative Care Network as a priority area of research. In particular, the avoidance of emotion in this area of research is an important shortcoming. This study aims to develop an in-depth view of the emotional dimension of the child’s understanding of death, also seeking to relate it to the cognitive dimension.Material and Methods: We interviewed children (three to six years old) using a book illustrating a hypothetical scenario in which a child faced the death of a relative. We asked questions to assess the cognitive subconcepts of death and the emotional dimension (what the child would feel and what parents should say).Results: Of the 54 participants, the majority said that the child would feel sad (n = 46, 85%) and that parents should inform her/him (n = 47, 87%); these responses did not vary significantly with age. The cognitive understanding of the concept of death in children who reported sadness was significantly higher.Discussion: Even the youngest children feel death, and it is not possible to disconnect cognitive and emotional understanding. Additionally, children should be informed in order to foster a proper and multidimensional elaboration of death.Conclusion: This study provides valuable information to health professionals and other interested adults about the way preschoolers position themselves in relation to death.

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