Functional Vision Assessment and Development in Children and Young People with Multiple Disabilities and Visual Impairment

2013 ◽  
pp. 352-361
2021 ◽  
pp. bjophthalmol-2020-318473
Author(s):  
Alexandra O Robertson ◽  
Lisanne A Horvat-Gitsels ◽  
Mario Cortina-Borja ◽  
Jugnoo S Rahi

BackgroundPatient-reported outcome measures (PROMs) are increasingly used in paediatric ophthalmology. However, little is known about the distribution of PROM scores among children and young people with visual impairment.AimTo investigate the distributions and predictors of scores on the VQoL_CYP (measuring vision-related quality of life) and FVQ_CYP (measuring functional vision).MethodsChildren and young people aged 8–18 years, with visual impairment/blindness (logarithm of the minimum angle of resolution (LogMAR) worse than 0.48 in the better eye, and/or eligible visual field restriction) completed the VQoL_CYP and FVQ_CYP at home or Great Ormond Street Hospital, London, UK. Associations between VQoL_CYP and FVQ_CYP scores and sociodemographic and clinical factors were analysed using multiple linear regression models.ResultsAmong 93 participants, VQoL_CYP scores ranged from 36.6 to 78.2 (mean=57.9, SD=8.1). FVQ_CYP scores ranged from 23.5 to 70.3 (mean=48.3, SD=10.1). Only 0.4% of the variation in VQoL_CYP scores was explained, with no associations with the variables of interest. By contrast, 21.6% of the variation in FVQ_CYP scores was explained, with a gradient of worse acuity (p<0.001) and female gender (p=0.04) associated with worse self-rated functional vision. Age, ethnicity, time of onset and stability/progression of visual impairment were not associated.DiscussionSelf-rated vision-related quality of life and functional vision are not readily predicted from sociodemographic or clinical characteristics that ophthalmologists measure/record. Routine use of PROMs in clinical practice can offer important insights. Use in research can provide valuable measures of effectiveness of interventions. The reference values provided will aid interpretation in both settings.


Ophthalmology ◽  
2013 ◽  
Vol 120 (12) ◽  
pp. 2725-2732 ◽  
Author(s):  
Valerija Tadić ◽  
Andrew Cooper ◽  
Phillippa Cumberland ◽  
Gillian Lewando-Hundt ◽  
Jugnoo S. Rahi

2020 ◽  
Vol 114 (6) ◽  
pp. 461-474
Author(s):  
Justin T. Kaiser ◽  
L. Penny Rosenblum ◽  
Tina S. Herzberg

Introduction: Within the field of visual impairment, there is no set of standards that guide teachers of students with visual impairments as they conduct, report, and share functional vision assessment (FVA) results with other educational team members, and university instructors vary in how they teach the assessment process to preservice teachers. Methods: In parallel, a group of teachers of students with visual impairments and a group of university instructors completed three rounds of a Delphi study. After providing background information in Round 1, they rated 84 statements about the FVA process. The level for consensus was set at 80%. Results: Of the 84 statements, consensus was reached for 45 statements regarding the level of importance by both groups. Participants rated 11 of 22 visual skills (e.g., near acuity, distance acuity) as extremely important to include in the FVA process. Discussion: There continues to be a need to build consensus on when FVAs should be conducted, what visual skills should be included when conducting them, what should be included in reports, and with whom assessment information should be shared. The importance of conducting such assessments for all students, including students under the age of 5 years and those with additional disabilities, needs to be recognized by the field of visual impairment. Implications for practitioners: University personnel need to work together to develop consistent curricula that focuses on the FVA process. Future studies that examine the FVA practices of individual teachers are necessary.


2015 ◽  
Vol 98 (4) ◽  
pp. 342-347 ◽  
Author(s):  
Duane R Geruschat ◽  
Marshall Flax ◽  
Nilima Tanna ◽  
Michelle Bianchi ◽  
Andy Fisher ◽  
...  

2011 ◽  
Vol 26 (1) ◽  
pp. 39-46 ◽  
Author(s):  
Graeme Douglas ◽  
Mike McLinden ◽  
Ann Marie Farrell ◽  
Jean Ware ◽  
Steve McCall ◽  
...  

2016 ◽  
Vol 16 (suppl 1) ◽  
pp. 39-44 ◽  
Author(s):  
Ana Carla Gomes Botelho ◽  
Luana Valeriano Neri ◽  
Marina Queiroz Ferreira da Silva ◽  
Thaisa Teixeira de Lima ◽  
Karla Gonçalves dos Santos ◽  
...  

Abstract Introduction: the identification of Zika virus (ZikV) in the amniotic fluid, in the placenta and in newborns' brains suggests a neurotropism of this agent in the brain development, resulting in neuro-psycho-motor alterations. Thus, this present study reports the assessment of children diagnosed by a congenital infection, presumably by ZikV, followed-up at the Rehabilitation Center Prof. Ruy Neves Baptist at the Instituto de Medicina Integral Prof. Fernando Figueira (IMIP). Description: as proposed by the Ministry of Health, the following instruments were used to evaluate the neuro-motor functions of four children with microcephaly aged between three and four months: The Test of Infant Motor Performance (TIMP); the functional vision assessment; the manual function scale development; and the clinical evaluation protocol on pediatric dysphagia (PAD-PED). Discussion: the children evaluated presented atypical motor performance, muscle tone and spontaneous motricity which encompass the symmetry and the motion range of the upper and lower limbs proven to be altered. The functional vision showed alterations which can cause limitations in the performance of functional activities and the learning process. Regarding to the speech articulator's functions observed that the maturation and coordination of sucking, swallowing and breathing did not yet encounter the appropriate age maturity level.


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