scholarly journals Linking Spinal Cord Injury Data Sets to Describe the Patient Journey Following Injury: A Protocol

2020 ◽  
Vol 26 (4) ◽  
pp. 232-242
Author(s):  
Vanessa K. Noonan ◽  
Susan B. Jaglal ◽  
Suzanne Humphreys ◽  
Shawna Cronin ◽  
Zeina Waheed ◽  
...  

Background: To optimize traumatic spinal cord injury (tSCI) care, administrative and clinical linked data are required to describe the patient’s journey. Objectives: To describe the methods and progress to deterministically link SCI data from multiple databases across the SCI continuum in British Columbia (BC) and Ontario (ON) to answer epidemiological and health service research questions. Methods: Patients with tSCI will be identified from the administrative Hospital Discharge Abstract Database using International Classification of Diseases (ICD) codes from Population Data BC and ICES data repositories in BC and ON, respectively. Admissions for tSCI will range between 1995–2017 for BC and 2009-2017 for ON. Linkage will occur with multiple administrative data holdings from Population Data BC and ICES to create the “Admin SCI Cohorts.” Clinical data from the Rick Hansen SCI Registry (and VerteBase in BC) will be transferred to Population Data BC and ICES. Linkage of the clinical data with the incident cases and administrative data at Population Data BC and ICES will create subsets of patients referred to as the “Clinical SCI Cohorts” for BC and ON. Deidentified patient-level linked data sets will be uploaded to a secure research environment for analysis. Data validation will include several steps, and data analysis plans will be created for each research question. Discussion: The creation of provincially linked tSCI data sets is unique; both clinical and administrative data are included to inform the optimization of care across the SCI continuum. Methods and lessons learned will inform future data-linking projects and care initiatives.

1992 ◽  
Vol 26 (2) ◽  
pp. 218-222 ◽  
Author(s):  
Fiona K. Judd ◽  
Douglas J. Brown

The function of a consultation liaison service to a spinal injuries unit is described. Within this context, a study was conducted in which sociodemographic and clinical data were collected over a 4 year period for consecutive admissions to the unit. Data are presented for 227 patients admitted during this period. Forty-seven patients were found to have discrete psychiatric disorders (DSM III) which required treatment during the course of their inpatient care. For forty-two of these patients the psychiatric disorder first developed following spinal cord injury.


Spinal Cord ◽  
2017 ◽  
Vol 55 (9) ◽  
pp. 875-881 ◽  
Author(s):  
A Carroll ◽  
L C Vogel ◽  
K Zebracki ◽  
V K Noonan ◽  
F Biering-Sørensen ◽  
...  

2011 ◽  
Vol 28 (8) ◽  
pp. 1525-1543 ◽  
Author(s):  
Brian K. Kwon ◽  
Elena B. Okon ◽  
Eve Tsai ◽  
Michael S. Beattie ◽  
Jacqueline C. Bresnahan ◽  
...  

2020 ◽  
Vol 2 (3) ◽  
pp. 132-137
Author(s):  
Deborah Joy Hilton

Objectives: An Australian access economics report (2009) estimated the lifetime cost of care is 5.0 million for a person whom suffers paraplegia and 9.5 million for quadriplegia, and costs/year are approximately $90,000. Hilton )2018( on drones at sporting venues discusses their potential to revolutionize injury surveillance monitoring via expert exposure gained for recording, investigation, tracking and monitoring of sporting injuries. Hilton (2018) reviewed rugby union and league Australian spinal cord injury datasets, finding more incident cases in the union then league [1]. Methods/Analysis: Wikipedia reports 20 professional rugby union and 26 rugby league playing fields in Australia. The Australian Institute of Health and Welfare document; Australian sports injury hospitalizations 2011–12 report just under 800 head and neck injuries requiring hospitalization related to rugby-related sports “35 neck fractures and 348 head fractures”. Brisbane’s leading drone aerial photography service “Droneworxs” according to previous enquiries by the author charge $650/hour to monitor a sporting event. A crude drone implementation cost estimate, hypothetically is to utilize this device across 46 professional clubs X 52 weeks one hour/week = $1,554,800. A basic hypothetical mathematical cost benefit comparison was performed. Findings: Droneworxs cost divided by healthcare costs/case/year ($90,000) = 17 so if these injuries are prevented then cost equivalence is reached figurately speaking, then cost benefits accrue. Novelty /Improvement: Drones are not overly expensive compared to spinal cord injury costs. The occasional presence of aerial cameras at sporting venues may also deter repeated foul play, in the same way that webcam cameras deter potential thieves.


PLoS ONE ◽  
2013 ◽  
Vol 8 (8) ◽  
pp. e72552 ◽  
Author(s):  
Argelio Santos ◽  
James Gurling ◽  
Marcel F. Dvorak ◽  
Vanessa K. Noonan ◽  
Michael G. Fehlings ◽  
...  

2016 ◽  
Vol 11 (1) ◽  
pp. 30
Author(s):  
Won Jun Lee ◽  
Sang Jin Kim ◽  
Jae Hyun Ryu ◽  
Yun Beom Kim ◽  
Seung Ok Yang ◽  
...  

Author(s):  
Syed Ameer Paspala ◽  
Murthy ◽  
Rao ◽  
sandeep Vishwakarma ◽  
Aleem

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