scholarly journals Clinical and Hematological Profiles During Valproate Treatment of Epileptic Patients with Intellectual Disability — Case Study and Mini Review

Author(s):  
Pekka Kaipainen ◽  
Tuomas Westermarck ◽  
Faik Atroshi ◽  
Markus Kaski ◽  
Maati Iivanainen

2016 ◽  
Vol 10 (4) ◽  
pp. 222-232 ◽  
Author(s):  
Julie King ◽  
Niki Edwards ◽  
Ignacio Correa-Velez ◽  
Rosalyn Darracott ◽  
Maureen Fordyce

Purpose The purpose of this paper is to explore the experiences of a refugee family navigating complex disability and restrictive practice service systems. Living with disability, or caring for someone with disability can compound the disadvantage and marginalisation already experienced by refugees. The nexus between disability and refugee status, particularly intellectual disability and restrictive practices, has received little scholarly attention and almost nothing is known of people’s experiences in this situation. Design/methodology/approach Thematic analysis of a case study is used to illustrate the experiences of a refugee family in this situation. The case study presented was part of a larger ethnographic study exploring the experiences of people of refugee background living with disability. Findings There were numerous barriers to accessing appropriate services. The family experienced high levels of stress simultaneously navigating the resettlement process and the disability service system. They were poorly informed and disempowered regarding the care of their loved one and the use of restrictive practices. Experiences in the country of origin, employment responsibilities, and unfamiliarity with the service system were key factors in this family’s difficulty in safeguarding the rights of their family member with disability. Originality/value This case study examines the complexity experienced when disability intersects with refugee background. Areas for additional research and significant gaps in service provision are identified. The case study clearly demonstrates the importance of understanding people’s pre- and post-settlement experiences to inform policy and service provision.



Author(s):  
Sónia Vanessa Alves ◽  
Ana Paula Cardoso ◽  
Belmiro Rego








2020 ◽  
Vol 2020 ◽  
pp. 1-12
Author(s):  
Mauro José Conte ◽  
Marcelo Gitirana Gomes Ferreira ◽  
Alejandro R. García Ramírez

Augmentative and Alternative Communication (AAC) techniques are employed to mediate communication with people who have communication disorders, as in cases of intellectual disability. Although there are various digital solutions that promote alternative communication options for individuals with communication disorders, only a few of them have been specifically designed or targeted to people with intellectual disability (ID). This work is motivated by the lack of AAC solutions contributing to the rehabilitation processes of individuals with intellectual disability in Brazil. The study presents a mobile-based AAC solution conceived as a tool to assist the rehabilitation process of people with ID. The design was based on user-centered design principles and accessibility standards. The System Usability Scale (SUS) questionnaire was used to evaluate the solution. Four specialists and twenty-five students participated in this study. The proposed solution shows the potential educational value for professionals who assist individuals with intellectual disability in Brazil.



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