scholarly journals Challenges of Patients with Spinal Cord Injury During the COVID-19 Pandemic: A Qualitative Study

2021 ◽  
Vol 8 (4) ◽  
Author(s):  
Masoud Hatefi ◽  
Milad Borji ◽  
Yousef Jamshidbeigi
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Code Of Ethics ◽  
Medical Sciences ◽  
Face To Face ◽  
Individual Interviews ◽  
Physical Support ◽  
Cord Injury ◽  
Data Saturation

Background: Spinal cord injury (SCI) is a chronic condition leading to physical and psychological problems along with numerous economic burdens for patients. In late 2019, an unknown disease called COVID-19 broke out, which quickly spread throughout the world. Objectives: The aim of the present study was to determine the challenges of SCI patients during the COVID-19 pandemic. Methods: This was a qualitative study performed among SCI patients after obtaining the code of ethics from the Research Ethics Committee of Ilam University of Medical Sciences in 2021. Data were collected using semi-structured, face-to-face individual interviews, in accordance with health protocols, in a safe environment without stress until reaching data saturation. Data were saturated after interviewing nine patients; to ensure data saturation, two additional interviews were conducted. Each interview lasted between 30 and 45 minutes, depending on the condition of each patient. The written files of the interviews were analyzed using MAXQDA software. Results: The mean age of the participants was 54 years, and 68% of the participants were male. After analyzing the data obtained from in-person interviews, three main themes, including expectations (need for financial support, need for social support, and need for physical support), concerns (fear of loneliness and fear of death), and health needs (health literacy, access to services and how to transmit the disease), were extracted. Conclusions: Considering the challenges in the three areas of expectations, concerns, and health care, it is necessary to take some measures to reduce these challenges.

scholarly journals Early access to vocational rehabilitation for inpatients with spinal cord injury: A qualitative study of staff perceptions

2016 ◽  
Vol 48 (9) ◽  
pp. 776-780 ◽  
Author(s):  
D Johnston ◽  
K Ramakrishnan ◽  
B Garth ◽  
G Murphy ◽  
J Middleton ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Vocational Rehabilitation ◽  
Staff Perceptions ◽  
Early Access ◽  
Cord Injury

scholarly journals Resilience and Happiness After Spinal Cord Injury: A Qualitative Study

2016 ◽  
Vol 22 (2) ◽  
pp. 99-110 ◽  
Author(s):  
Colette Duggan ◽  
Catherine Wilson ◽  
Lisa DiPonio ◽  
Brad Trumpower ◽  
Michelle A. Meade
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Cord Injury

scholarly journals Strategies for autonomy used by people with cervical spinal cord injury: A qualitative study

2008 ◽  
Vol 30 (4) ◽  
pp. 249-260 ◽  
Author(s):  
Leontine van de Ven ◽  
Marcel Post ◽  
Luc de Witte ◽  
Wim van den Heuvel
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Cervical Spinal Cord ◽  
Cervical Spinal Cord Injury ◽  
Cord Injury

“Challenges and facilitators—navigating in the landscape of spinal cord injury neuropathic pain”—a qualitative study on the use of prescribed drugs

Spinal Cord ◽  
2020 ◽  
Author(s):  
Cecilia Norrbrink ◽  
Kristian Sörling ◽  
Claes Hultling ◽  
Fredrik von Kieseritzky ◽  
Kerstin Wahman
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Neuropathic Pain ◽  
Qualitative Study ◽  
Cord Injury

Outpatient and community care for preventing pressure injuries in spinal cord injury. A qualitative study of service users’ and providers’ experience

Spinal Cord ◽  
2020 ◽  
Vol 58 (8) ◽  
pp. 882-891 ◽  
Author(s):  
Claudia Zanini ◽  
Nadia Lustenberger ◽  
Stefan Essig ◽  
Armin Gemperli ◽  
Mirjam Brach ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Community Care ◽  
Service Users ◽  
Cord Injury

Development and feasibility testing of an online virtual reality platform for delivering therapeutic group singing interventions for people living with spinal cord injury

2019 ◽  
Vol 26 (6) ◽  
pp. 365-375 ◽  
Author(s):  
Jeanette Tamplin ◽  
Ben Loveridge ◽  
Ken Clarke ◽  
Yunhan Li ◽  
David J Berlowitz
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Virtual Reality ◽  
Music Therapy ◽  
Phase 1 ◽  
User Evaluation ◽  
Face To Face ◽  
System Usability Scale ◽  
Cord Injury ◽  
Therapy Sessions

People with quadriplegia have a high risk for respiratory illness, social isolation and depression. Previous research has demonstrated that therapeutic singing interventions can not only improve breathing function and speech loudness, but also improve mood and social connectedness for people with quadriplegia. Face-to-face group attendance is difficult for this population due to difficulties with distance and travel. Online environments offer an accessible and cost-effective solution for people to connect with others without leaving their home. In a two-phase iterative design, we explored and tested different approaches for delivering online music therapy sessions with 12 patients from an inpatient spinal cord injury rehabilitation service. Six participants in Phase 1 trialled different virtual reality headsets and completed a short interview about their experience of the equipment and online singing trials. Outcomes from Phase 1 testing led to the development of a custom-built virtual reality application for online group music therapy sessions with low-latency audio. We tested the acceptability and feasibility of this platform in comparison to face-to-face and teleconference options for music therapy with six different patients. These participants completed three validated questionnaires: System Usability Scale, Quebec User Evaluation of Satisfaction with assistive Technology, and Psychosocial Impact of Assistive Devices Scale, and an interview about their experience. Questionnaire scores were good with mean ratings of 4.4 for Quebec User Evaluation of Satisfaction with assistive Technology, 53 for System Usability Scale and positive mean Psychosocial Impact of Assistive Devices Scale scores of 1.5 for competence, 2 for adaptability and 1.5 for self-esteem. Thematic analysis of post-session qualitative interviews revealed five themes: virtual reality was a positive experience, virtual reality was immersive and transportative, virtual reality reduced inhibitions about singing in front of others, virtual reality may reduce social cues, and the virtual reality equipment was comfortable, accessible and easy to use. Telehealth options, including a custom-designed virtual reality program, with low-latency audio are an acceptable and feasible mode of delivery for therapeutic singing interventions for people with spinal cord injury. Future non-inferiority research is needed to test online delivery modes for music therapy in comparison to face-to-face treatment.

scholarly journals Psychosocial Aspects of Traumatic Spinal Cord Injury With Onset During Adolescence: A Qualitative Study

2007 ◽  
Vol 30 (sup1) ◽  
pp. S55-S64 ◽  
Author(s):  
Marika Augutis ◽  
Richard Levi ◽  
Kenneth Asplund ◽  
Kristina Berg-Kelly
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Psychosocial Aspects ◽  
Traumatic Spinal Cord Injury ◽  
Cord Injury
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