A response to “Living with a fragmented body”: a qualitative study on perceptions about body changes after a spinal cord injury

Spinal Cord ◽  
2021 ◽  
Author(s):  
S. Soloukey ◽  
A. W. Prins ◽  
H. Zwart ◽  
J. Slatman
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Cord Injury

scholarly journals Resilience and Happiness After Spinal Cord Injury: A Qualitative Study

2016 ◽  
Vol 22 (2) ◽  
pp. 99-110 ◽  
Author(s):  
Colette Duggan ◽  
Catherine Wilson ◽  
Lisa DiPonio ◽  
Brad Trumpower ◽  
Michelle A. Meade
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Cord Injury

scholarly journals Strategies for autonomy used by people with cervical spinal cord injury: A qualitative study

2008 ◽  
Vol 30 (4) ◽  
pp. 249-260 ◽  
Author(s):  
Leontine van de Ven ◽  
Marcel Post ◽  
Luc de Witte ◽  
Wim van den Heuvel
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Cervical Spinal Cord ◽  
Cervical Spinal Cord Injury ◽  
Cord Injury

Outpatient and community care for preventing pressure injuries in spinal cord injury. A qualitative study of service users’ and providers’ experience

Spinal Cord ◽  
2020 ◽  
Vol 58 (8) ◽  
pp. 882-891 ◽  
Author(s):  
Claudia Zanini ◽  
Nadia Lustenberger ◽  
Stefan Essig ◽  
Armin Gemperli ◽  
Mirjam Brach ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Community Care ◽  
Service Users ◽  
Cord Injury

scholarly journals What Will the Post-Pandemic World Be Like? A Qualitative Study on the Perceptions of Brazilians with Spinal Cord Injury

2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Fabiana Faleiros ◽  
Deisimeri Alves ◽  
Soraia Dornelles Schoeller ◽  
Machado César Alves Machado ◽  
Leticia Corbo ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Qualitative Study ◽  
Future Scenarios ◽  
Ernst Bloch ◽  
Axel Honneth ◽  
Cord Injury ◽  
The World

Background: Given the worldwide pandemic caused by SARS-CoV-2, this study sought to understand how people with spinal cord injury (SCI) perceive the post-pandemic context. Objectives: We aimed to understand the perceptions of people with SCI in Brazil regarding the world in the post-pandemic context. Methods: This qualitative study was conducted on SCI Brazilians using a form published on SurveyMonkey® with questions regarding their perspectives on the post-pandemic world. The responses were analyzed considering Bardin, Axel Honneth, and Ernst Bloch. Results: The results demonstrated that the lives of SCI people in Brazil did not change during the pandemic, as they were already isolated due to the lack of accessibility. Conclusions: Imagining future scenarios following the pandemic is highly complex; however, the present can be understood as a moment to reflect on how humanity has developed thus far, especially concerning impaired accessibility and the pervasive lack of empathy and solidarity.

scholarly journals Spinal Cord Injury Veterans’ Disability Benefits, Outcomes, and Health Care Utilization Patterns: Protocol for a Qualitative Study

10.2196/14039 ◽  
2019 ◽  
Vol 8 (10) ◽  
pp. e14039
Author(s):  
Denise C Fyffe ◽  
Joyce Williams ◽  
Paul Tobin ◽  
Carol Gibson-Gill
Keyword(s):  
Health Care ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
New Jersey ◽  
Data Collection ◽  
Qualitative Study ◽  
Care Providers ◽  
Financial Compensation ◽  
Cord Injury ◽  
Disability Compensation

Background An estimated 42,000 people currently living with chronic spinal cord injury (SCI) are veterans. SCI was a common combat-related injury in the World Wars and Vietnam era and now affects more than 11% of military personnel injured in Operation Iraqi Freedom and Operation Enduring Freedom. The Veterans Benefits Administration primarily offers financial compensation for disabilities sustained or re-aggravated during military service, called service-connected disability compensation. With the overwhelming cost of living with an SCI, this monthly financial compensation can provide service-connected veterans and their families with access to additional supportive resources (eg, assistive devices and personal aide) and maintain their quality of life (QOL). Little is known about personal, health, functional, and QOL outcomes associated with service-connected and nonservice-connected status for veterans living with an SCI. Objective The aim of this study is to compare the ways in which Veterans Affairs’ (VA) service-connected and nonservice-connected status may be associated with health and functional outcomes, choice of health care provider, and overall QOL for veterans living with an SCI and their caregivers. Methods This cross-sectional qualitative study will gather data using retrospective chart reviews, semistructured interviews, and focus groups. After obtaining institutional review board (IRB) approval, purposeful sampling techniques will be used to recruit and enroll the following key stakeholders: veterans living with an SCI, family caregivers, and SCI health care providers. Concurrent data collection will take place at 2 sites: Veterans Administration New Jersey Healthcare System and Northern New Jersey Spinal Cord Injury System. Results This study was funded in July 2015. IRB approval was obtained by November 2016 at both sites. Enrollment and data collection for phase 1 to phase 4 are complete. A total of 69 veterans, 18 caregivers, and 19 SCI clinicians enrolled in the study. Data analyses for these phases are underway. In phase 5, the follow-up focus group activities are scheduled. The final results are expected by the end of 2019. Conclusions The factors that contribute to veterans living with SCI seeking and not seeking VA disability compensation benefits are not well understood in rehabilitation research. Triangulation of these data sources will allow us to compare, contrast, and integrate the results, which can be used to develop clinical guidelines, caregiver training, and patient education programs. International Registered Report Identifier (IRRID) DERR1-10.2196/14039

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