Objectives: Data is necessary for a hospital-wide cerebral palsy (CP) profile, this being the leading pediatric diagnosis at the PGH Rehabilitation Medicine Out Patient clinic. This study aims to identify clinical features, severity of disability and common interventions in pediatric CP patients. Methods: CP profile data collection forms were accomplished from September 2014 to December 2015. Primary Results: Among 125 participants: 55% were < 5 years old, 47% were delivered vaginally, 42% had perinatal onset of condition, 34% had normal birth weight and 23% were moderately preterm. Most were quadriplegic (36%) and spastic (50%). Primary caregivers were mostly mothers (45%) and <20 years old (38%). Mobility-wise, 29% had Gross Motor Function Classification System score of 3. For hand function, 31% scored 2 in the Manual Ability Classification System and 26% were ‘below average’ in the Peabody Developmental Motor Skills-2. Common problems were: feeding (100%), communication (63%), seizure (58%), visual (56%) and auditory (54%). Majority (73%) had access to government medical facilities; 18% had no access. Physical (64%) and occupational (29%) therapy were common interventions; 29% received special education. Conclusion: A hospital-wide cerebral palsy profile should be established to monitor CP, given its multifactorial cause and complex functional impact. Trends should be correlated with maternal and patient factors, healthcare provision and socioeconomics.
Manual ability classification system in assessing hand function in children with cerebral palsy
