Psychosocial effects of juvenile rheumatic disease the family and peer systems as a context for coping

Changes in immigration and border control legislations in metropolitan countries have led to an increase in the number of fathers deported to the Caribbean. By way of qualitative research, the author examined the experiences of 18 deported fathers whose children remained in the deporting country. The findings reveal the psychosocial effects of deportation on fathers and how fathering roles are challenged by stigma, costly transnational communication facilities and frozen personal assets. Deportation also leads to families adjusting gender roles and family structures. The findings support the family adjustment and adaptation response model by showing how deportation constitutes a stressor which overwhelms the family’s resources to cope and which results in a process of adjustment and adaptation. This study is significant in that it provides a deeper insight into the issues that affect deported fathers and underlines the need for policy interventions that support transnational family ties.

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Adaptation to juvenile rheumatic disease: A controlled evaluation of functional disability with a one-year follow-up.

Health Psychology ◽

10.1037/0278-6133.11.1.67 ◽

1992 ◽

Vol 11 (1) ◽

pp. 67-76 ◽

Cited By ~ 31

Author(s):

Christine Timko ◽

Katherine W. Stovel ◽

Rudolf H. Moos ◽

John J. Miller

Keyword(s):

Rheumatic Disease ◽

Functional Disability ◽

Juvenile Rheumatic Disease ◽

Controlled Evaluation ◽

One Year

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A criança com doença falciforme e a família: revisão integrativa

Online Brazilian Journal of Nursing ◽

10.17665/1676-4285.20165289 ◽

2016 ◽

Vol 15 (2) ◽

Cited By ~ 1

Author(s):

Elaine Cristina Rodrigues Gesteira ◽

Regina Szylit Bousso ◽

Maira Deguer Misko ◽

Carolliny Rossi de Faria Ichikawa ◽

Patrícia Peres de Oliveira

Keyword(s):

Quality Of Life ◽

Sickle Cell Disease ◽

Sickle Cell ◽

Family Relations ◽

Scientific Evidence ◽

Cell Disease ◽

Psychosocial Effects ◽

The Family ◽

The Impact

Aim: To identify scientific evidence about families of children with sickle cell disease. Method: An integrative review of the search used the following descriptors: anemia sickle cell; hemoglobin SC disease; hemoglobin sickle; family; family relations; and, child. The search was carried out for literature in Portuguese, English, and Spanish. The search used databases such as MEDLINE, LILACS, CINAHL, and PubMed, and looked for articles published between January 2005 and January 2015. Results: There were 16 articles selected that originated the following thematic categories: the impact of sickle cell disease on the family, psychosocial effects on family dynamics, child's quality of life, and family and social support/support networks. Discussion: The studies report that the family remains the main provider of care for children with sickle cell disease, and that families faces challenges in achieving comprehensive care and fighting for their children’s quality of life. C onclusion: This evidence will provide support for multi-professional teams in the construction of continuous care for the families of children who are sickle cell patients.

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