Focused Query Expansion with Entity Cores for Patient-Centric Health Search

The Collaborative Network Approach: a model for advancing patient-centric research for Castleman disease and other rare diseases

Emerging Topics in Life Sciences ◽

10.1042/etls20180178 ◽

2019 ◽

Vol 3 (1) ◽

pp. 97-105

Author(s):

Mary Zuccato ◽

Dustin Shilling ◽

David C. Fajgenbaum

Keyword(s):

Rare Diseases ◽

Treatment Options ◽

Castleman Disease ◽

High Impact ◽

Collaborative Network ◽

Network Approach ◽

Grant Applications ◽

Research Questions ◽

Novel Strategy ◽

Patient Centric

Abstract There are ∼7000 rare diseases affecting 30 000 000 individuals in the U.S.A. 95% of these rare diseases do not have a single Food and Drug Administration-approved therapy. Relatively, limited progress has been made to develop new or repurpose existing therapies for these disorders, in part because traditional funding models are not as effective when applied to rare diseases. Due to the suboptimal research infrastructure and treatment options for Castleman disease, the Castleman Disease Collaborative Network (CDCN), founded in 2012, spearheaded a novel strategy for advancing biomedical research, the ‘Collaborative Network Approach’. At its heart, the Collaborative Network Approach leverages and integrates the entire community of stakeholders — patients, physicians and researchers — to identify and prioritize high-impact research questions. It then recruits the most qualified researchers to conduct these studies. In parallel, patients are empowered to fight back by supporting research through fundraising and providing their biospecimens and clinical data. This approach democratizes research, allowing the entire community to identify the most clinically relevant and pressing questions; any idea can be translated into a study rather than limiting research to the ideas proposed by researchers in grant applications. Preliminary results from the CDCN and other organizations that have followed its Collaborative Network Approach suggest that this model is generalizable across rare diseases.

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Much Ado About Fried Chicken: Abetting Aspiration or Respecting Autonomy?

American Journal of Speech-Language Pathology ◽

10.1044/2019_ajslp-18-0207 ◽

2019 ◽

Vol 28 (3) ◽

pp. 1356-1362

Author(s):

Laurence Tan Lean Chin ◽

Yu Jun Lim ◽

Wan Ling Choo

Keyword(s):

Palliative Care ◽

End Of Life ◽

Multidisciplinary Team ◽

Biopsychosocial Model ◽

Family Members ◽

Clinical Decisions ◽

Goals Of Care ◽

Complex Needs ◽

Aspiration Risk ◽

Patient Centric

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.

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Patient centric optimization of a successful soft mist inhaler

10.1055/s-0039-3403213 ◽

2020 ◽

Author(s):

M Meisenheimer ◽

S Kattenbeck ◽

M Frank ◽

A Gardev ◽

R Krampe ◽

...

Keyword(s):

Patient Centric

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Query expansion based on global dependency parsing analysis

Information Science and Management Engineering ◽

10.2495/isme131952 ◽

2013 ◽

Author(s):

Qinyuan Xiang ◽

Weijiang Li ◽

Hui Deng ◽

Feng Wang

Keyword(s):

Query Expansion ◽

Dependency Parsing

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High Capacity HPMC Sprinkle Hard Capsule for Patient Centric Medicines

10.26226/morressier.57d6b2bbd462b8028d88cb64 ◽

2016 ◽

Author(s):

Missy Lowery

Keyword(s):

High Capacity ◽

Patient Centric

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Service Gap In Hospital Industry- A Patient Centric Analysis

Restaurant Business ◽

10.26643/rb.v118i6.7240 ◽

2019 ◽

Vol 118 (6) ◽

pp. 80-89

Author(s):

T. Muthupandian ◽

A. Sabarirajan ◽

B. Arun ◽

P.S. Venkateswaran ◽

S. Manaimaran

Keyword(s):

Tamil Nadu ◽

Service Providers ◽

Hospital Industry ◽

Major Objective ◽

The People ◽

Coimbatore District ◽

Service Gap ◽

Very High ◽

Century Health ◽

Patient Centric

This paper is having a major objective of finding out the service gap in hospital industry – A patient centric analysis in Coimbatore District. In the 21st century, Health conscious is very high among the people in Tamil Nadu. Before fifty years, people have limited level of hospitals and other allied health services. But today, increases of public, private, corporate and municipal hospitals providing quality services. Hence patients are expecting high quality services from the service providers. The study reveals that services provided in the hospitals have a positive and strong effect on the satisfaction of the inpatients. But reliability is the factor the hospital administrations have to consider.

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