scholarly journals A Collaborative Patient-Carer Interface for Generating Home Based Rules for Self-Management

Author(s):  
Mark Beattie ◽  
Josef Hallberg ◽  
Chris Nugent ◽  
Kare Synnes ◽  
Ian Cleland ◽  
...  
Keyword(s):  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Connie Schumacher ◽  
Darly Dash ◽  
Fabrice Mowbray ◽  
Lindsay Klea ◽  
Andrew Costa

Abstract Background Home care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emergency department visits. The DIVERT-CARE trial introduced a cardio-respiratory management model to improve client motivation, symptoms and rates of unwarranted health service use. Our objective was to explore the perceptions and experiences of individuals who participated in the DIVERT-CARE self-management support and education intervention. Methods A qualitative study was nested within a pragmatic randomized control trial and conducted following a 15-week multi-component cardio-respiratory intervention. A phenomenological descriptive design was employed using thematic analysis. Post-intervention, clients and their caregivers were invited to participate in a semi-structured telephone interview. Interview questions were designed to elicit the experience with the intervention components. Results A total of 29 interviews were completed from June 2018 to March 2020 from participants in Ontario, Newfoundland, and British Columbia. Three themes were identified; self-care trajectory and burden of responsibility, learning and behaviour change, and feeling connected pre-emptively to care providers, the information and medical advice, and connection through the therapeutic relationship. Conclusions Home care clients experience unique challenges in managing cardio-respiratory related chronic disease. Home-based interventions fostered a therapeutic relationship of connectedness while equipping clients with necessary knowledge and skills. These results inform recommendations for community nursing, and home-based self-management supports for older community-residing individuals.


Author(s):  
Becky L. Faett ◽  
David M. Brienza ◽  
Mary Jo Geyer ◽  
Leslie A Hoffman

The purpose of this study was to evaluate the usability of telerehabilitation as a method of teaching self-management for chronic swelling of the lower limbs in persons with limited mobility. An in-home telerehabilitation self-management education protocol for chronic swelling of the lower limbs, termed Telerehabilitation to Empower You to Manage and Prevent Swelling (TR-PUMPS), was implemented using the Versatile and Integrated System for Telerehabilitation (VISYTER) software platform. Participants (n=11) were 36-79 years old, predominately female (72.7%) and diagnosed with a variety of health conditions. Participants’ perceived usability scores of the remote delivery of TR-PUMPS was high with a median score of 6.67 (range 4.90 - 7.00) on a Likert scale: 1= disagree to 7= agree. There was no correlation between participants’ familiarity with information technology and their perception of telerehabilitation usability. These results support telerehabilitation as a viable method for teaching a home-based, self-management


2005 ◽  
Vol 22 (3) ◽  
pp. 189-199 ◽  
Author(s):  
Arlene M. Butz ◽  
Laura Syron ◽  
Betty Johnson ◽  
Joanne Spaulding ◽  
Melissa Walker ◽  
...  

2016 ◽  
Vol 35 (3-4) ◽  
pp. 137-154
Author(s):  
Tim Pauley ◽  
Judith Gargaro ◽  
Glen Chenard ◽  
Helen Cavanagh ◽  
Sandra M. McKay

Medicine ◽  
2020 ◽  
Vol 99 (31) ◽  
pp. e20972
Author(s):  
Sisi Zhang ◽  
Congying Liang ◽  
Jingxian Zhang ◽  
Xue Yang ◽  
Xiaoping Meng

2016 ◽  
Vol 4 (6) ◽  
pp. 1123-1134.e27 ◽  
Author(s):  
Joy Hsu ◽  
Natalie Wilhelm ◽  
Lillianne Lewis ◽  
Elizabeth Herman

2014 ◽  
Vol 2 (2) ◽  
pp. 110-118 ◽  
Author(s):  
Fred Friedberg ◽  
Man Chi Ngan ◽  
Jeremy Chang

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