Early referral makes the decision-making about fertility preservation easier: a pilot survey study of young female cancer survivors

2014 ◽  
Vol 23 (6) ◽  
pp. 1663-1667 ◽  
Author(s):  
Jayeon Kim ◽  
Jennifer E. Mersereau
2020 ◽  
Vol 28 (10) ◽  
pp. 4857-4867 ◽  
Author(s):  
Catherine Benedict ◽  
Alexandria L. Hahn ◽  
Alyssa McCready ◽  
Joanne F. Kelvin ◽  
Michael Diefenbach ◽  
...  

Cancer ◽  
2016 ◽  
Vol 122 (13) ◽  
pp. 2101-2109 ◽  
Author(s):  
Catherine Benedict ◽  
Bridgette Thom ◽  
Danielle N. Friedman ◽  
Debbie Diotallevi ◽  
Elaine M. Pottenger ◽  
...  

2017 ◽  
Vol 44 (3) ◽  
pp. 175-180 ◽  
Author(s):  
Madleina Müller ◽  
Corinne Urech ◽  
Jacky Boivin ◽  
Verena Ehrbar ◽  
Rebecca Moffat ◽  
...  

BackgroundHealth professionals are challenged by a growing number of young long-term cancer survivors with their specific needs with regard to family planning. This study aimed at assessing decisional conflict (DC) in young female cancer patients regarding fertility preservation, identifying demographic, fertility and fertility preservation related factors, which may affect DC, and assessing the helpfulness of various decision-supports.MethodsA retrospective, cross-sectional, web-based survey via an online questionnaire available in three languages with specific items concerning cancer, fertility, fertility preservation and the validated Decisional Conflict Scale targeted at current or former female cancer patients aged 18–45 years, with cancer types or treatment potentially affecting reproductive function.ResultsThe 155 participating women showed considerable DC, especially with regard to missing information and support. DC was significantly lower in patients when the risk of infertility was discussed with a health professional, when they had undergone any procedure to preserve fertility, and when they had a university education. A longer time interval since cancer diagnosis was associated with higher DC. The most helpful decision-support tools were specialised websites and leaflets.ConclusionsYoung female cancer patients’ DC with regard to fertility preservation is very high. Information and support seem to be deficient. More information through standardised information tools might be an effective strategy to lower their DC at the time when treatment decisions need to be taken, and to improve their reproductive health after they have overcome cancer in the future.


2016 ◽  
Vol 31 (7) ◽  
pp. 1570-1578 ◽  
Author(s):  
S.C. Roberts ◽  
S.M. Seav ◽  
T.W. McDade ◽  
S.A. Dominick ◽  
J.R. Gorman ◽  
...  

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 114-114
Author(s):  
Andrea Michele Bradford ◽  
Laura Covarrubias ◽  
Leslie R. Schover ◽  
Terri Lynn Woodard

114 Background: Treatment-related infertility is a source of long-term psychological distress in cancer survivors, particularly among women. Decisions about fertility preservation (FP) are made under conditions of high stress and time pressure, which may contribute to the relatively low uptake of FP among women with cancer. Little is known about the effect of interventions to support the decision-making process and reduce fertility-related distress in cancer survivors considering FP. We describe the design and preliminary data from a randomized trial to determine whether incorporating psychological assessment and intervention into the standard FP consultation enhances satisfaction with decision-making and psychosocial outcomes. Methods: We developed a brief intervention for women referred to our institution’s oncofertility service for consideration of FP. The intervention focuses on values clarification for decision support, identification of unmet psychosocial needs, and mindfulness and acceptance-based skills. Participants were randomized to usual care (consultation with a reproductive endocrinologist and nurse) or the intervention (usual care plus a 1-hour visit with a psychologist and two follow-up calls). Outcomes included feasibility measures and measures of decisional conflict (Decisional Conflict Scale) and satisfaction with the FP program (Client Satisfaction Questionnaire-8). Results: All 14 participants randomized to date have completed baseline and 1-month assessments. The mean age was 32 (SD = 7.5, range 20-44), and the majority were nulliparous (n = 9, 64%). All 7 intervention participants completed at least 1 follow-up call, and 5 (71%) completed both follow-up calls. Across all participants, Decisional Conflict Scale scores decreased from baseline (M = 24.8, SD = 17.2) to 1 month (M = 22.2, SD = 16.3). Overall satisfaction with the program at 1 month was high (M = 29 out of a possible 32). Conclusions: Incorporating a psychological assessment and intervention into a standard FP consultation appears feasible and may improve levels of decisional conflict over time. Women appeared to find the intervention helpful when contemplating FP.


2010 ◽  
Vol 94 (4) ◽  
pp. S10 ◽  
Author(s):  
J.M. Letourneau ◽  
P.M. Katz ◽  
J.F. Smith ◽  
K. Oktay ◽  
M.I. Cedars ◽  
...  

2008 ◽  
Vol 14 (11) ◽  
pp. 1182-1184 ◽  
Author(s):  
Mats Brännström ◽  
Milan Milenkovic

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