Quality of life measurement in the palliative management of advanced cancer

2001 ◽  
Vol 9 (5) ◽  
pp. 361-365 ◽  
Author(s):  
Sinead Donnelly ◽  
Lisa Rybicki ◽  
Declan Walsh
Keyword(s):  
Quality Of Life ◽  
Advanced Cancer ◽  
Life Measurement ◽  
Quality Of Life Measurement

Quality-of-Life Measurement in Advanced Cancer: Assessing the Individual

1999 ◽  
Vol 17 (11) ◽  
pp. 3603-3611 ◽  
Author(s):  
Dympna Waldron ◽  
Ciaran A. O'Boyle ◽  
Michael Kearney ◽  
Michael Moriarty ◽  
Desmond Carney
Keyword(s):  
Quality Of Life ◽  
Advanced Cancer ◽  
Internal Validity ◽  
Semistructured Interview ◽  
Incurable Cancer ◽  
Life Measurement ◽  
The Difference ◽  
The Individual ◽  
Very High

PURPOSE: Despite the increasing importance of assessing quality of life (QoL) in patients with advanced cancer, relatively little is known about individual patient's perceptions of the issues contributing to their QoL. The Schedule for the Evaluation of Individual Quality of Life (SEIQoL) and the shorter SEIQoL–Direct Weighting (SEIQoL-DW) assess individualized QoL using a semistructured interview technique. Here we report findings from the first administration of the SEIQoL and SEIQoL-DW to patients with advanced incurable cancer. PATIENTS AND METHODS: QoL was assessed on a single occasion using the SEIQoL and SEIQoL-DW in 80 patients with advanced incurable cancer. RESULTS: All patients were able to complete the SEIQoL-DW, and 78% completed the SEIQoL. Of a possible score of 100, the median QoL global score was as follows: SEIQoL, 61 (range, 24 to 94); SEIQoL-DW, 60.5 (range, 6 to 95). Psychometric data for SEIQoL indicated very high levels of internal consistency (median r = .90) and internal validity (median R2 = 0.88). Patients' judgments of their QoL were unique to the individual. Family concerns were almost universally rated as more important than health, the difference being significant when measured using the SEIQoL-DW (P = .002). CONCLUSION: Patients with advanced incurable cancer were very good judges of their QoL, and many patients rated their QoL as good. Judgments were highly individual, with very high levels of consistency and validity. The primacy given to health in many QoL questionnaires may be questioned in this population. The implications of these findings are discussed with regard to clinical assessment and advance directives.

scholarly journals Assessing the Correlation Between Disease Severity Indices and Quality of Life Measurement Tools in Pemphigus

2019 ◽  
Vol 10 ◽  
Author(s):  
Rebecca L. Krain ◽  
Carolyn J. Kushner ◽  
Meera Tarazi ◽  
Rebecca G. Gaffney ◽  
Andrea C. Yeguez ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Disease Severity ◽  
Life Measurement ◽  
Measurement Tools ◽  
Quality Of Life Measurement

scholarly journals Health-related quality of life measurement in women with polycystic ovary syndrome: a systematic review

2007 ◽  
Vol 14 (1) ◽  
pp. 15-25 ◽  
Author(s):  
G.L. Jones ◽  
J.M. Hall ◽  
A.H. Balen ◽  
W.L. Ledger
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Polycystic Ovary ◽  
Health Related Quality ◽  
Ovary Syndrome ◽  
Life Measurement ◽  
Related Quality ◽  
Health Related ◽  
Quality Of Life Measurement

Validation of the first quality-of-life measurement for patients with Huntington’s disease

2012 ◽  
Vol 27 (4) ◽  
pp. 208-214 ◽  
Author(s):  
Emilie Clay ◽  
Annunziata De Nicola ◽  
Julie Dorey ◽  
Ferdinando Squitieri ◽  
Samuel Aballéa ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Huntington's Disease ◽  
Huntington’S Disease ◽  
Life Measurement ◽  
Quality Of Life Measurement
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