Caregiver Demand and Distress in Parents of Youth with Juvenile Rheumatic Diseases: Examining Illness Intrusiveness and Parenting Stress as Mediators

2016 ◽  
Vol 28 (6) ◽  
pp. 889-904 ◽  
Author(s):  
Kaitlyn L. Gamwell ◽  
Alexandria J. Mullins ◽  
Alayna P. Tackett ◽  
Kristina I. Suorsa ◽  
Larry L. Mullins ◽  
...  
Keyword(s):  
Parenting Stress ◽  
Rheumatic Diseases ◽  
Illness Intrusiveness ◽  
Caregiver Demand ◽  
Juvenile Rheumatic Diseases

Utility of the Illness Intrusiveness Scale in parents of children diagnosed with juvenile rheumatic diseases.

2012 ◽  
Vol 57 (1) ◽  
pp. 73-80 ◽  
Author(s):  
David A. Fedele ◽  
Jamie L. Ryan ◽  
Rachelle R. Ramsey ◽  
DeMond M. Grant ◽  
Margaret S. Bonner ◽  
...  
Keyword(s):  
Rheumatic Diseases ◽  
Illness Intrusiveness ◽  
Juvenile Rheumatic Diseases

scholarly journals Brief Report: Illness Intrusiveness and Adjustment among Native American and Caucasian Parents of Children with Juvenile Rheumatic Diseases

2007 ◽  
Vol 32 (10) ◽  
pp. 1259-1263 ◽  
Author(s):  
Nicole R. Andrews ◽  
John M. Chaney ◽  
Larry L. Mullins ◽  
Janelle L. Wagner ◽  
Kevin A. Hommel ◽  
...  
Keyword(s):  
Native American ◽  
Rheumatic Diseases ◽  
Illness Intrusiveness ◽  
Juvenile Rheumatic Diseases

Barriers to Care, Illness Intrusiveness, and Depressive Symptoms in Youth with Juvenile Rheumatic Diseases

2014 ◽  
Vol 43 (4) ◽  
pp. 293-307 ◽  
Author(s):  
Rachelle R. Ramsey ◽  
Christopher C. Cushing ◽  
Jamie L. Ryan ◽  
Stephen R. Gillaspy ◽  
Larry L. Mullins ◽  
...  
Keyword(s):  
Depressive Symptoms ◽  
Rheumatic Diseases ◽  
Barriers To Care ◽  
Illness Intrusiveness ◽  
Juvenile Rheumatic Diseases

The Association of Illness Uncertainty to Parent and Youth Adjustment in Juvenile Rheumatic Diseases: Effect of Youth Age

2011 ◽  
Vol 32 (5) ◽  
pp. 361-367 ◽  
Author(s):  
David A. Fedele ◽  
Rachelle R. Ramsey ◽  
Jamie L. Ryan ◽  
Margaret S. Bonner ◽  
Larry L. Mullins ◽  
...  
Keyword(s):  
Rheumatic Diseases ◽  
Illness Uncertainty ◽  
Youth Adjustment ◽  
Juvenile Rheumatic Diseases

Role for Leptin and Prolactin in Human Juvenile Rheumatic Diseases

2007 ◽  
Vol 10 (12) ◽  
pp. 1984-1989 ◽  
Author(s):  
Amany S.E. Elwakkad . ◽  
Reem Nabil Said . ◽  
Saadia Ibraheem Muha . ◽  
Maysa Tawheed Saleh . ◽  
Azza Elhamshary .
Keyword(s):  
Rheumatic Diseases ◽  
Juvenile Rheumatic Diseases

Genetics of juvenile rheumatic diseases

2015 ◽  
Author(s):  
Anne Hinks ◽  
Wendy Thomson
Keyword(s):  
Risk Factors ◽  
Rheumatic Diseases ◽  
Large Scale ◽  
Association Studies ◽  
Genetic Diseases ◽  
Response To Treatment ◽  
Genome Wide Association Studies ◽  
Established Risk Factor ◽  
Genome Wide ◽  
Juvenile Rheumatic Diseases

Juvenile rheumatic diseases are heterogeneous, complex genetic diseases; to date only juvenile idiopathic arthritis (JIA) has been extensively studied in terms of identifying genetic risk factors. The MHC region is a well-established risk factor but in the last few years candidate gene and large-scale genome-wide association studies have been utilized in the search for non-HLA risk factors. There are now 17 JIA susceptibility loci which reach the genome-wide significance threshold for association and a further 7 regions with evidence for association in more than one study. In addition, some subtype-specific associations are emerging. These risk loci now need to be investigated further using fine-mapping strategies and then appropriate functional studies to show how the variant alters the gene function. This knowledge will not only lead to a better understanding of disease pathogenesis for juvenile rheumatic diseases but may also aid in the classification of these heterogeneous diseases. It may identify new pathways for potential therapeutic targets and help in the prediction of disease outcome and response to treatment.

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