Young Adults’ Pre-Existing Knowledge of Cystic Fibrosis and Sickle Cell Diseases: Implications for Newborn Screening

2013 ◽  
Vol 23 (1) ◽  
pp. 121-130 ◽  
Author(s):  
Melissa Noke ◽  
Fiona Ulph
Keyword(s):  
Cystic Fibrosis ◽  
Young Adults ◽  
Newborn Screening ◽  
Sickle Cell

scholarly journals Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis

2009 ◽  
Vol 149A (11) ◽  
pp. 2424-2429 ◽  
Author(s):  
Colleen Walsh Lang ◽  
Alex P. Stark ◽  
Kruti Acharya ◽  
Lainie Friedman Ross
Keyword(s):  
Cystic Fibrosis ◽  
Sickle Cell Disease ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Maternal Knowledge ◽  
Cell Disease ◽  
Knowledge And Attitudes

scholarly journals A qualitative secondary evaluation of statewide follow-up interviews for abnormal newborn screening results for cystic fibrosis and sickle cell hemoglobinopathy

2012 ◽  
Vol 14 (2) ◽  
pp. 207-214 ◽  
Author(s):  
Alison La Pean ◽  
Jenelle L. Collins ◽  
Stephanie A. Christopher ◽  
Kerry L. Eskra ◽  
Sara J. Roedl ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Sickle Cell

scholarly journals Vulnerable Child Syndrome and Newborn Screening Carrier Results for Cystic Fibrosis or Sickle Cell

2020 ◽  
Vol 224 ◽  
pp. 44-50.e1
Author(s):  
Michael H. Farrell ◽  
Alexandra M. Sims ◽  
Alison La Pean Kirschner ◽  
Philip M. Farrell ◽  
Beth A. Tarini
Keyword(s):  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Vulnerable Child ◽  
Child Syndrome
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