Informing Children of Their Newborn Screening Carrier Result for Sickle Cell or Cystic Fibrosis: Qualitative Study of Parents’ Intentions, Views and Support Needs

2013 ◽  
Vol 23 (3) ◽  
pp. 409-420 ◽  
Author(s):  
Fiona Ulph ◽  
Tim Cullinan ◽  
Nadeem Qureshi ◽  
Joe Kai
Keyword(s):  
Cystic Fibrosis ◽  
Qualitative Study ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Support Needs

scholarly journals Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis

2009 ◽  
Vol 149A (11) ◽  
pp. 2424-2429 ◽  
Author(s):  
Colleen Walsh Lang ◽  
Alex P. Stark ◽  
Kruti Acharya ◽  
Lainie Friedman Ross
Keyword(s):  
Cystic Fibrosis ◽  
Sickle Cell Disease ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Maternal Knowledge ◽  
Cell Disease ◽  
Knowledge And Attitudes

scholarly journals Understanding sickle cell carrier status identified through newborn screening: a qualitative study

2009 ◽  
Vol 18 (3) ◽  
pp. 303-308 ◽  
Author(s):  
Fiona A Miller ◽  
Martha Paynter ◽  
Robin Z Hayeems ◽  
Julian Little ◽  
June C Carroll ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Carrier Status ◽  
Cell Carrier

scholarly journals A qualitative secondary evaluation of statewide follow-up interviews for abnormal newborn screening results for cystic fibrosis and sickle cell hemoglobinopathy

2012 ◽  
Vol 14 (2) ◽  
pp. 207-214 ◽  
Author(s):  
Alison La Pean ◽  
Jenelle L. Collins ◽  
Stephanie A. Christopher ◽  
Kerry L. Eskra ◽  
Sara J. Roedl ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Sickle Cell
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