scholarly journals Factors that influence parents’ experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy

2013 ◽  
Vol 90 (3) ◽  
pp. 378-385 ◽  
Author(s):  
Jenelle L. Collins ◽  
Alison La Pean ◽  
Faith O’Tool ◽  
Kerry L. Eskra ◽  
Sara J. Roedl ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Carrier Status ◽  
Results Disclosure ◽  
Parents Experiences

scholarly journals Parents’ Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease

2016 ◽  
Vol 25 (6) ◽  
pp. 1215-1226 ◽  
Author(s):  
Jane Chudleigh ◽  
Sarah Buckingham ◽  
Jo Dignan ◽  
Sandra O’Driscoll ◽  
Kemi Johnson ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Sickle Cell Disease ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Cell Disease ◽  
Parents Experiences

scholarly journals Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis

2009 ◽  
Vol 149A (11) ◽  
pp. 2424-2429 ◽  
Author(s):  
Colleen Walsh Lang ◽  
Alex P. Stark ◽  
Kruti Acharya ◽  
Lainie Friedman Ross
Keyword(s):  
Cystic Fibrosis ◽  
Sickle Cell Disease ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Maternal Knowledge ◽  
Cell Disease ◽  
Knowledge And Attitudes

scholarly journals Understanding sickle cell carrier status identified through newborn screening: a qualitative study

2009 ◽  
Vol 18 (3) ◽  
pp. 303-308 ◽  
Author(s):  
Fiona A Miller ◽  
Martha Paynter ◽  
Robin Z Hayeems ◽  
Julian Little ◽  
June C Carroll ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Newborn Screening ◽  
Sickle Cell ◽  
Carrier Status ◽  
Cell Carrier
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