Finding Our Roots: Early Population-Based Cancer Registration, 1925

2021 ◽  
Author(s):  
David E. Lilienfeld
Keyword(s):  
Population Based ◽  
Cancer Registration

scholarly journals Challenges to Promoting Population-Based Cancer Registration in Iran: a Workshop Report

2013 ◽  
Vol 14 (10) ◽  
pp. 6189-6193 ◽  
Author(s):  
Maryam Hadji ◽  
Azin Nahvijou ◽  
Zahra Seddighi ◽  
Omid Beiki ◽  
Mohammad Ali Mohagheghi ◽  
...  
Keyword(s):  
Population Based ◽  
Cancer Registration ◽  
Workshop Report

scholarly journals 20-Years of Population-Based Cancer Registration in Hepatitis B and Liver Cancer Prevention in The Gambia, West Africa

PLoS ONE ◽  
2013 ◽  
Vol 8 (9) ◽  
pp. e75775 ◽  
Author(s):  
Ebrima Bah ◽  
Maria Patrizia Carrieri ◽  
Pierre Hainaut ◽  
Yusupha Bah ◽  
Ousman Nyan ◽  
...  
Keyword(s):  
Liver Cancer ◽  
Hepatitis B ◽  
West Africa ◽  
Cancer Prevention ◽  
Population Based ◽  
The Gambia ◽  
Cancer Registration ◽  
Liver Cancer Prevention

Incidence and survival of gliomatosis cerebri: a population-based cancer registration study

2018 ◽  
Vol 138 (2) ◽  
pp. 341-349 ◽  
Author(s):  
Marios K. Georgakis ◽  
Dimitrios Spinos ◽  
Apostolos Pourtsidis ◽  
Amanda Psyrri ◽  
Ioannis G. Panourias ◽  
...  
Keyword(s):  
Gliomatosis Cerebri ◽  
Population Based ◽  
Cancer Registration

scholarly journals Increase in Female Liver Cancer in The Gambia, West Africa: Evidence from 19 Years of Population-Based Cancer Registration (1988–2006)

PLoS ONE ◽  
2011 ◽  
Vol 6 (4) ◽  
pp. e18415 ◽  
Author(s):  
Dominique Sighoko ◽  
Maria Paula Curado ◽  
Denis Bourgeois ◽  
Maimuna Mendy ◽  
Pierre Hainaut ◽  
...  
Keyword(s):  
Liver Cancer ◽  
West Africa ◽  
Population Based ◽  
The Gambia ◽  
Cancer Registration

scholarly journals Development of a National Cancer Registry in a Low Resourced Country: The Case of Kenya National Cancer Registry Programme

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 216s-216s
Author(s):  
A. Korir ◽  
R. Gakunga ◽  
N. Okerosi ◽  
A. Karagu ◽  
N. Buziba ◽  
...  
Keyword(s):  
Cancer Registry ◽  
Hpv Vaccination ◽  
Cancer Registries ◽  
Population Based ◽  
National Registry ◽  
Cancer Registration ◽  
National Cancer Registry ◽  
Background Population ◽  
Geographical Regions ◽  
Entire Country

Background: Population-based cancer registration represents the gold standard for the provision of information on cancer incidence in a defined population (Bray F, et. al, IARC Technical Report No. 43). In Kenya, the incidence and prevalence of cancer has not been well documented. The existing population-based cancer registries (PBCRs) cover less than 10% of Kenya's population. Kenya is made up of 47 administrative counties and has a population of over 45 million people. Aim: To establish a National Cancer Registry Program that will compile national data on incidence, mortality and trends of cancer in Kenya over time. Methods: Three functional PBCRs have been in existence covering 3 counties: Nairobi, Eldoret and Kisumu. Needs assessment was conducted in the 3 registries. Additional support and resources were provided. New registries were set up in different geographical regions of Kenya. A centralized office to host the national registry was established and equipped at the Centre for Clinical Research, Kenya Medical Research Institute. Sensitization and awareness activities targeting the leaders in the selected counties were undertaken. Similarly trainings and technical support of the regional registries were conducted. Data were collected on to case registration forms, coded using the International Classification of Diseases for Oncology (ICD-O); data entry, validation and analysis done using IARC software CanReg5. Results: Variations in cancer occurrence in the different counties were noted. However the leading cancers were somewhat similar in the 8 counties with prostate and esophageal cancers being the leading in men while breast and cervical cancer being top among women. These variations could provide understanding on causation of certain types of cancers. Data highlights the need to develop and expand intervention programs like HPV vaccination, screenings, early detection and early treatment. Governments' allocation of resources to cancer registries and surveillance programs is important as well as building partnerships. Conclusion: In countries with limited resources it is expensive to develop a national cancer registry covering the entire country. Our program demonstrates that a national cancer registry program can be established by setting up regional population-based cancer registries that covers a reasonable population of the entire country and aggregating the data in a centralized system. Population-based cancer registries are critical in generating data on burden of cancer in specified populations. These data should be used to inform effective cancer control programs and research.

scholarly journals Cancer Registration in the Middle East, North Africa, and Turkey: Scope and Challenges

2021 ◽  
pp. 1101-1109
Author(s):  
Zahi Abdul-Sater ◽  
Ali Shamseddine ◽  
Ali Taher ◽  
Fouad Fouad ◽  
Ghassan Abu-Sitta ◽  
...  
Keyword(s):  
Middle East ◽  
Cancer Registry ◽  
North Africa ◽  
Online Survey ◽  
Control Strategies ◽  
Cancer Control ◽  
Population Based ◽  
Cancer Registration ◽  
Middle Income ◽  
Conflict Zones

PURPOSE National cancer control strategies have been identified as essential tools for reducing and managing the growing burden of cancer in low- and middle-income countries. Cancer registration is an instrumental component of any cancer control strategy, providing the data to inform effective cancer policy. In the Middle East, North Africa, and Turkey (MENAT) region, cancer registration varies immensely and faces multifaceted challenges including protracted conflict. This study investigates and maps out the present capacities and outputs of cancer registration in the MENAT region and identifies thematic barriers facing implementation and utilization of cancer registry data. MATERIALS AND METHODS We used a self-administered online survey with open and close-ended questions targeting national and institutional cancer registry managers in the MENAT countries. RESULTS Registry managers from 19 MENAT countries reported the presence of 97 population-based, 48 hospital-based, and 24 pathology-based registries. Most population-based registries were well- or partially developed. Lack of accurate death records, complete medical records, and communication between stakeholders and deficiencies in trained personnel were critical challenges that were more severe in active conflict zones and neighboring conflict-affected regions. Cancer registration challenges included weak health infrastructure, absence of legislation mandating cancer registration, and disruption of cancer registration because of active conflict and loss of funding. Refugee host countries, such as Lebanon, Turkey, and Jordan, also reported conflict-related challenges including refugee mobility and lack of accurate data on forced migrants. CONCLUSION This study provides a much-needed understanding of the current landscape and contextual challenges affecting cancer registration in the MENAT. These data are important for identifying areas on which to focus regional capacity-strengthening initiatives.

scholarly journals Exploring the impact of cancer registry completeness on international cancer survival differences: a simulation study

2020 ◽  
Author(s):  
Therese M.-L. Andersson ◽  
Mark J. Rutherford ◽  
Tor Åge Myklebust ◽  
Bjørn Møller ◽  
Isabelle Soerjomataram ◽  
...  
Keyword(s):  
Cancer Survival ◽  
Cancer Registries ◽  
Population Based ◽  
Cancer Registration ◽  
Death Certificates ◽  
International Partnership ◽  
Impact On Survival ◽  
Survival Differences ◽  
The Impact

Abstract Background Data from population-based cancer registries are often used to compare cancer survival between countries or regions. The ICBP SURVMARK-2 study is an international partnership aiming to quantify and explore the reasons behind survival differences across high-income countries. However, the magnitude and relevance of differences in cancer survival between countries have been questioned, as it is argued that observed survival variations may be explained, at least in part, by differences in cancer registration practice, completeness and the availability and quality of the respective data sources. Methods As part of the ICBP SURVMARK-2 study, we used a simulation approach to better understand how differences in completeness, the characteristics of those missed and inclusion of cases found from death certificates can impact on cancer survival estimates. Results Bias in 1- and 5-year net survival estimates for 216 simulated scenarios is presented. Out of the investigated factors, the proportion of cases not registered through sources other than death certificates, had the largest impact on survival estimates. Conclusion Our results show that the differences in registration practice between participating countries could in our most extreme scenarios explain only a part of the largest observed differences in cancer survival.

Pseudonyms for Cancer Registries

1996 ◽  
Vol 35 (02) ◽  
pp. 112-121 ◽  
Author(s):  
M. Miller ◽  
I. Schmidtmann ◽  
J. Michaelis ◽  
K. Pommerening
Keyword(s):  
Pilot Study ◽  
Data Storage ◽  
Data Privacy ◽  
Cancer Registries ◽  
Population Based ◽  
Error Rates ◽  
Cancer Registration ◽  
Privacy And Security ◽  
Permanent Storage ◽  
German Legislation

AbstractIn order to conform to the rigid German legislation on data privacy and security we developed a new concept of data flow and data storage for population-based cancer registries. A special trusted office generates a pseudonym for each case by a cryptographic procedure. This office also handles the notification of cases and communicates with the reporting physicians. It passes pseudonymous records to the registration office for permanent storage. The registration office links the records according to the pseudonyms. Starting from a requirements analysis we show how to construct the pseudonyms; we then show that they meet the requirements. We discuss how the pseudonyms have to be protected by cryptographic and organizational means. A pilot study showed that the proposed procedure gives acceptable synonym and homonym error rates. The methods described are not restricted to cancer registration and may serve as a model for comparable applications in medical informatics.

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