Involvement of Specialist Paediatric Palliative Care (SPPC) in Children With Severe Congenital Heart Disease (CHD) at an Australian Tertiary Paediatric Hospital: An 11-year Retrospective Study

2021 ◽  
Vol 30 ◽  
pp. S265
Author(s):  
M. Chow
Keyword(s):  
Palliative Care ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Retrospective Study ◽  
Congenital Heart ◽  
Paediatric Hospital ◽  
Paediatric Palliative Care ◽  
Severe Congenital Heart Disease

scholarly journals The importance of early involvement of paediatric palliative care for patients with severe congenital heart disease

2016 ◽  
Vol 101 (10) ◽  
pp. 984-987 ◽  
Author(s):  
Sophie Bertaud ◽  
David F A Lloyd ◽  
Joanna Laddie ◽  
Reza Razavi
Keyword(s):  
Palliative Care ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Symptom Control ◽  
Premature Death ◽  
Fully Integrated ◽  
Disease Trajectory ◽  
Paediatric Palliative Care ◽  
Severe Congenital Heart Disease

Growing numbers of patients with severe congenital heart disease (CHD) are surviving into late childhood and beyond. This increasingly complex patient group may experience multiple formidable and precarious interventions, lifelong morbidity and the very real risk of premature death on many occasions throughout their childhood. In this paper, we discuss the advantages of a fully integrated palliative care ethos in patients with CHD, offering the potential for improved symptom control, more informed decision-making and enhanced support for patients and their families throughout their disease trajectory. These core principles may be delivered alongside expert cardiac care via non-specialists within pre-existing networks or via specialists in paediatric palliative care when appropriate. By broaching these complex issues early—even from the point of diagnosis—an individualised set of values can be established around not just end-of-life but also quality-of-life decisions, with clear benefits for patients and their families regardless of outcome.

scholarly journals Neuroprotective Drugs in Infants With Severe Congenital Heart Disease: A Systematic Review

2018 ◽  
Vol 9 ◽  
Author(s):  
Raymond Stegeman ◽  
Kaya D. Lamur ◽  
Agnes van den Hoogen ◽  
Johannes M. P. J. Breur ◽  
Floris Groenendaal ◽  
...  
Keyword(s):  
Systematic Review ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Neuroprotective Drugs ◽  
Severe Congenital Heart Disease

scholarly journals Congenital Heart Disease-A Retrospective Study of 156 Cases in Senegal

2020 ◽  
Vol 04 (04) ◽  
Author(s):  
Idrissa Basse ◽  
Amadou L Fall ◽  
Amadou Sow ◽  
Mouhamed C Léye ◽  
Alain Affangla ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Retrospective Study ◽  
Congenital Heart

A retrospective study of judicial encounters of young adults with congenital heart disease

2016 ◽  
Vol 21 (10) ◽  
pp. 2409-2419 ◽  
Author(s):  
Theresa M Malpas ◽  
Susan M George ◽  
Jillian M Kaisar ◽  
Dorothy J Radford
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Retrospective Study ◽  
Congenital Heart
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