scholarly journals Capturing the Costs of End-of-Life Care: Comparisons of Multiple Sclerosis, Parkinson's Disease, and Dementia

2009 ◽  
Vol 38 (1) ◽  
pp. 62-67 ◽  
Author(s):  
Paul McCrone
Keyword(s):  
Multiple Sclerosis ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

scholarly journals 39 * END OF LIFE CARE IN PARKINSON'S DISEASE - ARE WE GETTING IT RIGHT?

2015 ◽  
Vol 44 (suppl 1) ◽  
pp. i9-i9
Author(s):  
Z. Muir ◽  
L. White ◽  
K. Hood ◽  
A. L. Cunnington
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

Rotigotine patch prescription in inpatients with Parkinson’s disease: evaluating prescription accuracy, delirium and end-of-life use

2020 ◽  
Author(s):  
Hussein Ibrahim ◽  
Zoe Woodward ◽  
Jennifer Pooley ◽  
Edward William Richfield
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Dopamine Agonist ◽  
End Of Life ◽  
Gold Standard ◽  
End Of Life Care ◽  
Life Care ◽  
Dopaminergic Medication ◽  
Rotigotine Patch ◽  
Inpatient Population

Abstract Background Rotigotine patch, a trans-dermal dopamine agonist, is used acutely to replace oral dopaminergic medications for inpatients with Parkinson’s disease where enteral routes are no longer available, and is also an option in end-of-life care where patients can no longer swallow. Concerns regarding acute use of Rotigotine include difficulty achieving dopaminergic equivalence, promotion of delirium/hallucinations and promotion of terminal agitation. Objective our objectives were to establish: (i) accuracy of Rotigotine prescribing, (ii) rates of delirium/hallucinations and (iii) rates of terminal agitation. Method we retrospectively evaluated the use of Rotigotine in an inpatient population at a UK teaching hospital. Prescriptions between January 2018 and July 2019 were identified and inpatient records were analysed. OPTIMAL Calculator 2 was used as a gold standard for assessing conversion of oral dopaminergic medication to Rotigotine. Results a total of 84 inpatients were included. 25 (30%) patients were prescribed the recommended dose of Rotigotine; 31 (37%) higher and 28 (33%) lower than recommended. A total of 15 of 41 (37%) patients with dementia and 22 of 49 (45%) patients with delirium before initiation of Rotigotine inappropriately received the higher dose; 20 (24%) patients developed new/worsening delirium and 8 (10%) patients developed new/worsening hallucinations; and 59 (70%) patients were dead at time of evaluation, of these 40 (68%) died in hospital, 10 (25%) of whom experienced terminal agitation. Conclusions acute conversion of oral dopaminergic medication to trans-dermal Rotigotine patch remains problematic despite the availability of validated tools. Inappropriate dosing may precipitate or worsen delirium/hallucinations. Use at end-of-life requires further evaluation.

End-of-life care in multiple sclerosis

2021 ◽  
Vol 17 (4) ◽  
pp. 170-170
Author(s):  
Megan Roberts
Keyword(s):  
Multiple Sclerosis ◽  
Palliative Care ◽  
End Of Life ◽  
Health Professionals ◽  
End Of Life Care ◽  
Resource Constraints ◽  
Life Care

Palliative care is an aspect of the support needed by those living with multiple sclerosis and their loved ones that is often overlooked, due to resource constraints and lack of awareness. Megan Roberts outlines the ways in which health professionals can support their patients at the end of life, signposting to helpful resources.

Poster 207: End-of-Life Care for Persons with Multiple Sclerosis

PM&R ◽  
2009 ◽  
Vol 1 ◽  
pp. S193-S194
Author(s):  
Jennifer M. Zumsteg ◽  
Jodie K. Haselkorn ◽  
Amy Poel
Keyword(s):  
Multiple Sclerosis ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

Dysphagia in Hospice Care: The Roles of Social Work and Speech-Language Pathologists

2014 ◽  
Vol 23 (4) ◽  
pp. 173-186 ◽  
Author(s):  
Deborah Hinson ◽  
Aaron J. Goldsmith ◽  
Joseph Murray
Keyword(s):  
Social Work ◽  
End Of Life ◽  
Case Studies ◽  
End Of Life Care ◽  
Hospice Care ◽  
Patient Communication ◽  
Life Care ◽  
Speech Language Pathologists ◽  
Four Levels

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.

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