scholarly journals Fr508 TRANSITION TO HOME INFUSION FOR PATIENTS WITH INFLAMMATORY BOWEL DISEASE DURING CORONAVIRUS DISEASE 2019 PANDEMIC: PATIENT SATISFACTION SURVEY

2021 ◽  
Vol 160 (6) ◽  
pp. S-337-S-338
Author(s):  
Ravi Teja Pasam ◽  
Salini Samyuktha Gadupudi ◽  
Adel Farhoud ◽  
Laurie B. Grossberg ◽  
Randall Pellish ◽  
...  
2021 ◽  
Vol 4 (Supplement_1) ◽  
pp. 56-57
Author(s):  
M Painchaud ◽  
S Singh ◽  
R M Penner

Abstract Background Due to the COVID-19 pandemic, clinics were forced to implement telehealth into clinical practice. Inflammatory bowel disease (IBD) patients are a unique population that require long-term care to achieve and maintain deep remission of disease. Thus, they require stable and continuous contact with healthcare providers, often with multiple appointments. We examined an IBD predominant practice, also providing care for general gastrointestinal (GI) conditions in Kelowna, British Columbia. As telehealth has the potential to become a standard of care for clinics, patient satisfaction must be considered. We hypothesize that with the efficacy and ease of remote appointments, there will be an increase in patient satisfaction, quality of care, and quality of communication. Aims We aim to compare the level of patient satisfaction between in-person appointments pre-pandemic, and current remote appointment telehealth practices. Methods An online survey was sent to the 608 patients who had participated in one or more remote appointment between March 15-June 15, 2020. The survey compared the level of patient satisfaction, quality of care, and quality of communication between patient and doctor before and during the pandemic. It was also determined if patients would elect to continue with remote appointments in the future due to ease of use, and time/financial resources saved. Results Of the 273 participants, 80% were IBD patients while 20% were treated for other GI conditions. A total of 78% reported that they would elect to continue with remote appointments as their primary point of care with their doctor. The remaining 22% reported that they prefer in-person visits due to the necessity of a physical exam, yet specified that communication by these remote means was still of good quality. Levels of patient satisfaction before and during the pandemic remained consistent, where 59% of patients assigned a satisfaction rating of 10 (highest) to their pre-pandemic in-person appointments, and 54% of patients assigned a rating of 10 to their remote appointments during the pandemic. Similar consistent results were found for quality of care and quality of communication. A total of 70% of patients reported that if this service had not been available, they would have sought out other forms of care; 18% of the total responses considering emergency care. Conclusions IBD patients at Kelowna Gastroenterology perceived similar levels of satisfaction, quality of care, and quality of communication with both in-person and telehealth appointments. This suggests that telehealth practices may be a cost-effective, sustainable appointment style that provides comparable quality to in-person appointments. Funding Agencies None


2021 ◽  
Vol 27 (1) ◽  
pp. 26-31
Author(s):  
Sonia Bouri ◽  
Jean-Frédéric LeBlanc ◽  
Ravi Misra ◽  
Nikolaos Kamperidis ◽  
Gabriela Poufou ◽  
...  

Background/Aims During the COVID-19 pandemic, inflammatory bowel disease clinics were converted to telephone clinics at St. Mark's Hospital in Harrow. This study assessed the response of patients and clinicians to remote telemedicine services, with the view of establishing whether there was scope for increasing the role of remote services in the inflammatory bowel disease clinics. Methods Clinicians administered a questionnaire to patients at the end of their appointments regarding their opinions on the telephone clinic format. Eleven questions used a 5-point Likert scale while a further three questions asked the patient for their comments on future clinics. Clinicians provided information about the patients' condition and management, as well as their own comments. Results Overall satisfaction with telephone clinics was found to be high among patients and clinicans, with many feeling that telephone clinics were more convenient. In total, 94.3% of patients said they would prefer either all telephone or a mix of phone and face-to-face clinics in the future. However, some patients felt that it was more complicated to have blood or stool tests done and roughly a quarter of patients were concerned that something could be missed without a physical examination. Conclusions High patient satisfaction can be achieved by delivering a mix of telephone, video and face-to-face clinics. In certain clinical situations, face-to-face clinics would be appropriate, such as patients with active diseases and first appointments. The pandemic is an opportunity respond to patients' preferences by increasing the range of remote care options.


2015 ◽  
Vol 27 (8) ◽  
pp. 941-950 ◽  
Author(s):  
João-Bruno Soares ◽  
Ana S. Marinho ◽  
Dália Fernandes ◽  
Bruno Moreira Gonçalves ◽  
Cláudia Camila-Dias ◽  
...  

2005 ◽  
Vol 19 (4) ◽  
pp. 235-244 ◽  
Author(s):  
Barbara M Waters ◽  
Louise Jensen ◽  
Richard N Fedorak

BACKGROUND: Patients with inflammatory bowel disease (IBD) suffer physical dysfunction and impaired quality of life (QOL), and need frequent health care. They often lack knowledge about their disease and desire more education. Educational interventions for other chronic diseases have demonstrated reduced health care use and increased knowledge, medication adherence and QOL.METHOD: Sixty-nine participants were randomly assigned to formal IBD education and standard of care (pamphlets and ad hoc physician education) or standard of care alone. Assessment of IBD knowledge and QOL occurred at baseline, immediately posteducation and eight weeks posteducation. Participants documented medication adherence and health care use in diaries. Patient satisfaction was assessed at the end of the study.RESULTS: The education group had higher knowledge scores (P=0.000), perceived knowledge ratings (P=0.01) and patient satisfaction (P=0.001). There was a lower rate of medication nonadherence and health care use for the education group, but the differences were not significant. QOL indices did not change. Significant correlations were found for increased health care use in patients with poorer medication adherence (P=0.01) and lower perceived health (P=0.05).CONCLUSION: Formal IBD patient education improves knowledge, perceived knowledge and patient satisfaction. Further study of long-term effects may better demonstrate potential benefits for QOL, medication adherence and health care use.


2021 ◽  
Vol 27 (Supplement_1) ◽  
pp. S48-S49
Author(s):  
Afsoon Ghafari-Saravi ◽  
Shervin Rabizadeh ◽  
Alan Dubovsky ◽  
Shaun Miller ◽  
Gil Melmed ◽  
...  

Abstract Introduction Due to COVID-19, traditional inflammatory bowel disease (IBD) patient and provider office-based interactions have shifted to telemedicine platforms to address the ongoing healthcare needs of this population. As telehealth services continue to expand, a better understanding of patient satisfaction is required in order to optimize the patient experience for IBD patients. Methods We analyzed patient satisfaction data from a metropolitan tertiary hospital’s IBD outpatient clinic. Three questions were compared between in-person and virtual visits: “Did this provider listen carefully to you?”, “Did this provider seem to know the important information about your medical history?”, and “Using any number from 0 to 10, where 0 is the worst provider possible and 10 is the best provider possible, what number would you rate this provider?” We performed Fisher’s exact tests to analyze differences in top-box satisfaction scores between in-person and virtual visits. A qualitative analysis of open-ended questions was performed to identify key satisfaction themes. Results We collected satisfaction data from 309 in-person medical visits and 202 telehealth visits. Top-box satisfaction scores for provider listening and provider medical history decreased overall from in-person to virtual visits, while overall provider ratings remained the same (Figure 1). Decreases were larger among males than among females for both provider listening and provider knowledge (Table 1). After excluding patients who reported problems with the video connection or video quality, no statistically significant changes in top-box scores were found between in-person and telehealth visits (Figure 1). Open-ended answers where overwhelmingly positive, but care coordination issues and technical problems were perceived as barriers. Discussion We identified a decrease in patient satisfaction with telehealth visits compared to in-person visits, particularly among males. This decrease was not observed after adjusting for those experiencing technical issues with their visit. Efforts to improve telehealth technology platforms, patient preparation for telehealth visits, and provider education regarding handling technology glitches during a visit may help improve overall patient satisfaction with virtual IBD visits.


2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S406-S406
Author(s):  
T De Somer ◽  
N Deprez ◽  
D Baert ◽  
M Deceuninck ◽  
I Huys ◽  
...  

Abstract Background SB5 is approved as a biosimilar of the adalimumab originator. However, data on patient acceptance of switch from originator to biosimilar, patient satisfaction, adverse events and nocebo effects are lacking, especially in the inflammatory bowel disease (IBD) population. We sought to elucidate these issues in a real-life switch IBD population. Methods IBD patients, in clinical remission or stable response, treated with adalimumab originator in 2 Belgian centers were offered to participate in this phase IV, interventional trial. Switch was voluntary and was offered after being informed about biosimilars. Satisfaction with the switch and local discomfort after injection (within and after 30 minutes) was semi-quantitatively (visual analogue scales (VAS)) assessed at baseline and 8 weeks, 6 months and 12 months after switch. Reasons for non-switch, discontinuation and adverse events were documented. Results An acceptance of switch rate of 79.3% was observed. Fifteen patients reported 22 reasons for refusal; the most common were fear for a flare (n = 8), ease to stay on the originator (n = 4) and absence of trust in biosimilars (n = 3). No patient-related demographic factors associated with refusal of switch could be defined. By month 12, 28 patients discontinued SB5 for several reasons; the most frequent being high anti-adalimumab antibodies at baseline (n = 5), secondary loss of response (n = 3), injection site pain (ISP) (n = 8) and other adverse events (n = 10) not causally related to SB5. At month 12 after switch, 74.5% of the study population was still treated with SB5 (table 1). The median VAS for local discomfort up to 30 minutes after injection of the originator was 1/10 and increased significantly to values between 2 and 3/10 at the different time points on SB5 (p < 0.001 for all) (table 2). However, the median VAS for local discomfort after 30 minutes was between 0 and 1/10 at all time points, which was not significantly different compared to the originator. Nevertheless, satisfaction with the decision to switch was high and remained stable over the different time points with a median VAS between 7 and 8/10, which was not significantly different compared to baseline. Conclusion After being well informed, the great majority of patients treated with adalimumab originator is willing to switch to biosimilar SB5. The rate of satisfaction under treatment with SB5 is high and remains stable over time. The most important reasons for discontinuation were adverse events, which could be mostly attributed to the nocebo effect and to ISP. Of note, patients in general report a higher, temporary, local discomfort within 30 minutes after injection with SB5.


2021 ◽  
Vol 53 ◽  
pp. S154
Author(s):  
A. Todeschini ◽  
A. Contaldo ◽  
I. Lacavalla ◽  
E. Ierardi ◽  
A. Di Leo ◽  
...  

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