scholarly journals End-of-Life Decisions and Advance Directives in Palliative Care

1998 ◽  
Vol 16 (3) ◽  
pp. 153-162 ◽  
Author(s):  
Raymond Voltz ◽  
Akira Akabayashi ◽  
Carol Reese ◽  
Gen Ohi ◽  
Hans-Martin Sass
2007 ◽  
Vol 24 (4) ◽  
pp. 300-307 ◽  
Author(s):  
Ellen W. Bernal ◽  
Catherine A. Marco ◽  
Sue Parkins ◽  
Nancy Buderer ◽  
Sister Dorothy Thum

2021 ◽  
Author(s):  
Matthias Huemer ◽  
Daniela Jahn-Kuch ◽  
Guenter Hofmann ◽  
Elisabeth Andritsch ◽  
Clemens Farkas ◽  
...  

BACKGROUND End-of-life decisions, specifically the provision of euthanasia and assisted suicide services, challenge traditional medical and ethical principles. Austria and Germany have decided to liberalize their laws restricting assisted suicide, thus reigniting the debate about a meaningful framework in which the practice should be embedded. Evidence of the relevance of assisted suicide and euthanasia for the general population in Germany and Austria is limited. OBJECTIVE The aim of this study is to examine whether the public awareness documented by search activities in the most frequently used search engine, Google, on the topics of <i>palliative care, euthanasia</i>, and <i>advance health care directives</i> changed with the implementation of palliative care services and new governmental regulations concerning end-of-life decisions. METHODS We searched for policies, laws, and regulations promulgated or amended in Austria, Germany, and Switzerland between 2004 and 2020 and extracted data on the search volume for each search term topic from Google Trends as a surrogate of public awareness and interest. Annual averages were analyzed using the Joinpoint Regression Program. RESULTS Important policy changes yielded significant changes in search trends for the investigated topics. The enactment of laws regulating advance health care directives coincided with a significant drop in the volume of searches for the topic of euthanasia in all 3 countries (Austria: −24.48%, <i>P</i>=.02; Germany: −14.95%, <i>P</i><.001; Switzerland: −11.75%, <i>P</i>=.049). Interest in palliative care increased with the availability of care services and the implementation of laws and policies to promote palliative care (Austria: 22.69%, <i>P</i>=.01; Germany: 14.39, <i>P</i><.001; Switzerland: 17.59%, <i>P</i><.001). The search trends for advance health care directives showed mixed results. While interest remained steady in Austria within the study period, it increased by 3.66% (<i>P</i><.001) in Switzerland and decreased by 2.85% (<i>P</i><.001) in Germany. CONCLUSIONS Our results demonstrate that legal measures securing patients’ autonomy at the end of life may lower the search activities for topics related to euthanasia and assisted suicide. Palliative care may be a meaningful way to raise awareness of the different options for end-of-life care and to guide patients in their decision-making process regarding the same.


2019 ◽  
Vol 33 (7) ◽  
pp. 783-792 ◽  
Author(s):  
Monica Fliedner ◽  
Sofia Zambrano ◽  
Jos MGA Schols ◽  
Marie Bakitas ◽  
Christa Lohrmann ◽  
...  

Background: Intervention trials confirm that patients with advanced cancer receiving early palliative care experience a better quality of life and show improved knowledge about and use of palliative care services. To involve patients in future health-care decisions, health professionals should understand patients’ perspectives. However, little is known about how patients’ experience such interventions. Aim: To explore advanced cancer patients’ experiences with a structured early palliative care intervention, its acceptability and impact on the patients’ life including influencing factors. Design: Qualitative content analysis of in-depth, semi-structured interviews. Setting/participants: Patients with various advanced cancer diagnoses were enrolled in a multicenter randomized controlled trial (NCT01983956), which investigated the impact of “Symptoms, End-of-life decisions, Network, Support,” a structured early palliative care intervention, on distress. Of these, 20 patients who underwent the intervention participated in this study. Results: Participants received the intervention well and gained a better understanding of their personal situation. Patients reported that the intervention can feel “confronting” but with the right timing it can be confirming and facilitate family conversations. Patients’ personal background and the intervention timing within their personal disease trajectory influenced their emotional and cognitive experiences; it also impacted their understanding of palliative care and triggered actions toward future care planning. Conclusion: Early palliative care interventions like “Symptoms, End-of-life decisions, Network, Support” may provoke emotions and feel “confrontational” often because this is the first time when issues about one’s end of life are openly discussed; yet, advanced cancer patients found it beneficial and felt it should be incorporated into routine care.


Author(s):  
Pablo Simón-Lorda ◽  
Ines Maria Barrio-Cantalejo ◽  
Jose Francisco Garcia-Gutierrez ◽  
Maria Isabel Tamayo-Velazquez ◽  
Román Villegas-Portero ◽  
...  

2007 ◽  
Vol 11 (1) ◽  
pp. 44-46
Author(s):  
Diane C. Smith

Families and patients struggle with making end-of-life decisions for themselves or for loved ones. Some of these struggles include whether life-sustaining treatments are to be implemented. Knowing when to shift from curative, life-extending interventions to providing comfort measures is challenging for patients and families. Healthcare providers must find ways to assist patients and families in coming to these difficult decisions. Planning for this time in life, through advance directives, can prove to be cost effective, provide better care, and allow families fewer conflicts and fewer decisions to be made. This paper makes nurses aware of concepts and principles that can be directly linked to a hospital chaplain’s use of autonomy, divine command, and natural law.


2006 ◽  
Vol 9 (2) ◽  
pp. 332-342 ◽  
Author(s):  
Gim H. Tan ◽  
Balagangadhar R. Totapally ◽  
Dan Torbati ◽  
Jack Wolfsdorf

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