scholarly journals Dementia, death and advance directives

2012 ◽  
Vol 7 (4) ◽  
pp. 499-506 ◽  
Author(s):  
JONATHAN WOLFF
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Advance Directives ◽  
Health Condition ◽  
End Of Life Decisions ◽  
Wide Range ◽  
Life Decisions ◽  
Insight Into ◽  
At Home

AbstractThis article considers the ethics of advance directives, especially in relation to conditions such as dementia. For some choices, such as over whether one's life should end at home or in a hospice, advance directives can be very enlightened and helpful. For others, such as those to end the life of an autonomous subject, against their will, have no moral appeal and would rightly be ignored. In a wide range of intermediate cases, given our typical lack of insight into how changes in our health condition will affect us in other ways, we should be very cautious indeed in promoting the use of advance directives in end-of-life decisions, at least where a reasonable quality of life remains. There may be some reasons for giving priority to the earlier autonomous self over a later, contented but non-autonomous self, but these reasons seem far from compelling.

Children Dying from Cancer: Parents’ Perspectives on Symptoms, Quality of Life, Characteristics of Death, and End-of-Life Decisions

2012 ◽  
Vol 28 (4) ◽  
pp. 274-281 ◽  
Author(s):  
Pia von Lützau ◽  
Michael Otto ◽  
Tanja Hechler ◽  
Sabine Metzing ◽  
Joanne Wolfe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
End Of Life Decisions ◽  
Life Decisions

Considering quality of life in end-of-life decisions for severely disabled children

2018 ◽  
Vol 73 ◽  
pp. 67-75 ◽  
Author(s):  
I.H. Zaal-Schuller ◽  
D.L. Willems ◽  
F.V.P.M. Ewals ◽  
J.B. van Goudoever ◽  
M.A. de Vos
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Disabled Children ◽  
End Of Life Decisions ◽  
Life Decisions

Parents' Perspective on Symptoms, Quality of Life, Characteristics of Death and End-of-Life Decisions for Children Dying from Cancer

2008 ◽  
Vol 220 (3) ◽  
pp. 166-174 ◽  
Author(s):  
T. Hechler ◽  
M. Blankenburg ◽  
S. Friedrichsdorf ◽  
D. Garske ◽  
B. Hübner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
End Of Life Decisions ◽  
Life Decisions

Quality of Life and End-of-Life Decisions After Brain Injury

2013 ◽  
pp. 95-110 ◽  
Author(s):  
Athena Demertzi ◽  
Olivia Gosseries ◽  
Didier Ledoux ◽  
Steven Laureys ◽  
Marie-Aurélie Bruno
Keyword(s):  
Quality Of Life ◽  
Brain Injury ◽  
End Of Life ◽  
End Of Life Decisions ◽  
Life Decisions

scholarly journals Physicians’ attitudes in relation to end-of-life decisions in Neonatal Intensive Care Units: a national multicenter survey

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Ilias Chatziioannidis ◽  
Zoi Iliodromiti ◽  
Theodora Boutsikou ◽  
Abraham Pouliakis ◽  
Evangelia Giougi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Attitude Score ◽  
End Of Life Decisions ◽  
Life Decisions

Abstract Background End-of-life decisions for neonates with adverse prognosis are controversial and raise ethical and legal issues. In Greece, data on physicians’ profiles, motivation, values and attitudes underlying such decisions and the correlation with their background are scarce. The aim was to investigate neonatologists' attitudes in Neonatal Intensive Care Units and correlate them with self-reported practices of end-of-life decisions and with their background data. Methods A structured questionnaire was distributed to all 28 Neonatal Intensive Care Units in Greece. One hundred and sixty two out of 260 eligible physicians answered anonymously the questionnaire (response rate 66%). Demographic and professional characteristics, self-reported practices and opinions were included in the questionnaire, along with a questionnaire of 12 items measuring physicians’ attitude and views ranging from value of life to quality of life approach (scale 1–5). Results Continuation of treatment in neonates with adverse prognosis without adding further therapeutic interventions was the most commonly reported EoL practice, when compared to withdrawal of mechanical ventilation. Physicians with a high attitude score (indicative of value of quality-of-life) were more likely to limit, while those with a low score (indicative of value of sanctity-of-life) were more likely for continuation of intensive care. Physicians’ educational level (p:0.097), involvement in research (p:0.093), religion (p:0.024) and position on the existing legal framework (p < 0.001) were factors that affected the attitude score. Conclusions Physicians presented with varying end-of-life practices. Limiting interventions in neonates with poor prognosis was strongly related to their attitudes. The most important predictors for physicians' attitudes were religiousness and belief for Greek legal system reform.

scholarly journals Physicians’ attitudes in relation to End-of-life Decisions in Neonatal Intensive Care Units: a national multicenter survey

2020 ◽  
Author(s):  
Ilias Chatziioannidis ◽  
Zoi Iliodromiti ◽  
Theodora Boutsikou ◽  
Abraham Pouliakis ◽  
Evangelia Giougi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Attitude Score ◽  
End Of Life Decisions ◽  
Life Decisions

Abstract Background: End-of-life decisions for neonates with adverse prognosis are controversial and raise ethical and legal issues. In Greece, data on physicians’ profiles, motivation, values and attitudes underlying such decisions and the correlation with their background are scarce. The aim was to investigate neonatologists' attitudes in neonatal intensive care units and correlate them with self-reported practices of end-of-life decisions and with their background data. Methods: A structured questionnaire was distributed to all 28 Neonatal Intensive Care Units in Greece. One hundred and sixty two out of 260 eligible physicians answered anonymously the questionnaire (response rate 66%). Demographic and professional characteristics, self-reported practices and opinions were included in the questionnaire, along with a questionnaire of 12 items measuring physicians’ attitude and views ranging from value of life to quality of life approach (scale 1 to 5). Results: Continuation of treatment in neonates with adverse prognosis without adding further therapeutic interventions was the most commonly reported EoL practice, when compared to withdrawal of mechanical ventilation. Physicians with a high attitude score (indicative of value of quality-of-life) were more likely to limit, while those with a low score (indicative of value of sanctity-of-life) were more likely for continuation of intensive care. Physicians’ educational level (p:0.097), involvement in research (p:0.093), religion (p:0.024) and position on the existing legal framework (p<0.001) were factors that affected the attitude score. Conclusions: Physicians presented with varying end-of-life practices. Limiting interventions in neonates with poor prognosis was strongly related to their attitudes. The most important predictors for physicians' attitudes were religiousness and belief for Greek legal system reform.

scholarly journals Physicians’ Attitudes in Relation to End-of-Life Decisions in Neonatal Intensive Care Units: A National Multicenter Survey

2020 ◽  
Author(s):  
Ilias Chatziioannidis ◽  
Zoi Iliodromiti ◽  
Theodora Boutsikou ◽  
Abraham Pouliakis ◽  
Evangelia Giougi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Attitude Score ◽  
End Of Life Decisions ◽  
Life Decisions

Abstract Background: End-of-life decisions for neonates with adverse prognosis are controversial and raise ethical and legal issues. In Greece, data on physicians’ profiles, motivation, values and attitudes underlying such decisions and the correlation with their background are scarce. The aim was to investigate neonatologists' attitudes in neonatal intensive care units and correlate with self-reported practices of end-of-life decisions and with their background data.Methods: A structured questionnaire was distributed to all 28 Neonatal Intensive Care Units in Greece. One hundred and sixty two out of 260 eligible physicians answered anonymously the questionnaire (response rate 66%). Demographic and professional characteristics, self-reported practices and opinions were included in the questionnaire, along with an attitude questionnaire of 12 items measuring physicians’ views ranging from value of life to quality of life approach (scale 1 to 5).Results: Continuation of adverse prognosis neonates treatment without adding further therapeutic interventions was the most commonly reported EoL practice, when compared to mechanical ventilation withdrawal. Physicians with a high attitude score (indicative of quality-of-life) were more likely to limit, while a low score (indicative of sanctity-of-life) was indicative for continuation of intensive care. Physicians’ educational level (p:0.097), involvement in research (p:0.093), religion (p:0.024) and position on the existing legal framework (p<0.001) affected the attitude score.Conclusions: Physicians presented with varying end-of-life practices. Limiting interventions in neonates with poor prognosis was strongly related to their attitudes. The most important predictors for physicians' attitudes were religiousness and belief in Greek legal system reform.

scholarly journals Physicians’ attitudes in relation to End-of-life Decisions in Neonatal Intensive Care Units: a national multicenter survey

2020 ◽  
Author(s):  
Ilias Chatziioannidis ◽  
Zoi Iliodromiti ◽  
Theodora Boutsikou ◽  
Abraham Pouliakis ◽  
Evangelia Giougi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
Neonatal Intensive Care ◽  
Neonatal Intensive Care Units ◽  
Attitude Score ◽  
End Of Life Decisions ◽  
Life Decisions

Abstract Background: End-of-life decisions for neonates with adverse prognosis are controversial and raise ethical and legal issues. In Greece, data on physicians’ profiles, motivation, values and attitudes underlying such decisions and the correlation with their background are scarce. The aim was to investigate neonatologists' attitudes in neonatal intensive care units and correlate them with self-reported practices of end-of-life decisions and with their background data.Methods: A structured questionnaire was distributed to all 28 Neonatal Intensive Care Units in Greece. One hundred and sixty two out of 260 eligible physicians answered anonymously the questionnaire (response rate 66%). Demographic and professional characteristics, self-reported practices and opinions were included in the questionnaire, along with a questionnaire of 12 items measuring physicians’ attitude and views ranging from value of life to quality of life approach (scale 1 to 5).Results: Continuation of treatment in neonates with adverse prognosis without adding further therapeutic interventions was the most commonly reported EoL practice, when compared to withdrawal of mechanical ventilation. Physicians with a high attitude score (indicative of value of quality-of-life) were more likely to limit, while those with a low score (indicative of value of sanctity-of-life) were more likely for continuation of intensive care. Physicians’ educational level (p:0.097), involvement in research (p:0.093), religion (p:0.024) and position on the existing legal framework (p<0.001) were factors that affected the attitude score.Conclusions: Physicians presented with varying end-of-life practices. Limiting interventions in neonates with poor prognosis was strongly related to their attitudes. The most important predictors for physicians' attitudes were religiousness and belief for Greek legal system reform.

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