Disabled Children in Disaster Management

Disabled children have a wide range of impairments, talents, and capacities, which collide with a wide range of circumstances and societal attitudes. The following article discusses disaster management in the context of disabled children. Disaster, disability and its management is discussed in the context of international practices in general and suited to India in particular. The research follows a review of the United States National Commission on Children and Disaster and its extrapolations to India. In addition to this Disaster Medicine as one approach to Disaster Management concerning disabled children has been explored. The research concludes that the understanding of particular issues of Children with disabilities as one stakeholder and their capacity to engage, as well as a shift in mindset and power relations in which children with disabilities contribute to DRR projects, are fundamental to disability-inclusive DRR.

TOURISM OF FAMILIES WITH THE DISABLED CHILDREN OR WITH SPECIAL NEEDS IN POLAND OF RECENT DECADES

The last decades in Polish society have been seen not only an increase in empathy and outlining needs for families and children with disabilities or deficits, but also economic improvement of families, which enables tourist or rehabilitation trips at least once a year. The growing needs and good practices for disabled children and adults also contributed to the greater awareness of the people managing of tourist centers in Poland, who are increasingly trying to propose within their offer to such groups, not traveling so far. This brief study tries to provide in a condensed way to propose good practices and experiences to meet the problems of families traveling with disabled children or adults in Poland.

Role of Stress and Age in Resilience Among Parents of the Children with Intellectual Disability

Parents of children with intellectual disability face various stressful situations. However, many of them show resilience even in the midst of challenges and are able to meaningfully contribute to the life of the child. In the present study, the factors of stress that hinder resilience are assessed in a sample of 50 parents of intellectually disabled children. Stress scale for parents of mentally challenged (SPMC) developed by Rejitha, Biji, and Jayan was used to measure the stress of the parents. Resilience was measured using the Bharathiar University resilience scale, developed by Annalakshmi. Results showed extra-familial stress as a significant inverse predictor of resilience. Older parents are relatively more resilient when compared to the younger.

Rationale of the need for adaptive clothes for disabled children

The study conducted among medical personnel identified that children with infantile cerebral paralysisof the V severity level need clothes with improved properties that ensure the patient’s quality of life and the correct conduct of medical and hygienic procedures by medical personnel.

New approaches to the question of training for the system of comprehensive rehabilitation and habilitation of disabled

The article reveals the issues of personnel training for the formation of a system of comprehensive rehabilitation and habilitation of disabled / disabled children, early assistance to children and their parents, accompanied living, social and vocational rehabilitation, psychological rehabilitation, technical means of rehabilitation of disabled people. The purpose and main task of our research is to study the issues of personnel training from the standpoint of regulatory, scientific, methodological and practice-oriented support. The presented materials are relevant and significant at the present time. In the light of the modernization of federal and regional legislative acts, the need to provide quality assistance to persons with disabilities is increasing, which in turn requires the training of highly qualified personnel. The materials of the article use statistical data on the needs of all constituent entities of the Russian Federation in the preparation of their leaders and leading specialists for the implementation of these types of activities. The study analyzes the need for training personnel for the education system, health care, and social protection. The value of the materials presented will make it possible to develop new technologies and approaches to the personnel training system. The areas of work given in the article are of great practical value and indicate that the technologies offered by Saint-Petersburg Postgraduate Institute of Medical experts, employees are effective and can be multiplied on the territory of the Russian Federation. In the process of further research, it is planned to develop professional standards for specialists in the education system, health care and social protection in the field of comprehensive rehabilitation and habilitation of disabled people / disabled children, early assistance to children and their parents, accompanied by living, social and vocational rehabilitation, psychological rehabilitation, technical means of rehabilitation disabled people.

The child with developmental disabilities: The effects on the whole family. What do the families really need from the ‘early intervention’ professional system?

This paper is based on the premise that the current services delivered to children with developmental disabilities and their families in Wales are in need of revision in order to fully support the families to then be able to support their children. Currently services use a medically dominated approach in trying to ‘fix’ these disabled children and are lacking regard for the emotional and psychological impact on the families. The author comes from a position of having worked with these families as a clinical psychologist for over 20 years and shares with the reader things that her lived experiences tell her matter to these families and what families have said matters. There are ‘extra’ demands of looking after a child with developmental needs and in managing oneself in relation to a complex set of professional demands (services). In relation to this, there are a complex array of emotional experiences and dilemmas that parents are often fluctuating between. Six key themes have been developed which potentially form a model to think about some of the dynamics for families in these situations; Denial v acceptance, Guilt v forgiveness, isolation v support, fear v courage and anxious thinking v reimagining the family story. This paper provides the reader with a practical and strength-based model for service delivery to support children with developmental disabilities and their families. The new model of care is about helping families ‘to come to terms with’ a condition that cannot be cured. The new vision is about adaptation, re-framing or seeing from a different perspective, that is, a ‘fulfillment in new dreaming’. Families must adjust physically, psychologically and practically to living with limitations which can be severe and uncertain at times and may not be resolved. Two main principles that should be followed: 1. Caring about what matters. That is to say addressing a child’s developmental disabilities within the broad context of the child and family’s lives. Parents need space to acknowledge and process their feelings without judgement, with professionals and peers who have ‘good’ understanding and empathy. 2. We the people. Health care should become the work of we the people not we the professionals serving the rest of the people. At the heart of it is the orientating ideal that captures what the work is about – well-being of families. The principles of the model being to engage a resource that is largely untapped in our strained healthcare system: the knowledge, wisdom and energy of individuals, families and communities who have a child with developmental disabilities/learning disabilities in their everyday lives. These families are no longer simply consumers of services who respond to requests to ‘fix’ disabled children. The author describes what she is doing to develop services including the development of Early Positive Approaches to support (EPAtS). The author also considers some issues that get in the way of developing this new practice smoothly. Summary A new way of looking at and considering what is important in the professional system supporting children with developmental disabilities and their families.