scholarly journals Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life.

2011 ◽  
Vol 29 (3) ◽  
pp. 232-252 ◽  
Author(s):  
Norah Johnson ◽  
Marilyn Frenn ◽  
Suzanne Feetham ◽  
Pippa Simpson
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Family Functioning ◽  
Parenting Stress ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers

2021 ◽  
Author(s):  
Leontine W. ten Hoopen ◽  
Pieter F. A. de Nijs ◽  
Jorieke Duvekot ◽  
Kirstin Greaves-Lord ◽  
Manon H. J. Hillegers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Parenting Stress ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Adaptive Coping ◽  
Health Related Qol ◽  
Related Quality ◽  
Health Related

AbstractThis study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver’s internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver’s health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver’s mental health, coping, and parenting stress in caring for children with ASD.

scholarly journals Health related quality of life in children with autism spectrum disorder in Bangladesh

2017 ◽  
Vol 11 (2) ◽  
pp. 40-44 ◽  
Author(s):  
Farhana Safa ◽  
Md Nazrul Islam
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Health Related Quality ◽  
Normal Children ◽  
Related Quality ◽  
Health Related

Background and objective: Autism spectrum disorder (ASD) is considered as an emerging problem in our socioeconomic context. The objectives of this study were to compare the health related quality of life of children with autism spectrum disorder to that of typically developing peers.Methods: A cross sectional comparative study was conducted on autistic children and normal children in six centers of Dhaka city to see the health related quality of life from parent’s perspective by using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL scale). Total of 115 children within the age group of 8-12 years were selected, among them 57 were autistic and 58 were normal peers.Results: Children with autism spectrum disorder had poor physical (mean score 6.04), emotional (mean score 9.77) and social (mean score 14.51) functions as well as learning ability (mean score 8.12) whereas normal children’s functioning mean scores were 0.10, 1.79, 0.0 and 0.45 in respective domains and the differences were significant (p<.0001) in each aspect of quality of life.Conclusion: This study revealed that, children with autism spectrum disorder experienced poorer health-related quality of life than normal children and thus the findings would contribute in implementing different strategies for improving the health status of autistic children.IMC J Med Sci 2017; 11(2): 40-44

scholarly journals Health-related Quality of Life in Children with Autism Spectrum Disorder and Children with Down Syndrome

2020 ◽  
Vol 32 (2) ◽  
pp. 93
Author(s):  
Aikaterini Katsiana ◽  
Nikolaos Strimpakos ◽  
Ventoulis Ioannis ◽  
Eleni Sofologi ◽  
Eleni Bonti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Down Syndrome ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Health Related Quality ◽  
Children With Down Syndrome ◽  
Related Quality ◽  
Health Related

scholarly journals Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life

2019 ◽  
Vol 50 (1) ◽  
pp. 263-277 ◽  
Author(s):  
Leontine W. ten Hoopen ◽  
Pieter F. A. de Nijs ◽  
Jorieke Duvekot ◽  
Kirstin Greaves-Lord ◽  
Manon H. J. Hillegers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Primary Caregivers ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Negative Effects ◽  
Health Related Qol ◽  
Related Quality ◽  
Health Related

Abstract This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related QoL. Primary caregivers reported pain/discomfort (42%) and anxiety/depression (40%). In caring, they mostly experienced problems in the relationship with the child (84%), and in combining care with daily activities (51%). Children with ASD had a relevantly lower QoL. Despite negative effects, almost all caregivers (96%) derived fulfillment from caring for their affected children. HRQoL and CarerQol reports of primary caregivers and children were correlated, both providing useful information to ASD measurement and treatment.

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