scholarly journals Confidentiality or continuity? Family caregivers' experiences with care for HIV/AIDS patients in home-based care in Lesotho

2008 ◽  
Vol 5 (1) ◽  
pp. 36-46 ◽  
Author(s):  
Mokhantšo Makoae ◽  
Ken Jubber
Keyword(s):  
Family Caregivers ◽  
Aids Patients ◽  
Home Based ◽  
Home Based Care ◽  
Hiv Aids

“I Want to Go Gently”

2015 ◽  
Vol 75 (4) ◽  
pp. 395-410 ◽  
Author(s):  
Fidelia N. A. Ohemeng ◽  
Steve Tonah
Keyword(s):  
Scale Up ◽  
Cost Of Care ◽  
Family Carers ◽  
Aids Patients ◽  
Home Based ◽  
Related Stigma ◽  
The Government ◽  
Home Based Care ◽  
Depth Interviews ◽  
Hiv Aids

This article examines the views of persons living with AIDS about how they want to die and how they are planning for their deaths. Participants for the study were purposefully drawn from an HIV clinic in an urban town in Ghana. In-depth interviews were conducted with 25 persons living with AIDS. Three preferences of death were identified by the participants. These include the desire for a quick death, death at home, and death without emaciating. Planning for death involved attending church and taking care of children. Inherent in the responses of the participants is the concern for cost of care, dwindling network of family carers, and stigmatization and shame. The article concludes that the government needs to provide support for home-based care, establish a pension for AIDS patients, support families to pay for the funeral expenses of their relatives, and scale up effort to reduce HIV/AIDS-related stigma.

The cost of home-based care for HIV/AIDS patients in Zimbabwe

AIDS Care ◽  
1998 ◽  
Vol 10 (6) ◽  
pp. 751-759 ◽  
Author(s):  
K. HANSEN ◽  
G. WOELK ◽  
H. JACKSON ◽  
R. KERKHOVEN ◽  
N. MANJONJORI ◽  
...  
Keyword(s):  
Aids Patients ◽  
Home Based ◽  
The Cost ◽  
Home Based Care ◽  
Hiv Aids

scholarly journals People living with HIV/AIDS and the utilization of home-based care services

2011 ◽  
Vol 5 (20) ◽  
pp. 3166-3174 ◽  
Author(s):  
O Oguntibeju O ◽  
T Ndalambo K ◽  
Mokgatle Nthabu M
Keyword(s):  
People Living With Hiv ◽  
Care Services ◽  
Home Based ◽  
Living With Hiv ◽  
Home Based Care ◽  
Hiv Aids

Prevention of Hiv/Aids-Associated Opportunistic Infections Through Housing and Municipal Services

2008 ◽  
Vol 33 (4) ◽  
pp. 43-52
Author(s):  
Richard Tomlinson
Keyword(s):  
Hiv Prevention ◽  
Opportunistic Infections ◽  
Labour Force ◽  
Hiv And Aids ◽  
World Health ◽  
Clinical Staging ◽  
Municipal Services ◽  
Home Based ◽  
Home Based Care ◽  
Hiv Aids

The background to this paper is the increasing interest in the relationship between housing and municipal services and HIV/AIDS. The purpose of this paper is to clarify what, precisely, one has in mind when thinking that housing and municipal services might prevent HIV infection and associated opportunistic infections. The focus is not on the socioeconomic dimensions but on the modes of transmission associated with specific opportunistic infections. That is, the paper first disputes the relevance of housing and services to HIV prevention, but then demonstrates that housing and municipal services are important for (a) the prevention of certain opportunistic infections to which people affected by HIV/AIDS are particularly vulnerable, and (b) for the provision of home-based care. In addition to the medical focus of the paper, there is attention to the empirical backdrop on the relation between housing, municipal services and HIV/AIDS, analysing survey findings regarding among whom and where HIV prevalence is highest, and projections regarding the extent of HIV infections and AIDS based on the World Health Organization clinical staging system. Using Johannesburg as a case study, it is demonstrated that the number of persons having AIDS is smaller than one might expect and also that the number is already declining, which has implications for the provision of home-based care. However, it is also shown that the number of households that lost one or several members is increasing rapidly. In this context, labour force surveys are employed to identify the impacts on specific categories of households. At this stage, a defining unknown is the scale, nature and location of these reconstituted households and what this means for housing policy. Finally, a feature of the research was the extent to which medical practitioners viewed housing as a quixotic sideline within the broader struggle for HIV prevention and the provision of treatment. In sum, the paper provides an argument for incorporating housing and municipal services into both HIV and AIDS prevention and treatment programmes.

Home-Based Pediatric Cancer Care: Perspectives and Improvement Suggestions From Children, Family Caregivers, and Clinicians

2021 ◽  
pp. OP.20.00958
Author(s):  
Lindsay A. Jibb ◽  
Julie Chartrand ◽  
Tatenda Masama ◽  
Donna L. Johnston
Keyword(s):  
Family Caregivers ◽  
Pediatric Cancer ◽  
Cancer Care ◽  
Care Center ◽  
System Level ◽  
Pediatric Care ◽  
Children With Cancer ◽  
Key Informants ◽  
Home Based ◽  
Home Based Care

PURPOSE: Although the hospital remains the dominant site for delivering most pediatric cancer care, home-based care is increasingly provided. To effectively deliver comprehensive, relevant, and acceptable care in children's homes, the voices of these key informants must be considered. We examined the views of children with cancer, their family caregivers, and clinicians on home-based cancer care to identify necessary strategies to improve the delivery of care. METHODS: Children with cancer, their family caregivers, and multiprofessional clinicians who provide care at a tertiary pediatric care center or in the community participated in audio-recorded, semistructured interviews in French and English. Interviews were conducted until data saturation in each participant group was achieved. Interviews were transcribed, coded, and analyzed using thematic analysis. RESULTS: Thirteen children, 20 family caregivers, and 22 clinicians participated. Home-based care was endorsed as a means to improve child health-, family social- and financial-, and system-level outcomes. The success of a home-based model is built on care that addresses child and family informational, treatment and care, material, and psychosocial needs. Mechanisms to improve care include enhanced homecare agency-hospital-family communication, training for homecare nurses in pediatric cancer care, virtual solutions, and an expanded breadth of services provided in-home. Child-, family-, and system-related factors affect the delivery of optimal home-based care. CONCLUSION: Children, families, and clinicians value a model of pediatric cancer care that incorporates home-based services. The insights of these key informants should be reflected in the principles that become the basis of home-based cancer care best practices.

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