Sexual Orientation and Gender Identity Data Collection in Clinical Settings and in Electronic Health Records: A Key to Ending LGBT Health Disparities

LGBT Health ◽  
2014 ◽  
Vol 1 (1) ◽  
pp. 34-41 ◽  
Author(s):  
Sean Cahill ◽  
Harvey Makadon
Keyword(s):  
Health Disparities ◽  
Sexual Orientation ◽  
Data Collection ◽  
Gender Identity ◽  
Electronic Health Records ◽  
Clinical Settings ◽  
Lgbt Health ◽  
Health Records ◽  
Electronic Health ◽  
And Gender

scholarly journals Planning and implementing sexual orientation and gender identity data collection in electronic health records

2018 ◽  
Vol 26 (1) ◽  
pp. 66-70 ◽  
Author(s):  
Chris Grasso ◽  
Michal J McDowell ◽  
Hilary Goldhammer ◽  
Alex S Keuroghlian
Keyword(s):  
Health Care ◽  
Sexual Orientation ◽  
Data Collection ◽  
Gender Identity ◽  
Electronic Health Records ◽  
Current Evidence ◽  
Institute Of Medicine ◽  
Health Records ◽  
Electronic Health ◽  
And Gender

AbstractLesbian, gay, bisexual, transgender, and queer (LGBTQ) people experience significant health disparities across the life course and require health care that addresses their unique needs. Collecting information on the sexual orientation and gender identity (SO/GI) of patients and entering SO/GI data in electronic health records has been recommended by the Institute of Medicine, the Joint Commission, and the Health Resources and Services Administration as fundamental to improving access to and quality of care for LGBTQ people. Most healthcare organizations, however, have yet to implement a system to collect SO/GI data due to multiple barriers. This report addresses those concerns by presenting recommendations for planning and implementing high-quality SO/GI data collection in primary care and other health care practices based on current evidence and best practices developed by a federally qualified health center and leader in LGBTQ health care.

scholarly journals A rapid review of gender, sex, and sexual orientation documentation in electronic health records

2020 ◽  
Vol 27 (11) ◽  
pp. 1774-1783 ◽  
Author(s):  
Francis Lau ◽  
Marcy Antonio ◽  
Kelly Davison ◽  
Roz Queen ◽  
Aaron Devor
Keyword(s):  
Sexual Orientation ◽  
Electronic Health Records ◽  
Rapid Review ◽  
Culturally Competent ◽  
Care Needs ◽  
Health Records ◽  
Gender Minorities ◽  
Literature Reviews ◽  
Electronic Health ◽  
And Gender

Abstract Objective The lack of precise and inclusive gender, sex, and sexual orientation (GSSO) data in electronic health records (EHRs) is perpetuating inequities of sexual and gender minorities (SGM). We conducted a rapid review on how GSSO documentation in EHRs should be modernized to improve the health of SGM. Materials and Methods We searched MEDLINE from 2015 to 2020 with terms for gender, sex, sexual orientation, and electronic health/medical records. Only literature reviews, primary studies, and commentaries from peer-reviewed journals in English were included. Two researchers screened citations and reviewed articles with help from a third to reach consensus. Covidence, Excel, and Atlas-TI were used to track articles, extract data, and synthesize findings, respectively. Results Thirty-five articles were included. The 5 themes to modernize GSSO documentation in EHRs were (1) creating an inclusive, culturally competent environment with precise terminology and standardized data collection; (2) refining guidelines for identifying and matching SGM patients with their care needs; (3) improving patient-provider relationships by addressing patient rights and provider competencies; (4) recognizing techno-socio-organizational aspects when implementing GSSO in EHRs; and (5) addressing invisibility of SGM by expanding GSSO research. Conclusions The literature on GSSO documentation in EHRs is expanding. While this trend is encouraging, there are still knowledge gaps and practical challenges to enabling meaningful changes, such as organizational commitments to ensure affirming environments, and coordinated efforts to address technical, organizational, and social aspects of modernizing GSSO documentation. The adoption of an inclusive EHR to meet SGM needs is a journey that will evolve over time.

scholarly journals Implementation of Gender Identity and Assigned Sex at Birth Data Collection in Electronic Health Records: Where Are We Now?

2021 ◽  
Vol 18 (12) ◽  
pp. 6599
Author(s):  
Hale M. Thompson ◽  
Clair A. Kronk ◽  
Ketzel Feasley ◽  
Paul Pachwicewicz ◽  
Niranjan S. Karnik
Keyword(s):  
Data Collection ◽  
Gender Identity ◽  
Electronic Health Records ◽  
Data Quality ◽  
Hospital Admissions ◽  
The United States ◽  
Patient Comfort ◽  
United States Department ◽  
Health Records ◽  
Electronic Health

In 2015, the United States Department of Health and Human Services instantiated rules mandating the inclusion of sexual orientation and gender identity (SO/GI) data fields for systems certified under Stage 3 of the Meaningful Use of Electronic Health Records (EHR) program. To date, no published assessments have benchmarked implementation penetration and data quality. To establish a benchmark for a U.S. health system collection of gender identity and sex assigned at birth, we analyzed one urban academic health center’s EHR data; specifically, the records of patients with unplanned hospital admissions during 2020 (N = 49,314). Approximately one-quarter of patient records included gender identity data, and one percent of them indicated a transgender or nonbinary (TGNB) status. Data quality checks suggested limited provider literacy around gender identity as well as limited provider and patient comfort levels with gender identity disclosures. Improvements are needed in both provider and patient literacy and comfort around gender identity in clinical settings. To include TGNB populations in informatics-based research, additional novel approaches, such as natural language processing, may be needed for more comprehensive and representative TGNB cohort discovery. Community and stakeholder engagement around gender identity data collection and health research will likely improve these implementation efforts.

scholarly journals Patient participation in electronic nursing documentation: an interview study among community nurses

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Kim De Groot ◽  
Elisah B. Sneep ◽  
Wolter Paans ◽  
Anneke L. Francke
Keyword(s):  
Data Collection ◽  
Electronic Health Records ◽  
Thematic Analysis ◽  
Patient Participation ◽  
Medical Condition ◽  
Nursing Documentation ◽  
Health Records ◽  
Technical Problems ◽  
Care Plans ◽  
Electronic Health

Abstract Background Patient participation in nursing documentation has several benefits like including patients’ personal wishes in tailor-made care plans and facilitating shared decision-making. However, the rise of electronic health records may not automatically lead to greater patient participation in nursing documentation. This study aims to gain insight into community nurses’ experiences regarding patient participation in electronic nursing documentation, and to explore the challenges nurses face and the strategies they use for dealing with challenges regarding patient participation in electronic nursing documentation. Methods A qualitative descriptive design was used, based on the principles of reflexive thematic analysis. Nineteen community nurses working in home care and using electronic health records were recruited using purposive sampling. Interviews guided by an interview guide were conducted face-to-face or by phone in 2019. The interviews were inductively analysed in an iterative process of data collection–data analysis–more data collection until data saturation was achieved. The steps of thematic analysis were followed, namely familiarization with data, generating initial codes, searching for themes, reviewing themes, defining and naming themes, and reporting. Results Community nurses believed patient participation in nursing documentation has to be tailored to each patient. Actual participation depended on the phase of the nursing process that was being documented and was facilitated by patients’ trust in the accuracy of the documentation. Nurses came across challenges in three domains: those related to electronic health records (i.e. technical problems), to work (e.g. time pressure) and to the patients (e.g. the medical condition). Because of these challenges, nurses frequently did the documentation outside the patient’s home. Nurses still tried to achieve patient participation by verbally discussing patients’ views on the nursing care provided and then documenting those views at a later moment. Conclusions Although community nurses consider patient participation in electronic nursing documentation important, they perceive various challenges relating to electronic health records, work and the patients to realize patient participation. In dealing with these challenges, nurses often fall back on verbal communication about the documentation. These insights can help nurses and policy makers improve electronic health records and develop efficient strategies for improving patient participation in electronic nursing documentation.

Sign in / Sign up

Export Citation Format

Share Document