Gout research tools

Mapping Intimacies ◽

10.1093/med/9780198748311.003.0012 ◽

2016 ◽

Author(s):

Nicola Dalbeth

Keyword(s):

Disease Activity ◽

Outcome Measure ◽

Joint Damage ◽

Scoring Systems ◽

Patient Reported Outcome ◽

Classification Criteria ◽

Specific Patient ◽

Chronic Gout ◽

Patient Reported Outcome Measure ◽

Patient Reported

Although most tools used in gout research are generic, there are some important gout-specific instruments. New gout classification criteria were published in 2015. Outcome measure domains have been identified for both acute and chronic gout studies. A preliminary flare definition has been reported. Gout-specific, patient-reported outcome measure instruments allow assessment of gout disease activity and impact of tophi. Imaging scoring systems allow quantification of joint damage, inflammation, and urate burden in gout.

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Development of a patient-reported outcome measure for neck pain in military aircrew: qualitative interviews to inform design and content

BMJ Open ◽

10.1136/bmjopen-2020-039488 ◽

2021 ◽

Vol 11 (2) ◽

pp. e039488

Author(s):

Anna Dowling ◽

Ellen Slungaard ◽

Nicola R Heneghan

Keyword(s):

Neck Pain ◽

Outcome Measure ◽

Physical Symptoms ◽

Patient Reported Outcome ◽

Direct Access ◽

Specific Patient ◽

Concept Elicitation ◽

Patient Reported Outcome Measure ◽

Patient Reported ◽

The Impact

IntroductionThe prevalence of flight-related neck pain is 70% in UK fast jet pilots; much higher than the general population. The Aircrew Conditioning Programme and direct access physiotherapy exist to minimise the impact on military capability, but a population specific patient-reported outcome measure (PROM) is required to investigate the effectiveness of these. We aimed to explore the experiences of flight-related neck pain to inform the content validity and development of a population specific PROM.MethodsQualitative semistructured interviews combining phenomenological and grounded theory methods, reported using Consolidated criteria for Reporting Qualitative research guidelines. A purposive sample of 10 fast jet pilots with neck pain was recruited. Concept elicitation interviews were audio recorded, transcribed verbatim along with field notes. Data analysis involved subject and methodological expertise used a concept elicitation approach.ResultsParticipants included 10 male fast jet pilots, age 34.7 years. Identified themes included: (1) physical symptoms associated with flying activities; (2) occupational effects revealed modifications of flying, or ‘suboptimal’ performance owing to neck pain; (3) psychological effects revealed feelings or worry and (4) social and activity effects showed impact on out of work time.ConclusionPopulation-specific occupational, psychological and social factors should be considered alongside physical symptoms when managing neck pain in military aircrew. Findings support the development of a PROM specifically designed for military aircrew with neck pain.

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