Score Distribution of the Scoliosis Research Society Health-Related Quality of Life in Different Subgroups of Adolescent Subjects Unaffected by Scoliosis in China

Spine ◽  
2014 ◽  
Vol 39 (3) ◽  
pp. 256-262 ◽  
Author(s):  
Weifei Wu ◽  
Yuanli Du ◽  
Jie Liang ◽  
Ying Chen ◽  
Xiaoyi Tan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Research Society ◽  
Health Related Quality ◽  
Score Distribution ◽  
Scoliosis Research Society ◽  
Related Quality ◽  
Health Related

scholarly journals Outcomes of Early Hemivertebrectomy in Children with Congenital Scoliosis: A Prospective Follow-up Study

2021 ◽  
pp. 145749692110206
Author(s):  
H. M. Oksanen ◽  
T. Jalanko ◽  
I. J. Helenius
Keyword(s):  
Quality Of Life ◽  
Congenital Scoliosis ◽  
Research Society ◽  
Health Related Quality ◽  
Scoliosis Research Society ◽  
Related Quality ◽  
Health Related ◽  
Hip Spica Cast

Background and Aims: Posterolateral hemivertebrectomy with monosegmental instrumentation at an early age is an established method to correct congenital scoliosis but is associated with a relatively high risk of instrumentation failure and health-related quality of life outcomes are not available. We aimed to investigate the effects hemivertebrectomy with postoperative hip spica cast on complications and health-related quality of life in small children with congenital scoliosis. Materials and Methods: A follow-up study of 30 children (at mean age = 3.4 years, range = 1.0–8.5 years) undergoing posterolateral hemivertebrectomy and short pedicle instrumentation. Children were immobilized postoperative with hip spica cast for 6 weeks and immobilization for 4 months using a rigid thoracolumbosacral orthosis. The Caregivers filled out Scoliosis Research Society 24 outcome questionnaire preoperatively, at 6 months, and at final follow-up visit on behalf of their child. Standing radiographs were obtained preoperatively, postoperatively in the cast, and standing at final follow-up. Results: Mean major curve was 41° (range = 26°–87°) preoperatively and was corrected to 14° (4.0°–35°) at final follow-up. Eight (27%) children had postoperative complications, including three (10%) deep surgical site infections. The Scoliosis Research Society 24 back domain showed an improvement from a mean of 3.8 preoperatively to 4.4 at final follow-up ( p < 0.001). Function from back condition domain showed a significant deterioration from 4.2 preoperatively to 3.7 at 6 months ( p = 0.020) but improved back to baseline at final follow-up (4.2, p = 0.0022 6 months vs final follow-up). Conclusion: Hemivertebrectomy with short instrumentation resulted into 64% correction of scoliosis and improved health-related quality of life in back pain and function domains.

The Scoliosis Research Society Health-Related Quality Of Life (SRS-30) Age–Gender Normative Data

Spine ◽  
2011 ◽  
Vol 36 (14) ◽  
pp. 1154-1162 ◽  
Author(s):  
Christine Baldus ◽  
Keith Bridwell ◽  
John Harrast ◽  
Christopher Shaffrey ◽  
Stephen Ondra ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Normative Data ◽  
Research Society ◽  
Health Related Quality ◽  
Scoliosis Research Society ◽  
Related Quality ◽  
Health Related

The Italian Spine Youth Quality of Life questionnaire measures health-related quality of life of adolescents with spinal deformities better than the reference standard, the Scoliosis Research Society 22 questionnaire

2019 ◽  
Vol 33 (8) ◽  
pp. 1404-1415 ◽  
Author(s):  
Antonio Caronni ◽  
Sabrina Donzelli ◽  
Fabio Zaina ◽  
Stefano Negrini
Keyword(s):  
Quality Of Life ◽  
Research Society ◽  
Spinal Deformities ◽  
Scoliosis Research Society ◽  
Cohen’S D ◽  
Related Quality ◽  
Health Related ◽  
Cohen's D ◽  
Better Than

Objective: To compare the validity of the Italian Spine Youth Quality of Life (ISYQOL) questionnaire with that of the Scoliosis Research Society 22 (SRS22) questionnaire, the criterion standard for health-related quality of life (HRQOL) measurement in adolescents with spinal deformities. Design: Cross-sectional study. Setting: Outpatient clinic. Subjects: Consecutive adolescents (10–18 years; 541 wearing brace) affected by idiopathic scoliosis (642 females, 100 males) or hyperkyphosis (87 females, 109 males). Interventions: NA. Main measures: The Spearman’s correlation coefficient (rho) between ISYQOL and SRS22 was used to assess ISYQOL concurrent validity. Sex, age, severity, bracing, trunk appearance and deformity type were assessed for known-groups validity. Cohen’s d quantified between-groups differences. Multiple linear regression exploring the effect of sex, age, body mass index (BMI), severity, bone age, trunk appearance, physiotherapy, bracing and sport on HRQOL of scoliosis patients was used to assess concurrent validity further. Results: Satisfactory correlations were found between ISYQOL and SRS22 (scoliosis, rho = 0.71; kyphosis, rho = 0.56). Known-groups validity analysis showed that ISYQOL detects all the between-groups differences detected by SRS22 and a males-females difference undetected by SRS22. ISYQOL Cohen’s d was larger than SRS22 Cohen’s d in three between-groups comparisons and similar in the others. Brace, sport and scoliosis severity were independently related to ISYQOL (linear regression: R2 = 0.23; p < 0.001). Brace, sport and physiotherapy were related to SRS22 ( R2 = 0.17). Conclusions: ISYQOL showed high validity when used to measure HRQOL in adolescents with spinal deformities. Moreover, ISYQOL performs better than SRS22, having better known-groups validity and (contrary to SRS22) detecting the impact of disease severity on HRQOL.

scholarly journals Analysis of Optimal Health-Related Quality of Life Measures in Patients Waitlisted for Lung Transplantation

2020 ◽  
Vol 2020 ◽  
pp. 1-9 ◽  
Author(s):  
Junko Tokuno ◽  
Toyofumi F Chen-Yoshikawa ◽  
Toru Oga ◽  
Takahiro Oto ◽  
Tomoyo Okawa ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Respiratory Failure ◽  
Lung Transplantation ◽  
Psychological Status ◽  
Health Related Quality ◽  
Score Distribution ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Background. Improving health-related quality of life (HRQL) is an important goal of lung transplantation, and St. George’s Respiratory Questionnaire (SGRQ) is frequently used for assessing HRQL in patients waitlisted for lung transplantation. We hypothesized that chronic respiratory failure (CRF)-specific HRQL measures would be more suitable than the SGRQ, considering the underlying disease and its severity in these patients. Methods. We prospectively collected physiological and patient-reported data (HRQL, dyspnea, and psychological status) of 199 patients newly registered in the waiting list of lung transplantation. CRF-specific HRQL measures of the Maugeri Respiratory Failure Questionnaire (MRF) and Severe Respiratory Insufficiency Questionnaire (SRI) were assessed in addition to the SGRQ. Results. Compared to the MRF-26 and SRI, the score distribution of the SGRQ was skewed toward the worse ends of the scale. All domains of the MRF-26 and SRI were significantly correlated with the SGRQ. Multiple regression analyses to investigate factors predicting each HRQL score indicated that dyspnea and psychological status accounted for 12% to 28% of the variance more significantly than physiological measures did. The MRF-26 Total and SRI Summary significantly worsened from the baseline to 1 year (p<0.001 and p=0.010, respectively) in 103 patients who underwent a follow-up assessment without lung transplantation, while the SGRQ showed a marginal significant worsening (p=0.040). Conclusions. The MRF-26 and SRI are valid, discriminative, and responsive in patients waitlisted for lung transplantation. In terms of the score distribution and responsiveness, CRF-specific measures may function better in their HRQL assessment than the currently used measures do.

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