The Usefulness of Patient-Reported Outcomes and the Influence on Palliative Oncology Patients and Health Services

2020 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
A. Fuchsia Howard ◽  
Kerensa Medhurst ◽  
Domnick S. Manhas ◽  
Linda Y. Yang ◽  
Steven Brown ◽  
...  
Keyword(s):  
Health Services ◽  
Patient Reported Outcomes ◽  
Oncology Patients ◽  
Palliative Oncology ◽  
Patient Reported

scholarly journals ACE-Neuro: A Tailored Exercise Oncology Program for Neuro-Oncology Patients – Study Protocol

2021 ◽  
Author(s):  
Julia T. Daun ◽  
Lauren C. Capozzi ◽  
Gloria Roldan Urgoiti ◽  
Meghan H. McDonough ◽  
Jacob C. Easaw ◽  
...  
Keyword(s):  
Patient Reported Outcomes ◽  
Exercise Program ◽  
Cancer Rehabilitation ◽  
Secondary Outcome ◽  
Functional Fitness ◽  
Oncology Patients ◽  
Primary Brain Tumours ◽  
Primary Brain Tumour ◽  
Patient Reported ◽  
Exercise Oncology

AbstractBackgroundPatients with primary brain tumours lack access to exercise oncology and wellness resources. The purpose of the Alberta Cancer Exercise – Neuro-Oncology (ACE-Neuro) study is to assess the feasibility of a tailored neuro-oncology exercise program for patients across Alberta, Canada. The primary outcome is to assess the feasibility of ACE-Neuro. The secondary outcome is to examine preliminary effectiveness of ACE-Neuro on patient-reported outcomes and functional fitness.MethodsNeuro-oncology patients with a malignant or benign primary brain tumour that are pre, on, or completed treatment, are >18 years, and able to consent in English are eligible to participate in the study. Following referral from the clinical team to cancer rehabilitation and the study team, participants are triaged to determine their appropriateness for ACE-Neuro or other cancer rehabilitation or physiatry resources. In ACE-Neuro, participants complete a tailored 12-week exercise program with pre-post assessments of patient-reported outcomes, functional fitness, and physical activity. ACE-Neuro includes individual and group-based exercise sessions, as well as health coaching.ConclusionWe are supporting ACE-Neuro implementation into clinical cancer care, with assessment of needs enabling a tailored exercise prescription.

Use of Mobile-Based Application for Collection of Patient-Reported Outcomes in Cardiac Surgery

2021 ◽  
Vol 16 (6) ◽  
pp. 536-544
Author(s):  
Walid Ben-Ali ◽  
Yoan Lamarche ◽  
Michel Carrier ◽  
Philippe Demers ◽  
Denis Bouchard ◽  
...  
Keyword(s):  
Cardiac Surgery ◽  
Health Services ◽  
Patient Experience ◽  
Patient Engagement ◽  
Patient Reported Outcomes ◽  
Health Services Utilization ◽  
Warning Signs ◽  
Phone Call ◽  
Services Utilization ◽  
Patient Reported

Objective Application-based (app) technology has been studied for patient engagement and collecting patient-reported outcomes (PROs) in several surgical specialties with limited research in cardiac surgery. The aim of study was to determine the effectiveness of app-based technology for collecting PROs, improving the patient experience, and reducing health services utilization in a cardiac surgery center. Methods Patients accessed an interactive app via smartphones. Patients were guided from 4 weeks preoperative to 4 weeks postoperative via reminders, tasks, PRO surveys, and evidence-based education. In the postoperative period, patients were engaged with daily health surveys to track warning signs and recovery milestones. Based on the patient's signs and symptoms, the app escalated lower risk issues to self-care education or higher risk issues to the care team (e.g., phone call to a nurse). Results Sixty-six percent of patients (730 of 1,108) activated their app account. Two hundred seventy-seven patients completed an end-of-program feedback survey, with 94% of patients recommending the app and 98% of patients finding the app was helpful in recovery. Patients also reported using the app to avoid unnecessary health services utilization, with 45% of patients using the app to avoid at least 1 phone call and 28% of patients using the app to avoid at least 1 hospital visit. Conclusions App-based technology for patient engagement is an effective modality to enhance the patient experience, better understand the trajectory of recovery, and reduce unnecessary health services utilization in cardiac surgery.

scholarly journals Comparative Effectiveness of Embedded Mental Health Services in Pain Management Clinics vs Standard Care

Pain Medicine ◽  
2019 ◽  
Vol 21 (5) ◽  
pp. 978-991
Author(s):  
Andrea Gillman ◽  
Di Zhang ◽  
Susan Jarquin ◽  
Jordan F Karp ◽  
Jong-Hyeon Jeong ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Behavioral Medicine ◽  
Physical Function ◽  
Standard Care ◽  
Patient Reported Outcomes ◽  
Pain Treatment ◽  
Common Component ◽  
Patient Reported

Abstract Objective Embedded behavioral medicine services are a common component of multidisciplinary chronic pain treatment programs. However, few studies have studied whether these services are associated with improved treatment outcomes. Methods Using a retrospective, matched, two-cohort study design, we examined patient-reported outcomes (PROs), including Patient-Reported Outcomes Measurement Information System pain, mental health, and physical function measures, collected at every clinic visit in every patient. Changes from baseline through 12 months were compared in those receiving embedded Behavioral Medicine in addition to usual care to a Standard Care group seen in the same pain practice and weighted via propensity scoring. Results At baseline, Behavioral Medicine patients had worse scores on most pain, mental health, and physical health measures and were more likely to be female, a member of a racial minority, and have lower socioeconomic status. Regardless of having a worse clinical pain syndrome at baseline, at follow-up both Behavioral Medicine (N = 451) and Standard Care patients (N = 8,383) showed significant and comparable improvements in pain intensity, physical function, depression, and sleep disturbance. Behavioral Medicine patients showed significantly greater improvements in their global impressions of change than the Standard Care patients. Conclusions Despite worse pain and physical and psychological functioning at baseline, Behavioral Medicine patients showed improvements comparable to patients not receiving these services. Further, Behavioral Medicine patients report higher global impressions of change, indicating that embedded mental health services appear to have the additive value of amplifying the benefits of multimodal pain care.

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