Psychometric Properties of the Chinese Version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Among Pediatric Cancer Patients

2013 ◽  
Vol 36 (6) ◽  
pp. 463-473 ◽  
Author(s):  
Nelson C. Y. Yeung ◽  
Joseph T. F. Lau ◽  
Xiao-nan Yu ◽  
Yvonne Chu ◽  
Matthew M. K. Shing ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Chinese Version ◽  
Quality Of Life Inventory ◽  
Pediatric Cancer Patients ◽  
Life Inventory

Psychometric Properties of the Fear of Progression Questionnaire for Children (FoP-Q-SF/C)

2020 ◽  
Vol 232 (03) ◽  
pp. 136-142
Author(s):  
Johanne Katrin Luz ◽  
Julia Martini ◽  
Katharina Clever ◽  
Peter Herschbach ◽  
Holger Christiansen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Psychological Health ◽  
Short Form ◽  
Self Report ◽  
Fear Of Progression ◽  
Pediatric Cancer Patients

Abstract Background Recent research shows that parents of children suffer from fear of progression (FoP), the fear of further disease progression. It is most possible that children also develop FoP, which could impair treatment and psychological health. The aim of this study is to adapt the adult’s version of the Fear of Progression Questionnaire – Short Form (FoP-Q-SF) for children and to examine the psychometric properties in pediatric cancer patients. Patients 32 pediatric cancer patients between 10 and 18 years with different diagnoses and in different treatment states participated in this study. Method In the cross-sectional study participants completed the adapted Fear of Progression Questionnaire – Short Form for Children (FoP-Q-SF/C) and self-report measures assessing quality of life, depression, fear and coping satisfaction. Results The questionnaire (FoP-Q-SF/C) showed adequate psychometric properties (Cronbachs α=0.86) and good results for construct validity. Significant medium to large correlations of children’s FoP was observed with quality of life (r=− 0.37), depression (r=0.52), fear (r=0.33 – 0.76), and satisfaction with coping (r=− 0.44). One-fifth of the sample was classified as having high FoP with values over 37. Conclusions The FoP-Q-SF/C is a short, economic questionnaire that is applicable in children with cancer. Clinicians can use the questionnaire to explore specific fear and the need for psychosocial support. Further research for specific treatment approaches for FoP in pediatric cancer patients are warranted.

Quality of life in school-age pediatric cancer patients

2013 ◽  
Author(s):  
Fransisca M. Sidabutar ◽  
Anggie Regia Anandari ◽  
Ingrid Karli ◽  
Yusnita Katagori ◽  
Henny E. Wirawan
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
School Age ◽  
Pediatric Cancer Patients

scholarly journals A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

2016 ◽  
Vol 15 (1) ◽  
pp. 110-124 ◽  
Author(s):  
Kimberson Tanco ◽  
Ji Chan Park ◽  
Agustina Cerana ◽  
Amy Sisson ◽  
Nikhil Sobti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Literature Search ◽  
Healthcare Delivery ◽  
Self Report ◽  
Caregiver Distress ◽  
Pediatric Cancer Patients ◽  
Cancer Caregiver

AbstractObjective:Caregivers of cancer patients face intense demands throughout the course of the disease, survivorship, and bereavement. Caregiver burden, needs, satisfaction, quality of life, and other significant areas of caregiving are not monitored regularly in the clinic setting, resulting in a need to address the availability and clinical effectiveness of cancer caregiver distress tools. This review aimed to determine the availability of cancer caregiver instruments, the variation of instruments between different domains of distress, and that between adult and pediatric cancer patient populations.Method:A literature search was conducted using various databases from 1937 to 2013. Original articles on instruments were extracted separately if not included in the original literature search. The instruments were divided into different areas of caregiver distress and into adult versus pediatric populations. Psychometric data were also evaluated.Results:A total of 5,541 articles were reviewed, and 135 articles (2.4%) were accepted based on our inclusion criteria. Some 59 instruments were identified, which fell into the following categories: burden (n = 26, 44%); satisfaction with healthcare delivery (n = 5, 8.5%); needs (n = 14, 23.7%); quality of life (n = 9, 15.3%); and other issues (n = 5, 8.5%). The median number of items was 29 (4–125): 20/59 instruments (33.9%) had ≤20 items; 13 (22%) had ≤20 items and were psychometrically sound, with 12 of these 13 (92.3%) being self-report questionnaires. There were 44 instruments (74.6%) that measured caregiver distress for adult cancer patients and 15 (25.4%) for caregivers of pediatric patients.Significance of results:There is a significant number of cancer caregiver instruments that are self-reported, concise, and psychometrically sound, which makes them attractive for further research into their clinical use, outcomes, and effectiveness.

Sign in / Sign up

Export Citation Format

Share Document