Transition for adolescents and young adults with learning disabilities and mental health problems/challenging behaviours: the parent carers' views

2008 ◽  
Vol 2 (1) ◽  
pp. 22-28 ◽  
Author(s):  
Gemma Unwin ◽  
Nick LeMesurier ◽  
Niyati Bathia ◽  
Shoumitro Deb

The aim of the research was to scope issues of concern at transition for young people with learning disabilities and mental health problems/challenging behaviour from the perspective of parent carers, using a focus group interview consisting of ten participants, including one facilitator and administrative support. The interview was tape‐recorded, transcribed and thematically coded using Microsoft Word and NVivo. Two case vignettes were used to stimulate the discussion. Several themes emerged from analysis of the transcripts: access to information about rights and the services available for their son or daughter, and conflicts between carers and professionals. The experience of parent carers of people with learning disabilities is still not well understood. By understanding the views and experiences of parent carers, transition can be facilitated and concerned parties can work together to achieve better results.

2000 ◽  
Vol 176 (5) ◽  
pp. 473-478 ◽  
Author(s):  
K. Xenitidis ◽  
G. Thornicroft ◽  
M. Leese ◽  
M. Slade ◽  
M. Fotiadou ◽  
...  

BackgroundPeople with learning disabilities and mental health problems have complex needs. Care should be provided according to need.AimTo develop a standardised needs-assessment instrument for adults with learning disabilities and mental health problems.MethodThe Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities (CANDID) was developed by modifying the Camberwell Assessment of Need (CAN). Concurrent validity was tested using the Global Assessment of Functioning (GAF) and the Disability Assessment Schedule (DAS). Test–retest and interrater reliability were investigated using 40 adults with learning disabilities and mental health problems.ResultsCANDID scores were significantly correlated with both DAS (P<0.05) and GAF scores (P<0.01). Correlation coefficients for interrater reliability were 0.93 (user), 0.90 (carer), and 0.97 (staff ratings); for test–retest reliability they were 0.71, 0.69 and 0.86 respectively. Mean interview duration was less than 30 minutes.ConclusionsThe CANDID is a brief, valid and reliable needs assessment instrument for adults with learning disabilities and mental health problems.


2000 ◽  
Vol 176 (3) ◽  
pp. 297-297 ◽  
Author(s):  
C. A. Lyons

I read with interest the article by Bonell-Pascual et al (1999) and would agree that recognition of, and service provision for, the bereaved adult learning disability population is markedly deficient. However, their conclusion that learning disability is a significant predictor of future mental health problems following bereavement is not substantiated and should be interpreted with caution in view of the flawed research methodology.


2002 ◽  
Vol 65 (12) ◽  
pp. 551-558 ◽  
Author(s):  
Frances Heather

This is the first part of a two-part article describing a clinical therapeutic intervention planned and organised by a senior occupational therapist and mental health nursing staff for clients with diagnoses of severe and enduring mental health problems. The six participants had a diagnosis of schizophrenia or schizoaffective disorder or bipolar illness. Four were receiving the atypical antipsychotic medication, Clozapine. One was receiving Olanzapine, also atypical, and the last was receiving traditional antipsychotic medication. These clients were all receiving long-term support from the mental health rehabilitation unit. Participation was voluntary and each client gave written consent to participation and publication later. The aims and objectives of the initial group, the selection criteria and the content and process of the group over a period of 6 weeks are described. The subsequent group, also held for 6 weeks, will be described in part 2, together with a brief overview of the further groups that have taken place since. The evaluation methods of the first group were the Beck Anxiety Inventory (BAI) and the State-Trait Anxiety Inventory (STAI) together with verbal and written evaluation. The BAI and the STAI were not repeated in the second group and the rationale for this is explained. The perceived benefits to clients are illustrated with two brief case vignettes. The benefits to other clients are also mentioned, together with the perceived drawbacks. The article concludes with the plans for the second group.


2003 ◽  
Vol 66 (1) ◽  
pp. 25-30 ◽  
Author(s):  
Frances Heather

This is the second part of a two-part article describing a clinical therapeutic intervention, planned and organised by a senior occupational therapist and mental health nursing staff for clients with severe and enduring mental health problems living in the community. The six participants had a diagnosis of schizophrenia or schizoaffective disorder or bipolar illness. Four were receiving the atypical antipsychotic medication, Clozapine. One was receiving Olanzapine, also atypical, and the last was receiving traditional antipsychotic medication, a phenothiazine. These clients were all receiving long-term support from the mental health rehabilitation unit. Participation was voluntary and each client gave written consent to participate and for the findings to be published later. Part 1 described the aims and objectives of the initial group, the selection criteria, and the content and process of the group over a period of 6 weeks. Part 2 describes a subsequent group held with the same clients for another 6 weeks. The outcome measures used in part 1 were the Beck Anxiety Inventory (BAI) (Beck and Steer 1993) and the State-Trait Anxiety Inventory (STAI) (Speilberger 1983) together with verbal and written evaluation. In the second group, it was decided not to repeat the use of the BAI and STAI; instead, a more detailed qualitative questionnaire was issued. The reasons for this are explained. Part 2 goes on to describe the progress of the subsequent group and gives a brief overview of what has happened in further groups since. Client evaluations are illustrated by two case vignettes. The benefits to the other clients are highlighted, together with the possible drawbacks. There is discussion about the possible potential for such groups in the future.


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